Long Term Side Effects of Taxol

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I had been treated with taxol for my cancer. it's been 3 years now and i'm doing well except i have terrible leg pain.... my joints hurt and i have a stabbing feeling in my legs anyone with the same problem????

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Yst2005

I am a physician diagnosed with ovarian cancer this year and received carbo/taxol for treatment. I have spoken with many survivors who do experience joint and muscle aches even years after treatment. You should check with your doctor if it is still beneficial to take glutamine. There are reports now that pure glutamine given 10 g three times a day given with taxol treatments help reduced the side effects and this practice is common in many practices in the west coast. Unfortunately, I am not sure if it is still beneficial to take glutamine 3 years now. (although many muscle fitness industries rec using it for mucle aches related to body building.)

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Ameristar

I had my last Taxol treatment 10/31/05 and my legs are in pain most of the time. I told my doctor and he says it cannot be from the treatments. Does anyone else have the same problem. I had my CT scan last month and so far I am cancer free.

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Yst2005

I am surprised that your physician dismissed the chemotherapy as a potential cause of your join/muscle pain. Clearly, there are many post-taxol patients who have similar symptoms (but vary in severity) post treatment. I, myself, have intermittent burning sensation in my hands and luckily, my ankle and feet pain have subsided since my treatment last year. Again, there have been data supporting use of glutamine during the time of chemo; but i am not sure how effective it is post treatment. Have you discussed with your physician about trying treatments such as elavil, neurontin, lyrica for potential symptomatic relief? yst...ovarian cancer survivor 18 months

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kdo1999

On 7/27/2005 Jeanneg wrote:

I had been treated with taxol for my cancer. it's been 3 years now and i'm doing well except i have terrible leg pain.... my joints hurt and i have a stabbing feeling in my legs anyone with the same problem????

Yes, I've had severe pains in my joints, hips, and back. My chemo was in '99 and I was treated with Taxol. I've been taking glucosomine and calcium, thinking it was arthritis (and some of it could be, I don't know), but it hasn't helped that I can tell. If I don't take 2 Advil at night, I can hardly get out of bed in the morning. I'm not one to complain, but I'm seriously considering consulting a doc about this, just don't know what kind of doc to go to. I don't want to be seen as a "pain patient" and I want to be taken seriously. I am wishing you luck with your pains. Maybe there's a solution and someone will let us know! kdo1999

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