Pain

I have stage 1v renal cell cancer , mets to lungs and lymphs, two weeks ago I started having pain under right breast, Sharp when I move or lie on my back or take deep breath, Asked the cancer clinic about it .They said to take ibuprphen and they would ask the internist about it and get back to me, Never did, I started ibuprophen right away and it eased within a week, I am not supposed to take ibuprophen as it causes severe nose bleeds for me, I have taken it for two weeks now and the nose bleeds have started so have to stop. Tylenol dose not work, Anyone out there with similar symptoms? I do not know what it is and the clinic here seems disinterested.

Help

Bobtail

On 7/18/2008 bobtail wrote:

I have stage 1v renal cell cancer , mets to lungs and lymphs, two weeks ago I started having pain under right breast, Sharp when I move or lie on my back or take deep breath, Asked the cancer clinic about it .They said to take ibuprphen and they would ask the internist about it and get back to me, Never did, I started ibuprophen right away and it eased within a week, I am not supposed to take ibuprophen as it causes severe nose bleeds for me, I have taken it for two weeks now and the nose bleeds have started so have to stop. Tylenol dose not work, Anyone out there with similar symptoms? I do not know what it is and the clinic here seems disinterested.

Help

Bobtail

hi bobtail, i wish i could help but i suggest you get with your onc.  just wondering how you could be stage 1 w/mets to lung & nodes?    john

I think he was trying to type IV and it came out as '1v' !!

I must say, I do think he should force his docs to be a lot less 'disinterested'!!!  That doesn't sound very good of them. Now, it could be that, if they are oncologists, and 'only' (!) concerned about the cancer, they are not that fussed about side effects.

I wonder whether the drug company itself would be more helpful, as they, of course, have a vested interest in maximising the overall success of the drugs.

I didn't realise, I must say, that ibuprufen 'encouraged' bleeding - I know aspirin does. What about paracetomol? I'm not sure what other 'general painkillers' there are around, apart from heading into opiate territory (codeine etc) and that may be far too much for something like this.

May be the best is to consult a palliative care expert, rather than an oncologist? Nurses, too, often are very good at all the 'patient management' issues, far more than the docs.

Al the best - Julie

On 7/20/2008 JulieUK wrote:

I think he was trying to type IV and it came out as '1v' !!

I must say, I do think he should force his docs to be a lot less 'disinterested'!!!  That doesn't sound very good of them. Now, it could be that, if they are oncologists, and 'only' (!) concerned about the cancer, they are not that fussed about side effects.

I wonder whether the drug company itself would be more helpful, as they, of course, have a vested interest in maximising the overall success of the drugs.

I didn't realise, I must say, that ibuprufen 'encouraged' bleeding - I know aspirin does. What about paracetomol? I'm not sure what other 'general painkillers' there are around, apart from heading into opiate territory (codeine etc) and that may be far too much for something like this.

May be the best is to consult a palliative care expert, rather than an oncologist? Nurses, too, often are very good at all the 'patient management' issues, far more than the docs.

Al the best - Julie

Hi Julie

Thank you for the reply.

I did meam stage   iv and I cannot get the internist here to pay attention to any of my complaints, I have no oncologist so I try to see what my family Dr says, He is very nice but does not know cancer, My abdomen is becoming enlarged, It is quite distended .I am 64 years old and do not like looking like I am 6 months pregnant.Has anyone with rcc had a distended abdomen ? Need help

I live in an area that does not have very caring medical staff,

Carol

A patient with stage IV renal call cancer should be treated by an oncologist who has experience with metastatic kidney cancer.  To find one nead you, call the Kidney Cancer Association (USA 800-850-9132) or join the KIDNEY-ONC email support list (see http://cancerguide.org/kofaq/  ) and ask the list members for recommendations.  Renal cell cancer is difficult to treat and requires an expert.

 Your doctor should work for you.

Dear Carol, I quite agree with Trish -

Can you tell us a little more about where in the world you are based?

All the very best to you - Julie.

On 7/20/2008 bobtail wrote:

 

On 7/20/2008 JulieUK wrote:

I think he was trying to type IV and it came out as '1v' !!

I must say, I do think he should force his docs to be a lot less 'disinterested'!!!  That doesn't sound very good of them. Now, it could be that, if they are oncologists, and 'only' (!) concerned about the cancer, they are not that fussed about side effects.

I wonder whether the drug company itself would be more helpful, as they, of course, have a vested interest in maximising the overall success of the drugs.

I didn't realise, I must say, that ibuprufen 'encouraged' bleeding - I know aspirin does. What about paracetomol? I'm not sure what other 'general painkillers' there are around, apart from heading into opiate territory (codeine etc) and that may be far too much for something like this.

May be the best is to consult a palliative care expert, rather than an oncologist? Nurses, too, often are very good at all the 'patient management' issues, far more than the docs.

Al the best - Julie

Hi Julie

Thank you for the reply.

I did meam stage   iv and I cannot get the internist here to pay attention to any of my complaints, I have no oncologist so I try to see what my family Dr says, He is very nice but does not know cancer, My abdomen is becoming enlarged, It is quite distended .I am 64 years old and do not like looking like I am 6 months pregnant.Has anyone with rcc had a distended abdomen ? Need help

I live in an area that does not have very caring medical staff,

Carol

Hi! Carol , I think you should contact MD Anderson in Houston Tx. I have heard they will treat cancer patients for free if they qualify. It would be worth a phone call. Wish you the Best  John