Myxoid Liposarcoma

anyone heard of it?

I have heard of it. My doctors are trying to rule this out with me. I had a tumor removed 2 days ago. And of course in the beginning they don't tell you what it might be, the doctors only say, "Awwww your gonna be fine". I did some homework and asked my doctor if this could be Myxoid Liposarcoma, She said yes because a Myxoidcan mimic a lipoma. More to tell later.....

 

 

-Jennifer

my spouse has a soft tissue mass and we're told it's "myxoid liposarcoma", biopsy was done and now tomorrow he sees an oncologist in dallas,tx. more tests probably and this one specialists prognosis, then i assume surgery will follow this week sometime. it is in his chest area, between the breast and underarm, it appears large from my eyes. he says it doesn't hurt and he only discovered it two weeks ago after he'd lifted our new couch. it is scary to us and i hope this doctor is good and can explain everything for us. i read that this type of soft tissue mass cancer usually does redevelop and returns often in other parts of the body after it is removed. years later or months later and in different areas in the body. not usually in the same place, but in other spots

 

On 10/12/2008 ruthiejunior wrote:

my spouse has a soft tissue mass and we're told it's "myxoid liposarcoma", biopsy was done and now tomorrow he sees an oncologist in dallas,tx. more tests probably and this one specialists prognosis, then i assume surgery will follow this week sometime. it is in his chest area, between the breast and underarm, it appears large from my eyes. he says it doesn't hurt and he only discovered it two weeks ago after he'd lifted our new couch. it is scary to us and i hope this doctor is good and can explain everything for us. i read that this type of soft tissue mass cancer usually does redevelop and returns often in other parts of the body after it is removed. years later or months later and in different areas in the body. not usually in the same place, but in other spots

 

Hey! I'm Sara. I'm a 22 year old student. I have had myxoid liposarcoma for 8 years now. I had a 22 pound tumor removed from my abdomen and plevis. About a year later more tumors were found in my abdomen.. they were removed.. then opps AGAIN.. another 1 1/2 year later more were found i had surgery to remove them and then tryed 60 doses of radiation therapy.  Radiation did nothing to the tumors. Year 2006 I had another surgery for the same reason... now its 2008 and I have just recieved by first round of chemotherapy last week. I have 5 tumors but the one thats most difficult is wedged between my lower aorta... and in between my L1 and L2 disc of my spine. I go to MD Anderson ORLANDO.. but the doctors at MD Anderson TX have written the chemo orders to follow. Today my hair is falling out. Chemotherapy is more than not likley to be sensitive to this type of tumor but now they are trying just about anything. Throughout 8 years of having this cancer I have never had pain until now... the tumor has pushed through my spine and is causing pain to my hip.

 It's hard having a rare cancer... alot of doctors aren't really sure about it. I have heard things that I couldn't believe would come out of a MD's mouth! My favorite one was " HAVE YOU GOOGLED IT" haha. DUH!!! The best advice I can give you is make your own journal.. make your own patient chart. START NOW! that's the best way you can help yourself and others who have this. there is no ribbons, no newsweek journal article entrys... just us.

 let me know if i can help in anyway.

--Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html--

Hello!!  My wife had a myxoid Liposarcoma removed from her right thigh earlier this year.  At the time she was 31 years old and 18 weeks pregnant.  In this forum I gave a private reply to the person who started this thread, but in light of the other messages, I'll post a quick synopsis of our story.  In February, my wife found the lump in her leg while taking a shower.  It was painless, firm (but not solid) and moveable and about the size of a egg.  The progression of Drs took us to a surgeon who removed just the mass which, after three weeks and several pathologists, came back as a Myxoid Liposarcoma (tumor was 7.5 X 4 X 2.5, stage II) with a positve margin.  We were referred to a a Radiology Oncologist who recommended termination of pregnancy and high dose radiation (60 cGy if memory serves me correctly).  We were not going to terminate pregnancy without a second opinion.  The original surgeon had mentioned that Sloan Kettering in New York sees more sarcomas than anybody.  Within two weeks we were on a train to New York City (we live in South Central PA) and met with Dr. Samuel Singer.  Thank God for Dr Singer!!  He is one of the top Sarcoma surgeons in the country.  Anyway, after we told him of the original plan of treatment as recommended by our local Drs, Dr Singer was appalled and assured us that radiation was NOT necessary and we absolutely did not need to terminate the pregnancy, we just needed a good surgery.  Subsequently, my wife had surgery during her second trimester in May in which Dr Singer took a 17 X 10 X 5 cm chunk (including the sartorius muscle) out of my wife's thigh (radical resection).  The pathology showed no gross or microscopic disease and Dr Singer said he'd be surprised if this thing ever came back.  So, my advise to you, get to a surgeon who has experience with sarcomas and don't be afraid to get that second opinion.  Do not let them do anything to your you are not comfortable with just because the Dr says so.  Ours questioning and seeking of a second opinion saved our baby's life (born Sept 4) and maybe my wife's life.  Please feel free to email me if you have any questions regarding our experience.  My email address is --Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html--, just put in subject line "myxoid liposarcoma" so I don't lump in in with junk mail.  God bless you and I truely hope and pray all goes well for every one of you!