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First Petscan Post Treatment

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oceanglory
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Subject: First PetScan Post Treatment
Date: 07/21/2008
My husband's first PETscan, 8 weeks post treatment came back clean. He's scheduled to have g-tube removed on Friday and the port-o-cath in a couple of weeks. I've warned him about rushing into removing the feeding tube....especially since he just went through a bout of thrush...I mentioned Surferboy having his tube removed only to wish he had it a few days later....but he's very anxious. Today he was trying to relate a story to me he had just heard not 15 minutes earlier only to find that he could not remember the names nor the story. I've noticed lapses in his memory lately. He forgets names and words remain on the tip of his tongue. So back to the message board I go having remembered seeing the term, "chemo brain". Just when you think you are on the road to recovery, another obstacle gets thrown in your path. We have an appt with ENT tomorrow so now in addition to drug withdrawal, swallow therapy, and physical therapy, I need to get my husband into cognitive therapy. We had such a great meeting with the oncologist today, that I hate to tell him he has yet one more hurdle. This sucks but he's alive. To all those who post on this board, THANK YOU!! The docs only give you half the story. The rest of it is here.
Subject: RE: First PetScan Post Treatment
Date: 07/22/2008

congratulations on the clean scan!  what good news.  i think you are right to be concerned about removing the PEG too early.  my guy is now 12 weeks out of treatment and still battling mucous...still mostly eating through the tube...he has not had to deal with thrush (thankfully).  as for the port...his doctor says to keep it a year at least.  he will be going for frequent blood work and it is easier to access that and they want to be sure he won't need it again before removing it.  he is fine with keeping it that long since it isn't a pain in the neck like the PEG.

all the best to you both,

 ~meesh

Subject: RE: First PetScan Post Treatment
Date: 07/22/2008

Hi ocean

I an just 8 weeks past Tx now and have to wait till sept to have my PET scan

had a Cat scan a few week ago and it came back all clean !!

But I am a little concerened about the PET and how long it takes with this dry mouth from the RX

did your husband have any problems with it?

 

Congratulations on the clean scan  :-)

john 

 

 

Caregiver
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oceanglory
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Subject: RE: First PetScan Post Treatment
Date: 07/23/2008
Hi John, Thank you and good for you on the clean CT. Regarding the dry mouth, my husband is very fortunate to not have had a big problem with dry mouth. He was able to swallow the barium solution and make it through the pet without incident. Sorry we could not be of more help.
Subject: RE: First PetScan Post Treatment
Date: 08/06/2008

 

On 7/22/2008 mtkjohn1 wrote:

Hi ocean

I an just 8 weeks past Tx now and have to wait till sept to have my PET scan

had a Cat scan a few week ago and it came back all clean !!

But I am a little concerened about the PET and how long it takes with this dry mouth from the RX

did your husband have any problems with it?

 

Congratulations on the clean scan  :-)

john 

 

 


I never had to swallow anything for my PET.  They just started an IV and gave me the juice through it.

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