Sandy
I don't know if this is the slightest use to you, but I've just seen on another KC forum that someone else is on Gemsar!
It's a forum I've only just come across, at the Kidney Cancer Association.
http://www.kidneycancer.org/
You need to join the forum (listed down the left hand side - Survivors'Forum) to read the messages, but it's as simple to join that one as it is to join this one (and I dare say some of the folks there are the same as the folks here?!!). The particular reference is in the Oncology and Drugs section the 'Please help me' thread.
The forum there looks like being yet another great source of info and 'life experiences' as this site.
(They didn't say much about Gemsar, just tht they were on it, plus another chemo drug, but did say they had a rarer type of KC - don't think they mentioned which, possibly papillary?)
Anyway, like I said, at least it's another reference for you, and there may be more info there too for you.
All the best, Julie