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Subject: Off Treatment
Date: 07/23/2008
An update on my sister who is being treated at Duke.  She completed the avastin/cpt-11 and had a clear scan on 3/08, and has been off treatment since then.  Other than fatigue and some minor headaches she is doing well,...now 22 months after dx.
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LittleGreys
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Subject: RE: Off Treatment
Date: 07/23/2008
Amen!! What wonderful news. I am kinda new here, my mom was diagnosed in late March. How old is your sister? Did she have a complete resection, etc? Just curious so I can tell my mom. I always tell her when I read good news on here!
Subject: RE: Off Treatment
Date: 07/23/2008

 

On 7/23/2008 raelz wrote:

An update on my sister who is being treated at Duke.  She completed the avastin/cpt-11 and had a clear scan on 3/08, and has been off treatment since then.  Other than fatigue and some minor headaches she is doing well,...now 22 months after dx.

That is great news! Did she have several clear scan prior to going off treatment?

Subject: RE: Off Treatment
Date: 07/23/2008

Pay close attention to those headaches-- that could be a bad sign. Headaches can mean re-growth-- especially if they're happening in the mornings.

 

Subject: RE: Off Treatment
Date: 07/24/2008
Just curious to know how long she'll be off treatment.
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catamounts
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Subject: RE: Off Treatment
Date: 07/24/2008
Phenominal news and congratulations. This Amvastin thing has been great.
Subject: RE: Off Treatment
Date: 07/24/2008
Great news! Just curious, how long was she on CPT-11/Avastin?  My dad has been on it since January and I was wondering how long other patients have been on the combo.
Subject: RE: Off Treatment
Date: 08/05/2008
Hi, thanks for the response.  My sister is 46 and had a partial resection of the tumor, she goes back to Duke 1st week in Sept.
Subject: RE: Off Treatment
Date: 08/05/2008

thanks for the response.  She did have several clear mri's and then a clear pet scan which is, from what I understand, more revealing.

Subject: RE: Off Treatment
Date: 08/05/2008
thanks for the response.  I think the headaches have been fairly mild and not that frequent...what has your experience been?
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