Latest messages for CancerCompass discussion http://www.cancercompass.com/message-board/message/all,26385,0.htm Tue, 24 Nov 2009 00:00:00 GMT Tue, 24 Nov 2009 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/  On 7/25/2008 Msmittens wrote:Hi! I was diagnosed with AML leukemia at age 13 in October 1986.  I spent four months straight in Children's Hospital... had one chemo attatch a fungus to my brain and had emergency brain surgery removing the fungus and piece of my brain (I have no peripheal vision to the left in both eyes, but amazingly the only effect)/.  I had two years of chemotherapy.  I have been in remission and without chemotherapy since February 1989.  I no longer go to my oncologist, but I do go to my regular PCP for check ups and bloodwork yearly.  I am now 35 years old.  I participate in post study since I was sick... filling out paperwork, the occasional DNA tests, etc.  The study did say many who had leukemia get a second cancer in 20 years... so I am very proactive in mammograms, CEA and CA-125 bloodwork, etc.  My Mom also just passed from colon cancer, so I get colonscopys now every three years.  My Dad was also just diagnosed with appendiceal cancer that spread to his abdomen... that make three of us in a four person family with cancer!  When I was in the hospital my Dad said they gave out trial packets and there were four to choose from.... but you did not know what you were getting... God was with me as mine worked and I lived... the friends I made that were in the hospital with me, all passed away.  I know the research from then has made the drugs so much better today.  Plus I got SO sick while on chemo, constand throwing up... that is so much better now too.  I am still winning the battle and am 22 year out fromdiagnosis!  I am scared every day it could come back, that never goes away... but there is hope!  Be strong and know that having cancer... it makes you a better person... I am more understanding, patient and compasssionate and know it helps me when I cared for my Mom and now while I care for my Dad who lives with me.  Good Luck!Thank you, you certainly gave me the boost that I really needed. I wish you continued good fortune and all the best to you, Thank you   WA2LV Sat, 26 Jul 2008 00:00:00 GMT Hi! I was diagnosed with AML leukemia at age 13 in October 1986.  I spent four months straight in Children's Hospital... had one chemo attatch a fungus to my brain and had emergency brain surgery removing the fungus and piece of my brain (I have no peripheal vision to the left in both eyes, but amazingly the only effect)/.  I had two years of chemotherapy.  I have been in remission and without chemotherapy since February 1989.  I no longer go to my oncologist, but I do go to my regular PCP for check ups and bloodwork yearly.  I am now 35 years old.  I participate in post study since I was sick... filling out paperwork, the occasional DNA tests, etc.  The study did say many who had leukemia get a second cancer in 20 years... so I am very proactive in mammograms, CEA and CA-125 bloodwork, etc.  My Mom also just passed from colon cancer, so I get colonscopys now every three years.  My Dad was also just diagnosed with appendiceal cancer that spread to his abdomen... that make three of us in a four person family with cancer!  When I was in the hospital my Dad said they gave out trial packets and there were four to choose from.... but you did not know what you were getting... God was with me as mine worked and I lived... the friends I made that were in the hospital with me, all passed away.  I know the research from then has made the drugs so much better today.  Plus I got SO sick while on chemo, constand throwing up... that is so much better now too.  I am still winning the battle and am 22 year out fromdiagnosis!  I am scared every day it could come back, that never goes away... but there is hope!  Be strong and know that having cancer... it makes you a better person... I am more understanding, patient and compasssionate and know it helps me when I cared for my Mom and now while I care for my Dad who lives with me.  Good Luck! Msmittens Fri, 25 Jul 2008 00:00:00 GMT After reading some of the articles, I would like to add a further question, Have you had AML longer then 5 years WITHOUT having a BMT? WA2LV Wed, 23 Jul 2008 00:00:00 GMT