Colostomy Reversal

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RE: Colostomy Reversal

by jubisa on Mon Nov 30, 2009 01:31 PM

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Great topic guys. I've been reading a lot about this too and found additional info here:

http://meetanostomate.com/phpBB2/viewtopic.php?t=639&highlight=colostomy+reversal

 

Hope it helps

RE: Colostomy Reversal

by kylie7 on Wed Feb 10, 2010 01:45 PM

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a friend i no had a Colostomy Reversal,its been a few months now but of the night he was going to the toilet many times that he just couldnt seem to get any sleep.  the doc told him that he may need to keep a bag,he really dont want to have a bag but they said it may not have worked, he dont take sugar and always watches what he eats,but he cant eat without running to the toilet.  please help on any more ideas. thank you.

RE: Colostomy Reversal

by Msmittens on Thu Feb 11, 2010 03:10 AM

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My Dad had the same thing happen.  We were on three Lomotil pills three times daily and also took Liquid Opium three times daily... the Opium was a Godsend in getting it to a high manageable level,  We also measured the output to ensrue he would not get dehydrated and then hydrated him accordingly.  I totally understand the inconvenience of this... my Dad was not able to always take care of his on his own so myself or my husband would get up in the middle of the night... we did get it to every four hours of emptying.  Good luck!

RE: Colostomy Reversal

by davidbeaham on Sat Feb 13, 2010 05:14 PM

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To all who have had their colostomy reversed I know what you're going thru. Mine was reversed in August of 2006. What we really need is a dietician to advise us on the changes we need to make. I'm left with only 1/2 inch of my rectum so I really don't have any storage area left. As most of you are saying sugar is out of the question. Diary is also bad, especially any probiotics. Cheese, even cottage cheese doesn't seem to give me problems. Fresh fruits and fruit juices have too much sugar. Try canned fruits for diabetics. Chocolate is the biggest no-no, too much sugar and caffiene. To control the frequency of bowel movements try an anti-diarrheal which contains Loperamide Hydrochloride. It can be found on the shelf at most pharmacy's. Try not to eat any snacks after dinner as the colon is a muscle that never stops working. It has no idea what time of day it is. Since my colon surgery in 2006 and liver resection in 2008 I'm now able to travel again. It takes preparation before setting out for the day but it can be done. I've had sensation return and learned control since my operation. But episodes do happen if I vary the diet. Listen to your body and it will tell you what to stay away from.

Dave

RE: Colostomy Reversal

by Caroleindia on Sat Nov 27, 2010 09:41 PM

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My husband had a reverse colostomy on August 30th this year, due to a preferated colon. Surgery was successful, however he is not the same, he has turned so mean and is always yelling at me or picking on me...you would think he would be happy  to have the bag removed. Has anyone heard of this. 

RE: Colostomy Reversal

by tshvii on Wed Dec 01, 2010 02:19 AM

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Interesting thread wish I knew about it earlier, like when I had the colostomy spring 09 and its reversal winter 10.  From the reading, looks like I had an easy time compared to what I read what others expierenced. My biggest frustration after the reversal was getting it to work, meaning took me a while till I had my first bowel movement.  I guess I was so relieved that I got the plumbing back in working order, I just was excited not to have to work with bags and irrigation etc. 

This is just an idea, but given I did not expierence the same problems, maybe excersise or simple walking might help.  Given it does slow down the digestive or at least the stomach.  Maybe enough to allow the fluid to be released from the stomach before working its way down to the bowels. After the surgery and as able, I would do laps around the ward and then the hospital, when I got home would walk around town.  Just an idea.

 

Caroleindia, not sure about your husband, maybe there is something else going on and he is just frustrated?

RE: Colostomy Reversal

by tshvii on Wed Dec 01, 2010 02:19 AM

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Interesting thread wish I knew about it earlier, like when I had the colostomy spring 09 and its reversal winter 10.  From the reading, looks like I had an easy time compared to what I read what others expierenced. My biggest frustration after the reversal was getting it to work, meaning took me a while till I had my first bowel movement.  I guess I was so relieved that I got the plumbing back in working order, I just was excited not to have to work with bags and irrigation etc. 

This is just an idea, but given I did not expierence the same problems, maybe excersise or simple walking might help.  Given it does slow down the digestive or at least the stomach.  Maybe enough to allow the fluid to be released from the stomach before working its way down to the bowels. After the surgery and as able, I would do laps around the ward and then the hospital, when I got home would walk around town.  Just an idea.


Caroleindia, not sure about your husband, maybe there is something else going on and he is just frustrated?

RE: Colostomy Reversal

by meucat on Thu Dec 02, 2010 02:31 AM

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My colostomy  was reversed Dec 09 (also took out my spleen).  (I was in the hospital for a month...most of the time in intensive care as somthing went wrong with the first surgery and they had to operate again.  Besides the problems in the hospital I never have had any bathroom issues, in fact, I didn't know there could be these problems.  I just went back to normal, right in the Hospital.

I feel so bad for anyone going through this, I never knew this could happen like this.  Hope things improve for everyone.

God Bless

RE: Colostomy Reversal

by gitarmaninaz on Sat Dec 04, 2010 06:05 PM

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I had an Ileostomy then the Reversal.  I also could not find good solid info on one website all in one place, for what I wanted to know. Well, soon after the first surgery I made a website to help others. It goes from day one on the first surgery  to the reversal, to my update at the one year mark. It is at www.freewebs.com /ileostomyreversalsurgery. You might have top copy and paste the entire web address into your browser in case the freewebs site shows up and not my website. Sometimes it does that. There is a forum too in it where you can ask others about their experience as well. My website has been real successful and has helped many people on knowing what to expect from the hospital stay to the bowel movements, to eating, photos of me, videos, what to wear after a getting the ostomy bag, and so much more. I hope it helps you. Things do get better on the norm.

RE: Colostomy Reversal

by suemd1 on Mon Aug 08, 2011 04:06 AM

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I had a double barrel transverse colostomy.  I had it for 3 months and that was pretty tough on me.  I had to get up 3-4 times a nite to empty my bag.  Because the stoma was next to my belly button I had to stand and drain the bag into a container, rinse that out, rinse off the opening of the bag..all while standing up. We used to travel a bit and had to put traveling on hold , because I refused to kneel on the floor airport bathrooms floors  to empty my bag out.

I was lucky to have this reversed  last Septemember >>Not sure  why they call it that, because I do not have a transverse bowel.  However It the ascending and desending colon was reattached.

I haven't had any problems other than gaining 15 pounds since the reversal.  I was never a heavy person, but wow. I am not sure why this is happening. I walk 2-3 miles a day and watch what I eat. I eat alot of salads and that doesn't seem to disturb my bowel at all.  I get a bit gassy with raw fruit though.

I have taken lomotil a couple of times while on vacation (out of the country in May ) just so I wouldn't have any problems on the plane...

I hope you will be able to take all of this information and try to process it before your reversal.

Like i said, I had NO problems other than the weight gain.

so if there is anyone else that is having a weight problem because of this. could you please respond?

thank you

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