Signet Ring (cell) Carcinoma

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Signet Ring (cell) Carcinoma

by Larry__a_ho_Model_Railroader on Sun Aug 07, 2005 12:00 AM

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Does anyone have information on this type of very rare cancer? Mine started on my appendix and drove itself into the small and large intestines. The cancer has been surgically removed, but there are still cancer cells in 9 of 20 lympg nodes. Does anyone have suggested chemo teatments. My Oncologist at Hershey Medical Center is using Oxaliplatin and Capecitabine - which are used to treat colon/rectal cancer---but that is not what I have. Any help/info would be appreciated. Chemo will start about 29 August.

Signet Ring Carcinoma

by Pink_Kitty1987 on Wed Aug 10, 2005 12:00 AM

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Hi There, I wanted to wish you the best of luck. My father was diagnosed with the same cancer in April which started on his diaphram and spread to his intestines and he became sick very quickly and only got one opinion and shortly after he passed away (June) I began doing some research and found that the Cancer Treatment Centers Of America does offer unique treatments for that. I don't know why but all signet ring cancer is consitered colon/rectal cancer, so maybe treatments for that would help. If you do an internet search for Cancer Treatment Centers Of America maybe you can get some helpful info. Any way, I wish you the best of luck and I hope all goes well for you. Jen

Appendix Cancer

by Beanieweenie on Sun Mar 26, 2006 12:00 AM

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hi my mom 56 year old has recently been dx. with this. her doctor said it is treated as a colon cancer since the appendix is attached to the colon. she has signet cell carcinoma also.

RE: Signet Ring (cell) Carcinoma

by Carolynll on Sat Jun 02, 2007 12:00 AM

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I am a registered nurse and signet ring appendiceal cancer survivor of six years.  Appendix cancer is not colon cancer, and there are specialists who treat appendix cancer.  I created a web site with my story and with information about the disease, specialists who treat the disease and informaiton about some of the treatments they use.  My web site is :

www.appendix-cancer.com

I hope it is helpful to you.  Since publishing my web site I have been in contact with almost 200 appendix cancer patients and many of the specialists who treat the disease.  There is hope.

 Take care,

Caorlyn

 

RE: Signet Ring (cell) Carcinoma

by Carolynll on Sat Jun 02, 2007 12:00 AM

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I am a registered nurse and signet ring appendiceal cancer survivor of six years.  Appendix cancer is not colon cancer, and there are specialists who treat appendix cancer.  I created a web site with my story and with information about the disease, specialists who treat the disease and informaiton about some of the treatments they use.  My web site is :

www.appendix-cancer.com

I hope it is helpful to you.  Since publishing my web site I have been in contact with almost 200 appendix cancer patients and many of the specialists who treat the disease.  There is hope.

 Take care,

Carolyn

 

RE: Signet Ring (cell) Carcinoma

by lori_V_1 on Sat Nov 10, 2007 12:00 AM

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I had (cross my fingers)  signet ring cell cancer of the bladder.   After a huge run around in California I ended up in Sloan Kettering in NY, where I finally got surgery and treatment for my tumor.  I return for check ups every 6 months and I have been cancer free for 1 1/12 years.

Yes, it is rare and YES it can be primary bladder cancer.   and YES if you have this you will probably be mis- diagnosed and told  that it is a metastasis of colon cancer.

 Don't listen and  get yourself to a cancer specialized center.

RE: Signet Ring (cell) Carcinoma

by connibl on Tue Mar 04, 2008 12:00 AM

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Carolyn,  your website message is an inspiration to us all.  I have lost three friends in the last two years to various cancer, and have since had my son diagnosed with MS.  We are on a medication, called lowdosenaltrexone, for the ms, and auto immune disease, as well as cancer.  I wanted to share that with you.  You can research at www.lowdosenaltrexone.org.  They have been very successful with cancer also. 

 

My question to you.  My friend just got diagnosed with signet ring cancer.  They could not find in in the digestive system, but she had a lump removed from her neck in the lymph gland, that was stage 4.  Now after months the radiolgist found something in the pet scan, and she had a biopsy of the pelvic bone and they found it there, and now another scan this week found it in the forehead.  They are using fumera, I think that is the name, some radiation to the neck, and another drug that affects the teeth and heart.  They said this started with her breast cancer from years ago.

 

I don't have too much faith in the doctors, as they missed the pelvic cancer on the pet scan, never checked her head till now, and said this was digestive cancer and then when they could not find it, said it was breast cancer......

 

This is a 66 year old mother of 7, a good friend and mother of my kids friends, Do you have any suggestions for us??  Would you feel able to talk with her?   Can you research the lowdosenaltrexone and tell me if you would feel comfortable using that?  even with other treatments?  

 

I am so glad you are better and able to be here to raise your children.   I have 5 children, ages 22-31.  I am still very much involved in the raising of the children, which is still going on and probably will go on until I am gone.....  No grand babies yet tho'. 

 

Thank you so much for your help. 

RE: Signet Ring (cell) Carcinoma

by ckeenan on Sat Apr 05, 2008 12:00 AM

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On 8/7/2005 Larry - a ho Model Railro wrote:

Does anyone have information on this type of very rare cancer? Mine started on my appendix and drove itself into the small and large intestines. The cancer has been surgically removed, but there are still cancer cells in 9 of 20 lympg nodes. Does anyone have suggested chemo teatments. My Oncologist at Hershey Medical Center is using Oxaliplatin and Capecitabine - which are used to treat colon/rectal cancer---but that is not what I have. Any help/info would be appreciated. Chemo will start about 29 August.

 

Hi, I doubt if I will be much help as I am starting this journey myself.  For the whole of 2007 the quacks in NJ diagnosed me with IBS.  Colonoscopy on 12/27/07 could not be completed because of large tumor in rectum. Biopsy showed Signet Ring Cell. On 1/15/08 I was operated on at Fox Chase Cancer Hospital in Philadelphia.  They found stage 4 which started in the appendix...then went all over, colon, small bowel, uterus, lymph nodes, omentum etc etc. 

I started chemo in February 2008-- FU5, Oxyplatin, Leukovorin, Avastin once every 2 weeks (including a 48 hour take-home pack). They tell me there is No cure for signet ring and the best I can hope for is to halt it where it is now. Which means chemo for the rest of my life.  The funny thing is except for chemo day and 3 days later, I feel great, no pain.

My cancer was not removed, too widespread. I have a colostomy (BAG)

The next ct scan is 4/22 to see if any of this did any good

Carol

 

RE: Signet Ring (cell) Carcinoma

by ckeenan on Sat Apr 05, 2008 12:00 AM

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Oh my GOD, I am so sorry, I misread the date of your posting and did not realize it was 3 yrs old.

RE: Signet Ring (cell) Carcinoma

by vilma80 on Thu May 22, 2008 12:00 AM

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On 4/5/2008 ckeenan wrote:

 

On 8/7/2005 Larry - a ho Model Railro wrote:

Does anyone have information on this type of very rare cancer? Mine started on my appendix and drove itself into the small and large intestines. The cancer has been surgically removed, but there are still cancer cells in 9 of 20 lympg nodes. Does anyone have suggested chemo teatments. My Oncologist at Hershey Medical Center is using Oxaliplatin and Capecitabine - which are used to treat colon/rectal cancer---but that is not what I have. Any help/info would be appreciated. Chemo will start about 29 August.

 

Hi, I doubt if I will be much help as I am starting this journey myself.  For the whole of 2007 the quacks in NJ diagnosed me with IBS.  Colonoscopy on 12/27/07 could not be completed because of large tumor in rectum. Biopsy showed Signet Ring Cell. On 1/15/08 I was operated on at Fox Chase Cancer Hospital in Philadelphia.  They found stage 4 which started in the appendix...then went all over, colon, small bowel, uterus, lymph nodes, omentum etc etc. 

I started chemo in February 2008-- FU5, Oxyplatin, Leukovorin, Avastin once every 2 weeks (including a 48 hour take-home pack). They tell me there is No cure for signet ring and the best I can hope for is to halt it where it is now. Which means chemo for the rest of my life.  The funny thing is except for chemo day and 3 days later, I feel great, no pain.

My cancer was not removed, too widespread. I have a colostomy (BAG)

The next ct scan is 4/22 to see if any of this did any good

Carol

 

Hi there Carol,my husband was diagnos with cignet cell carsinoma stage 3,on 1/24/08,he is on chimotherapy right now. I do pray for him everyday,this is a very agressive cancer I hear,and hard to cure.Carol can you please share with me,what's going on with you,as I see u both have a same type/sign on cancer.He did radiation also for 5weeks,and chimo,for 6month.I wish you the best of luck my prayers are with you.           Best regards Violet.

 

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