Can anyone help me?

I fear I may have bone cancer;  I went to the doctor a couple of weeks ago and I feel I was misdiagnosed.  I was given corticortoids for severe back pain in my lower back, lumbar region, and the doctor's treatment was bedrest because he suspected I tore some tissue surrounding the iliac and spinal cord. The diagnosis seemed believable at the time, but now, I feel as if something is moving in the thoracic region of my back. What I would like to find out from someone is what does it feel like to have bone cancer?  I feel like there's a constant gnawing feeling on my spinal cord and at times, I feel like it protrudes out of my back, even though there is nothing there that's palpable. The pain is excruciating at times, and other times I feel less irritated by it. I know something is wrong, I just wanted someone who could tell me if bone cancer feels this way. Cancer runs in my family, especially non-hodgkins lymphoma. I'm going to request an MRI, but in the meantime, I would like to hear from a few of you to prepare myself if in fact there's something more serious here. Please respond...I can't talk to anyone else about this.  Thank you.

 

On 8/6/2008 Kasey01 wrote:

I fear I may have bone cancer;  I went to the doctor a couple of weeks ago and I feel I was misdiagnosed.  I was given corticortoids for severe back pain in my lower back, lumbar region, and the doctor's treatment was bedrest because he suspected I tore some tissue surrounding the iliac and spinal cord. The diagnosis seemed believable at the time, but now, I feel as if something is moving in the thoracic region of my back. What I would like to find out from someone is what does it feel like to have bone cancer?  I feel like there's a constant gnawing feeling on my spinal cord and at times, I feel like it protrudes out of my back, even though there is nothing there that's palpable. The pain is excruciating at times, and other times I feel less irritated by it. I know something is wrong, I just wanted someone who could tell me if bone cancer feels this way. Cancer runs in my family, especially non-hodgkins lymphoma. I'm going to request an MRI, but in the meantime, I would like to hear from a few of you to prepare myself if in fact there's something more serious here. Please respond...I can't talk to anyone else about this.  Thank you.

I have been diagnosed with NHL. The definitive diagnostic procedure was a CT Guided needle bone marrow biopsy. The symptom that ultimately lead to the diagnosis was clotting. I had unexplained blood clots over a 9 month period. My doc brought in a oncologist/hematologist to find the cause. After CT scans MRIs and PET Scans they did a lymph node biopsy which proved to be inconclusive and then the bone marrow biopsy which found the culprit.

I have occasional pain in my hip in the area below my spine. It's not at all severe and its infrequent. I am essentially asymptomatic at this point. I suggest that you get referred to an oncologyst. He or she will start the hunt for the cause of your pain. Be forewarned that you may spend up to a year testing for this.

 

 

On 8/7/2008 MrPat wrote:

 

On 8/6/2008 Kasey01 wrote:

I fear I may have bone cancer;  I went to the doctor a couple of weeks ago and I feel I was misdiagnosed.  I was given corticortoids for severe back pain in my lower back, lumbar region, and the doctor's treatment was bedrest because he suspected I tore some tissue surrounding the iliac and spinal cord. The diagnosis seemed believable at the time, but now, I feel as if something is moving in the thoracic region of my back. What I would like to find out from someone is what does it feel like to have bone cancer?  I feel like there's a constant gnawing feeling on my spinal cord and at times, I feel like it protrudes out of my back, even though there is nothing there that's palpable. The pain is excruciating at times, and other times I feel less irritated by it. I know something is wrong, I just wanted someone who could tell me if bone cancer feels this way. Cancer runs in my family, especially non-hodgkins lymphoma. I'm going to request an MRI, but in the meantime, I would like to hear from a few of you to prepare myself if in fact there's something more serious here. Please respond...I can't talk to anyone else about this.  Thank you.

I have been diagnosed with NHL. The definitive diagnostic procedure was a CT Guided needle bone marrow biopsy. The symptom that ultimately lead to the diagnosis was clotting. I had unexplained blood clots over a 9 month period. My doc brought in a oncologist/hematologist to find the cause. After CT scans MRIs and PET Scans they did a lymph node biopsy which proved to be inconclusive and then the bone marrow biopsy which found the culprit.

I have occasional pain in my hip in the area below my spine. It's not at all severe and its infrequent. I am essentially asymptomatic at this point. I suggest that you get referred to an oncologyst. He or she will start the hunt for the cause of your pain. Be forewarned that you may spend up to a year testing for this.

 

 

Hi - If I were you I would request a tumor marker before getting all those other tests, it is a simple blood test. My husband has cancer to the bones and other places and he has had no pain.  You could be experiencing arthritis.  I wish you luck and a positive out come.  Idi

It sounds like you have back problems.I suggest you do as your doctor prescribed. Stay in bed until it has a chance to heal. 2 weeks at the very least,maybe longer if you don't feel relief.

Good Luck! 

 

On 8/6/2008 Kasey01 wrote:

I fear I may have bone cancer;  I went to the doctor a couple of weeks ago and I feel I was misdiagnosed.  I was given corticortoids for severe back pain in my lower back, lumbar region, and the doctor's treatment was bedrest because he suspected I tore some tissue surrounding the iliac and spinal cord. The diagnosis seemed believable at the time, but now, I feel as if something is moving in the thoracic region of my back. What I would like to find out from someone is what does it feel like to have bone cancer?  I feel like there's a constant gnawing feeling on my spinal cord and at times, I feel like it protrudes out of my back, even though there is nothing there that's palpable. The pain is excruciating at times, and other times I feel less irritated by it. I know something is wrong, I just wanted someone who could tell me if bone cancer feels this way. Cancer runs in my family, especially non-hodgkins lymphoma. I'm going to request an MRI, but in the meantime, I would like to hear from a few of you to prepare myself if in fact there's something more serious here. Please respond...I can't talk to anyone else about this.  Thank you.

Hi im beanie

I have just read about your worries it sounds very much like me but dont take this as a garentee but there could be other reasons as to why i have had cancer for years in differant places all the time i have got bone cancer not sure how long i got left i was 19 when it all started and am now 51 so dont everything as a deadcert it might be differant to mine yes do insist on mri scan and allso ask for ctscan and other tests to find out and ask for what ever the out come is you want to know if there is anything i can help with then ask  ok but please dont give in there is a lot of people like this all over the place try not to worry it makes things ten times worse ok

GOD BLESS LET ME KONOW OK

LOVE BEANIE XXX