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Glioblastoma Has Returned Yet Again

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rebella82899
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Subject: Glioblastoma Has Returned Yet Again
Date: 08/11/2008

First of all, I would like to say that we are not alone in fighting this terrible battle of brain cancer, Glioblastoma Multiforme. My 37 year old brother was diagnosed in January 2008 with Glioblastome Multiforme in which he had surgery, followed by Radiation and Chemotherpy.  He did very well and he barely had side effects from radiation and chemotherapy, Temodar.  He did lose his hair eventually and vomited only the first time.  My brother is single and is actually learning disabled to which he is in denial of.  He actually does not fully understand the gravity of his diagnosis and we feel its best for him not to know as he has had a great positive attidue during this whole time.  It is hurting me more inside knowing that he does not know how severe it can be. 

He has to have surgery again scheduled for Sept 2008 as GBM has returned.  I also took him for a second opinion and was told the same thing, that surgery is required.  I inquired if there were any clinical trials and this hospital has recommended using Tarceva (used for Lung Cancere and pancreatic Cancer).  Has anyone here tried this type of study.

We all must pray and take it day by day as life is too short.

Any advice would be greatly appreciated and may we all keep fighting this horrible disease.  God Bless us all.

 

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Sister Suzy Q
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Subject: RE: Glioblastoma Has Returned Yet Again
Date: 08/11/2008

My brother has been on that as an experimental - OSI 774.  I'm pretty sure it is the same thing.  Unfortunatey, we just found out that his tumor diagnosed 4/08, followed by surgery, Chemo, radiation and OSI 774 did not affect the tumor at all.  It grew aggressively during treatment.  He is enroute to hospice as I write.

 I wish you all the best.  This is the hardest thing I've ever been through.

Sister Suzy Q

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rebella82899
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Subject: RE: Glioblastoma Has Returned Yet Again
Date: 08/12/2008

Thank you for your reply Sister Suzy Q.  I did some research and I believe it is the same thing.  This certainly is the most difficult part of my life but we must all keep on fighting this horrible disease. 

God will give us the strength and hope to continue on with our lives once our loved ones goes to heaven.  We all must have faith and pray to the Lord during the most difficult time of all of us affected from GBM.

May God Bless us all and be with us during this time of our lives.

Peace

 

 

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justins mom
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Subject: RE: Glioblastoma Has Returned Yet Again
Date: 08/13/2008
My 13 year old son also has a recurring tumor. Yesterday he was offered the chance to join a clinical trial involving the drug cilengitide. It's given twice a week for as long as they can handle it. I'm not sure if it is strictly a pediatric study or not. Hope this helps and I wish your brother and you the best of luck.
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