Stage IV colon cancer life expectancy?

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RE: Stage IV colon cancer life expectancy?

by ih8coloncancer on Thu Jun 07, 2012 07:54 PM

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On Jun 20, 2010 6:38 PM Mbamarie wrote:

On Aug 14, 2008 12:00 AM Sagitelle wrote:

In May 2007, at the age of 52, I was diagnosed with inoperable Stage IV colon cancer with numerous metastases to both sides of the liver.  I was told that I had 3-6 months to live without chemo and 2-3 years with chemo. I began chemo in mid-August 2007. In April, when I asked the doctor to see the scan on his computer, I counted at least 12 tumours. My scan in January 2008 showed an important improvement in the size of my tumors, which had shrunk by about half. My April 2008 scan showed a further modest reduction. My next scan is on August 29.

I have had about 24 treatments so far. At first, FOLFOX every 2 weeks with Avastin. In May of this year I asked to switch to Xeloda pills as I could not bear the thought of another 5FU bottle attached to me for 3 days. Also, 5FU made my tongue swell up in addition to it being covered in multiple sores, which made talking and eating painful and difficult. Being tied to a bottle for 3 days in a row evry 2 weeks also made me very depressed. Things have been better since I switched to pills. I hardly get tongue sores anymore and my mouth is a lot less sensitive. I have had diarrhea episodes and I have hand and foot syndrome, but I still prefer the pills. I only need to go to the hospital every 3 weeks now for Irinotecan and Avastin. I am nauseous for about 2 days after my hospital treatment. All in all, however, my quality of life has much improved since I've switched to Xeloda pills.     

Has anyone else been diagnosed with inoperable colon cancer with multiple metastases all over the liver? If so, how long have you been given and how long has it been? Have you outlived your prognosis?

I got married to a wonderful man 2 months after my diagnosis and would like to share life with him as long as I can. Also, my 31-year-old son has just told me that he is getting married in January and that his soon-to-be-wife and him want to try to have children right away. I've always looked forward to being a grand-mother and I would like to stay alive as long as I can to enjoy my grand-children after they are born. I would like them to remember me. 

Does anyone have a story of hope for me?  

 

 

Are you still here with u

I'm 13 and my mom was diagnosed with colon cancer stage four at age 37 and just recently had a obstruction in her colon so before doing chemo they just went in and took out part of the colon and now she's fine in that part but the terrifying part is that is spread to her liver and now has 12 tumors/spots on her liver and the doctors are telling us that even if chemo works she is still only going to have 2 more years to live and im so scared because my mom is my everything and she can't die, but right now we are in the process of recovering from the surgery she just had and she can't get chemo unless she fully healed which sucks cause if we wait that long than it might even spread to her lungs.....I just want my mommy to live Can someone please tell me if she will be okay longer than 2 years?? ;'(

RE: Stage IV colon cancer life expectancy?

by lucky2havemyboo on Thu Jun 07, 2012 08:56 PM

Quote | Reply

Only God knows how long any of us are going to live,

but some of the things you are saying here are in opposition to what my doctors told me. Get a second opinion from a center, a big one. I went to Cornell Weil in NYC, the Helmsley center for my third opinion, GLAD I did.

Best of luck,

Chris

RE: Stage IV colon cancer life expectancy?

by Robmx on Thu Jun 07, 2012 08:57 PM

Quote | Reply

On Jun 07, 2012 7:54 PM ih8coloncancer wrote:

On Jun 20, 2010 6:38 PM Mbamarie wrote:

On Aug 14, 2008 12:00 AM Sagitelle wrote:

In May 2007, at the age of 52, I was diagnosed with inoperable Stage IV colon cancer with numerous metastases to both sides of the liver.  I was told that I had 3-6 months to live without chemo and 2-3 years with chemo. I began chemo in mid-August 2007. In April, when I asked the doctor to see the scan on his computer, I counted at least 12 tumours. My scan in January 2008 showed an important improvement in the size of my tumors, which had shrunk by about half. My April 2008 scan showed a further modest reduction. My next scan is on August 29.

I have had about 24 treatments so far. At first, FOLFOX every 2 weeks with Avastin. In May of this year I asked to switch to Xeloda pills as I could not bear the thought of another 5FU bottle attached to me for 3 days. Also, 5FU made my tongue swell up in addition to it being covered in multiple sores, which made talking and eating painful and difficult. Being tied to a bottle for 3 days in a row evry 2 weeks also made me very depressed. Things have been better since I switched to pills. I hardly get tongue sores anymore and my mouth is a lot less sensitive. I have had diarrhea episodes and I have hand and foot syndrome, but I still prefer the pills. I only need to go to the hospital every 3 weeks now for Irinotecan and Avastin. I am nauseous for about 2 days after my hospital treatment. All in all, however, my quality of life has much improved since I've switched to Xeloda pills.     

Has anyone else been diagnosed with inoperable colon cancer with multiple metastases all over the liver? If so, how long have you been given and how long has it been? Have you outlived your prognosis?

I got married to a wonderful man 2 months after my diagnosis and would like to share life with him as long as I can. Also, my 31-year-old son has just told me that he is getting married in January and that his soon-to-be-wife and him want to try to have children right away. I've always looked forward to being a grand-mother and I would like to stay alive as long as I can to enjoy my grand-children after they are born. I would like them to remember me. 

Does anyone have a story of hope for me?  

 

 

Are you still here with u

I'm 13 and my mom was diagnosed with colon cancer stage four at age 37 and just recently had a obstruction in her colon so before doing chemo they just went in and took out part of the colon and now she's fine in that part but the terrifying part is that is spread to her liver and now has 12 tumors/spots on her liver and the doctors are telling us that even if chemo works she is still only going to have 2 more years to live and im so scared because my mom is my everything and she can't die, but right now we are in the process of recovering from the surgery she just had and she can't get chemo unless she fully healed which sucks cause if we wait that long than it might even spread to her lungs.....I just want my mommy to live Can someone please tell me if she will be okay longer than 2 years?? ;'(

It is possible. I have stage 4 colon cancer and just got back from a  month vacation in Europe. It has been 5.5 years since my original diagnosis. I have tumors in my right lung and Hylar area. There is a lot going on in research and your mother is young which should give her a better chance at beating this. 

Find out as much as you can about what kind of colon cancer she has. Is it Kras Wild Type for example. If it is then maybe while your waiting to start chemo she could take DCA which worked wonders for me for a couple of years. DCA  plus Vitamin B complex and extra B-1 and Alpha Lopoic Acid reduced my tumors and then kept them stable for 18 months. Also worked again a year later after a round of chemo with stable disease and a small reduction.

I feel fine and plan on going on regular chemo again probablly in a few weeks.  

Do your own research and ask a lot of questions. And don't give up. 

RE: Stage IV colon cancer life expectancy?

by ih8coloncancer on Fri Jun 08, 2012 06:42 PM

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Thank you so much, I showed my mom your message and shes looking into DCA now , I just want my mom to live longer than what the doctors are saying, she's supposed to live for another 50 years, it's crazy to think he might only have 2-5 :( so is there any more suggestions out there for her liver? Because the only thing that could make her stop living is her liver and if we can get her liver as healthy as we can then that can increase her chance of living life.

RE: Stage IV colon cancer life expectancy?

by Shitulpatel on Fri Jun 08, 2012 07:00 PM

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On Jun 08, 2012 6:42 PM ih8coloncancer wrote:

Thank you so much, I showed my mom your message and shes looking into DCA now , I just want my mom to live longer than what the doctors are saying, she's supposed to live for another 50 years, it's crazy to think he might only have 2-5 :( so is there any more suggestions out there for her liver? Because the only thing that could make her stop living is her liver and if we can get her liver as healthy as we can then that can increase her chance of living life.
I also had mets in all segments of the liver and after four months of chemo I am resectable. So dont lose hope. Her tumours will reduce and she will be resectable at some stage as long as tumours are not very close to the blood vessels. Pl look at her Ct- pet reports and post what it actually says and many persons will be able to guide you and suggest things which your onco or doc may not inform u So hang in there keep posting. Ask her to take curcumin supplements , u can buy them from amazon , and as some persons suggest IP6 , which is also on amazon Hope this helps Shitul

RE: Stage IV colon cancer - My update

by Shitulpatel on Tue Jun 19, 2012 07:25 AM

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hi, I recently visited Regensburg in Germany , dr Hans Schlitt, to determine if that is a good place for the treatment. I was offered a single stage resction to the liver after a laproscopic removal of primary sigmoid colon tumour, liver has atleast 12 tumours , most of them seem to be calcified. Doc went through the entire triple phase CT scan with us and mentioned that he will be able to resect all but two tumours , which will be dealt with by RFA. Also, the single stage resection depends on what the damage to liver is, after chemo. Apparently there are no tests to determine that and the doc will only know that once he opens me up. But he seemed confident and supposedly has a lot of experience in these matters. The hospital is a university teaching hospital where he is the director of surgery. Other institutions in USA offered either " resection not possible" or " two stage resection" of the liver. Hence, this is an added worry as to why in Germany they would offer a single resection. The colorectal surgeon was also confident on removing the sigmoid colon laproscopically. Current plan is laproscopic sigmoid colon surgery and after recovery from it , approx 10 to 12 days, the liver resection. The liver resection will need a recovery period of atleast 20 days. Following that, there may be more chemo which depends on our meeting the oncologist there after the surgeries. A lot depends on the recovery from the surgeries. I know recovery time is an individual matter and diff persons react differently. However, if anyone has any suggestion to give about things I need to do before surgery ( have atleast 20 days till surgery) , and after surgery to be able to recover faster with less pain and discomfort I would Welcome any or all comments. Pl help in providing me with suggestions and advise so I can handle this in a better and more informed manner. Thanks Shitul Patel

RE: Stage IV colon cancer - My update

by lucky2havemyboo on Tue Jun 19, 2012 01:24 PM

Quote | Reply

On Jun 19, 2012 7:25 AM Shitulpatel wrote:

hi, I recently visited Regensburg in Germany , dr Hans Schlitt, to determine if that is a good place for the treatment. I was offered a single stage resction to the liver after a laproscopic removal of primary sigmoid colon tumour, liver has atleast 12 tumours , most of them seem to be calcified. Doc went through the entire triple phase CT scan with us and mentioned that he will be able to resect all but two tumours , which will be dealt with by RFA. Also, the single stage resection depends on what the damage to liver is, after chemo. Apparently there are no tests to determine that and the doc will only know that once he opens me up. But he seemed confident and supposedly has a lot of experience in these matters. The hospital is a university teaching hospital where he is the director of surgery. Other institutions in USA offered either " resection not possible" or " two stage resection" of the liver. Hence, this is an added worry as to why in Germany they would offer a single resection. The colorectal surgeon was also confident on removing the sigmoid colon laproscopically. Current plan is laproscopic sigmoid colon surgery and after recovery from it , approx 10 to 12 days, the liver resection. The liver resection will need a recovery period of atleast 20 days. Following that, there may be more chemo which depends on our meeting the oncologist there after the surgeries. A lot depends on the recovery from the surgeries. I know recovery time is an individual matter and diff persons react differently. However, if anyone has any suggestion to give about things I need to do before surgery ( have atleast 20 days till surgery) , and after surgery to be able to recover faster with less pain and discomfort I would Welcome any or all comments. Pl help in providing me with suggestions and advise so I can handle this in a better and more informed manner. Thanks Shitul Patel

Namaste. My guys made a comment, that it was too bad I didn't get my cancer in Germany, they are so much more developed over there. Maybe America's great talent is bill padding.........Eat well, check your testosterone, it can get really low, slow your recuperation, and most the time, they don't check it on routine blood work. Question, are they planning a colostomy? If so, read up on them before the fact, diet, supplies etc, after is not the best time for a primer. Read up on chemo brain, alt chemo fog, my guys never mentioned it, the sob's. Also, study up on adjuvant chemo, my guys tried to slip me unnecessary, and rediculously expensine IV chemo, I called them on it, 2% increased survival to 5 years, versus the side effects. they backed off immediately.

marniesurvives marniesurvives
(Inactive)

RE: Stage IV colon cancer life expectancy?

by marniesurvives on Thu Oct 18, 2012 07:59 PM

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Hi Honey....I survived lymphoma 22 years ago.  I didn't believe in the power of meditation and prayer until my sister encouraged me to do it.   I believe I have her to thank for my survival of having cancer two times. 

Do you know that praying or meditation makes a change in your brain waves?  It calms the inner being so much.  I prayed and meditated continuously for  6 months and after I beat it.

Please encourage your Mom to do the same.  Also, check out the diets that should be eaten for colon cancers.  Alkaline vegan diet and drinking alkaline water (ph) for positive results after chemos.  Good luck!

RE: Stage IV colon cancer - My update

by Shitulpatel on Fri Oct 19, 2012 05:46 PM

Quote | Reply

On Jun 19, 2012 1:24 PM lucky2havemyboo wrote:

On Jun 19, 2012 7:25 AM Shitulpatel wrote:

hi, I recently visited Regensburg in Germany , dr Hans Schlitt, to determine if that is a good place for the treatment. I was offered a single stage resction to the liver after a laproscopic removal of primary sigmoid colon tumour, liver has atleast 12 tumours , most of them seem to be calcified. Doc went through the entire triple phase CT scan with us and mentioned that he will be able to resect all but two tumours , which will be dealt with by RFA. Also, the single stage resection depends on what the damage to liver is, after chemo. Apparently there are no tests to determine that and the doc will only know that once he opens me up. But he seemed confident and supposedly has a lot of experience in these matters. The hospital is a university teaching hospital where he is the director of surgery. Other institutions in USA offered either " resection not possible" or " two stage resection" of the liver. Hence, this is an added worry as to why in Germany they would offer a single resection. The colorectal surgeon was also confident on removing the sigmoid colon laproscopically. Current plan is laproscopic sigmoid colon surgery and after recovery from it , approx 10 to 12 days, the liver resection. The liver resection will need a recovery period of atleast 20 days. Following that, there may be more chemo which depends on our meeting the oncologist there after the surgeries. A lot depends on the recovery from the surgeries. I know recovery time is an individual matter and diff persons react differently. However, if anyone has any suggestion to give about things I need to do before surgery ( have atleast 20 days till surgery) , and after surgery to be able to recover faster with less pain and discomfort I would Welcome any or all comments. Pl help in providing me with suggestions and advise so I can handle this in a better and more informed manner. Thanks Shitul Patel

Namaste. My guys made a comment, that it was too bad I didn't get my cancer in Germany, they are so much more developed over there. Maybe America's great talent is bill padding.........Eat well, check your testosterone, it can get really low, slow your recuperation, and most the time, they don't check it on routine blood work. Question, are they planning a colostomy? If so, read up on them before the fact, diet, supplies etc, after is not the best time for a primer. Read up on chemo brain, alt chemo fog, my guys never mentioned it, the sob's. Also, study up on adjuvant chemo, my guys tried to slip me unnecessary, and rediculously expensine IV chemo, I called them on it, 2% increased survival to 5 years, versus the side effects. they backed off immediately.

I have finished my sigmoid colon resection and liver resction and also did RFA in two tumors in July and august 2012 in Germany. Have been off chemo since 4 th June. Re started chemo today , 19 oct 2012 after a gap of over four months. So far had done 10 cycles of FOLFOX and erbitux pre surgical resections and now am scheduled for 2 balance cycles. The oncologist in India is of the opinion that I should also do a further course of erbitux solo for 3 months after the FOLFOX and erbitux treatment as a maintenance chemo. However, the oncologist in Germany feels that is not required. Pathology. Report of the Colin tumour was ypT2 N0 Pathology report of liver resection was that the samples were mostly necrotic, I.e. Dead . I will take a call after completing the balance FOLFOX and erbitux cycles and getting the Ct-pet scan done. In my opinion that would be a month from now. But oncologist here feels I should get it done after two months whichnis after additional eerbitux solo four cycles. If anyone has any suggestions u r welcome . Also, if you would like more information on my treatments I would be glad to be of help. I have yet not started my supplements. Prior to surgery I was taking curcumin, avemar, AHCC, coQ 10 and a few others and my diet was mostly low sugar, vegan and fish . Was also taking some flax oil etc. However, after surgery I have cravings for chocolate, sweets and I am indulging myself. I think I ought to go back on my earlier diet to some extent and the sooner the better. Regards Shitul

RE: Stage IV colon cancer life expectancy?

by kwebster on Sat Oct 20, 2012 01:06 AM

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Hi Dave,

 

My brother has stage 4 colon cancer and was diagnosed about a year and a half ago.  Since then he has been on numerous types of chemo, having it every 2 weeks.  He was very positive, working out all through it, until just recently when the last  pet scan came back showing the cancer in his liver has gotten larger, now he has sores all in his mouth, lost his hair, stomach pain, hipcups and a non-stop caugh from all the chemo. So it's very encourgaging to read your story, I hope my brother can make it through it like you have.  Do you relate your success to a diet you followed or chemo?  Any information would be very helpful, my brother went from being so positive to being depressed and  I don't know what to do for him.

 

Thank you, Kelly

 

 

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