Stage IV colon cancer life expectancy?

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RE: Stage IV colon cancer life expectancy?

by Mbamarie on Sun Jun 20, 2010 06:38 PM

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On Aug 14, 2008 12:00 AM Sagitelle wrote:

In May 2007, at the age of 52, I was diagnosed with inoperable Stage IV colon cancer with numerous metastases to both sides of the liver.  I was told that I had 3-6 months to live without chemo and 2-3 years with chemo. I began chemo in mid-August 2007. In April, when I asked the doctor to see the scan on his computer, I counted at least 12 tumours. My scan in January 2008 showed an important improvement in the size of my tumors, which had shrunk by about half. My April 2008 scan showed a further modest reduction. My next scan is on August 29.

I have had about 24 treatments so far. At first, FOLFOX every 2 weeks with Avastin. In May of this year I asked to switch to Xeloda pills as I could not bear the thought of another 5FU bottle attached to me for 3 days. Also, 5FU made my tongue swell up in addition to it being covered in multiple sores, which made talking and eating painful and difficult. Being tied to a bottle for 3 days in a row evry 2 weeks also made me very depressed. Things have been better since I switched to pills. I hardly get tongue sores anymore and my mouth is a lot less sensitive. I have had diarrhea episodes and I have hand and foot syndrome, but I still prefer the pills. I only need to go to the hospital every 3 weeks now for Irinotecan and Avastin. I am nauseous for about 2 days after my hospital treatment. All in all, however, my quality of life has much improved since I've switched to Xeloda pills.     

Has anyone else been diagnosed with inoperable colon cancer with multiple metastases all over the liver? If so, how long have you been given and how long has it been? Have you outlived your prognosis?

I got married to a wonderful man 2 months after my diagnosis and would like to share life with him as long as I can. Also, my 31-year-old son has just told me that he is getting married in January and that his soon-to-be-wife and him want to try to have children right away. I've always looked forward to being a grand-mother and I would like to stay alive as long as I can to enjoy my grand-children after they are born. I would like them to remember me. 

Does anyone have a story of hope for me?  

 

 

Are you still here with u

RE: Stage IV colon cancer life expectancy?

by joanne.r on Wed Jun 23, 2010 12:58 PM

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Hi my husband age 36 has stage IV colon cancer spread into lympnodes and liver.  He had one surgery in Canada and removed part of his colon and liver and some lympnodes. But he still had a 14cm tumor on his liver and some smaller tumors on the liver and lympnodes, so he was considered inoperative.  He did 12 rounds of fulfox and 2 rounds of fulfiri with avastin, but he was getting very week so we took him to Germany and he has been there since March 1 2010 and has had one surgery and now a SIRT along with natural infusions and natural pills (paw paw) and chemo fulfiri w/avastin only two rounds but not much side effects. But he has strength back and is able to do alot.  They are about 10 years the Professor told me a head of Canada and the U.S. in medical care for Cancer but it comes at a cost so far about $70000. euro's.  He is coming home Monday 28th for 6 weeks before returning for a PET scan and possibly more chemo.  But we have hope now the Professor believes he can cure him. Not just remission.

RE: Stage IV colon cancer life expectancy?

by angelsbaby on Wed Jun 23, 2010 08:17 PM

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If I am to blunt sorry. my husband diagnosed 11-07  died 4-16-09 17 months or so ,But everyone is different and there are alot of people who make it my husband was not one of them.

 

michelle

RE: Stage IV colon cancer life expectancy?

by TOM_inTUCSON on Wed Jun 23, 2010 10:08 PM

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I was dxed stage 4 in 1996 with metastasis to the liver ( 5 mets ) and to the left lung ( 3 mets ) . My first oncologist told me that further surgery would be " waste of time " he told me I had 6 mos to 2 years , at most . I had a year of 5fu and lv  followed by removal of the lower lobe of the left lung and then liver surgery . Four years ago the upper lobe of my  right lung was removed after 35 doses of radiation failed . I have no residuals except shortness of breath on exertion such as yard work . I was 60 when dxed and I just had my 74th b'day . We are each unique beings and your prognosis is based on statistics . I sought multiple opinions and chose the most aggressive treatments . You don't have an expiration date . You have to live each day as it comes but you shouldn't live like there is no future . Do what will give you the most joy . You may amaze yourself at the quality and length of your life . Let those who love you have the satisfaction of sharing and enriching your life . Never give up .

RE: Stage IV colon cancer life expectancy?

by alexruso on Wed Jun 23, 2010 10:34 PM

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On Jun 23, 2010 10:08 PM TOM_inTUCSON wrote:

I was dxed stage 4 in 1996 with metastasis to the liver ( 5 mets ) and to the left lung ( 3 mets ) . My first oncologist told me that further surgery would be " waste of time " he told me I had 6 mos to 2 years , at most . I had a year of 5fu and lv  followed by removal of the lower lobe of the left lung and then liver surgery . Four years ago the upper lobe of my  right lung was removed after 35 doses of radiation failed . I have no residuals except shortness of breath on exertion such as yard work . I was 60 when dxed and I just had my 74th b'day . We are each unique beings and your prognosis is based on statistics . I sought multiple opinions and chose the most aggressive treatments . You don't have an expiration date . You have to live each day as it comes but you shouldn't live like there is no future . Do what will give you the most joy . You may amaze yourself at the quality and length of your life . Let those who love you have the satisfaction of sharing and enriching your life . Never give up .

Congratulations!  Miracles do happen!

RE: Stage IV colon cancer life expectancy?

by mommasue on Fri Jul 02, 2010 05:24 PM

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I was dx stage IV March '06 and am still alive and very well and happy. I have been in some from of treatment all this time but the grace of God has seen me through it all. There are liver directed therapies for people who aren't surgical candidates. I had Y90 theraspheres which didn't work completely but did shrink some of the tumors. I am currently doing naturapathic treatments ~ so there are options even when the traditional medical ones are exhausted. Don't let a test tell you who YOU are. No test measures the will to live and there are so many unknowns in this world of cancer. We are ALL mortal ... cancer patient or not so don't let a cancer diagnosis define you. LIVE STRONG and enjoy every minute!!

RE: Stage IV colon cancer life expectancy?

by thankfulinnc on Wed Jul 07, 2010 03:04 AM

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mommasue .........Love your attitude. You are right about living your life and not letting doctors put a timetable on our lives. The will to live is a strong medicine. Hang in there and keep smiling and living!      thankfulinnc

RE: Stage IV colon cancer life expectancy?

by cyclegirl36 on Thu Jul 08, 2010 01:09 AM

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Nobody has a crystal ball. Some doctors put timestamps on life expectancy, others don't. My doctor did not. I was the on who brought up the question in my first meeting with the MD of what I call "the dying thing". Her response to me was "were not going to go there, there are new treatments coming out all the time".

You might want to pick up a Bernie Siegel book. He talks about people who beat the odds. NOBODY knows when they are going to die. Perfectly healthly people die suddenly, while people who are diagnosed with potentially "life shortening" illnesses live on and on.

Don't give into the fear, feel it, shed the tears and then, LET IT GO!

My suggestion, stay clear of reading statistics and the endless information on the internet. It drove me crazy. Live each day to the fullest..keep your life as normal as possible.

god bless you

RE: Stage IV colon cancer life expectancy?

by woaimama on Sat Jul 10, 2010 12:07 AM

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Hi all, I'm new to this site, but my mom was admitted to the ER with a twisted ovarian cyst that turned out to be malignant. We switched to another hospital, where after giving her a colonoscopy, the doctors found another malignant mass that looked related to the one on the ovary. After a debulking surgery and a resection of her colon, the doctors just came back to tell us that the pathologist is 99% sure that she has colon cancer NOT ovarian cancer. Is there anyone on this site that has had colon cancer that spread to an ovary? Is she automatically Stage IV due to her metastasis? I'm beyond heart broken at the thought of losing her.

RE: Stage IV colon cancer life expectancy?

by DrMaggie on Sun Jul 11, 2010 11:20 PM

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Hi - I was 54 in great health when an appendectomy revealed colon cancer (2006).  I had colon surgery which found a large mass, mets to the abdomin, lymph nodes, and later PET/Ct showed liver mets.  Did 3 months of FOLFOX, then swithced to FOLFIRI after neuropathy.  Did total of 6 months chemo, then a liver resection.  3 months later scans showed cancee growth - I have never really experienced a remission.  More chemo, most recently avastin, irinitican, xeloda.  This every 3-4 weeks for about a year maintained stability but recent scan shows cancer is now growing and not responding.  Next recommended step is to try gemzar weekly IV's and 3 wk Avastin.  I am also exploring alternative treatments such as alpha lipoic acid and low dose naltrexone. 

So to answer your question, I have been alive for 4.5 years w/stage IV CC on traditional chemo regimes.  Now will be exploring more alternative treatments as the medical ones are likely not going to be effective for long.

I would suggest exploring diet changes and alternative therapies as well as researching the different chemos available.  Good luck in your battle!

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