Hi my name is Shawn and was diagnosed with ES three years ago. I have undergone 8 rounds of chemo four rounds of radiation and a stem cell transplant. I have about 20 tumors and they just wont go away. The doctors also recently told me that the last treatment has failed. The chemo just can’t hold them back any more. They have offered other experimental treatments to try to buy me as much time as possible but the treatments are deadly them selves. I am having a hard time trying to decide what to do. It has been an up hill battles the whole way. The reason I have lived this long is from the inspiration that I get from each cancer patient out there. They amaze me with their strength and determination. My heart and prayers go out to all of them every night and day. I have one question has any one ever had the ewings spread to there bone marrow and if so what were the symptoms. I am experiencing a lot of pain in places that I don’t have tumor. And no one is sure why. God bless you and stay strong. One day god will bless us when we wont have to suffer ever again.
God bless and take care