Essential Thrombocytosis

hi, im from the philippines, im about to have my bone marrow aspiration to check something on my blood specially my high platelets of 950 instead of a normal 450, im 40 years old female...according to my dr. its essential thrombocytosis... does anyone diagnosed same as mine and share with me your alternative treatments about foods,etc...

what are the risk in bone marrow aspiration biopsy? how many days to recuperate from the procedures?

help me please...
rocky2005

I have just got diagnosed also. on hydrea and aspirin am feeling fine...just stay posted with doctors...and rest and dont stress too much... it is a manageable disease...although it is scary. I am trying to stay positive and wish you the best.

linda

hi linda,

thanks for being positive, yes being stress free will bring back our platelets count in normal range and it will cooperate with us... after taking hydra for a month only my thumbsnail colored gray... and doing fine after my friend recommended cmd (concentrated mineral drops) now after my weekly test for over a month my platelet counts 201t...

God bless!

what is that.. and did the doctors say you had to stay on hydrea the rest of your life..I am 45 years old... was wondering. does it make you tired or are you taking aspirin too..

HI LINDA,

CMD is from Great Salt of Utah, from what country are you anyway?

every water, juice, i drink, i put 4 drops in a glass and drink it... somebody told me about it and since essential thrombocythemia was said to be a no cure disorder... I agree to have any posibilities of treating it...

My doctor said hydra is for lifetime, i am 40 years old now...im not advise to take aspirin... i felt tired most of the time but i ignore and meditate for an energy...

hi linda,

yesterday i went to my hematologist... he said mine was polycethemia vera, whereby all other blood cells is constant to the decrease or increase of the red blood cells, but anyway, im still positive of combating it with alternatives such as cmd, masa squalene and vita plus...

But im glad my dr. reduce my intake of hydroxyurea from three times a day, it's now two times a day and i just continue my supplements and instead of weekly blood test, i am required to have test every two weeks...

By the way when did the dr. diagnosed you, what year and how many years are you taking hydra?

rocky

just diagnosed.. taking hydrea for 6 weeks now every other day.. for a week then another blood test... aspirin too..
in maui hawaii.. joined a gym .. take garlic oil, q10... and other vitamins.. does hydrea make you tired..

linda

hi linda,

im taking my hydrea for 2 months now 3 x daily, and every week blood test... Yes, i felt tired... specially now that i go to work often...

I consulted another dr. and to confirm that it is polycythemia vera... i have to undergo red blood volume... and he advise me to withdraw my hydrea...

Have lots of supplements too... since we need it in contrast to chemo(toxin)therapy...

Oh you are from maui? lots of Filipino there... and lots of herbalist, and herbal meds...

what are your supplements anyway?

hi...am from the Philippines. I was also diagnosed of ET last December 2005. I underwent a bone marrow biopsy. I chosed to be confined over night in the hospital and was under sedation and local anesthesia when my doctor did the procedure. So far, i didnt experience any side effect. The anesthesiologist was good.

There was no symptom at all. I just had my annual executive check up last November '05. Then the results was too bad. My platelet count was 844 and my spleen was slightly enlarged. I didnt go only to one hematologist. I requested for a second opinion. After the procedure, I went back after a month for another CBC-platelet count test. There, it went up to 948. It was so scary. My doctor said that there is no cure for this disease, just a maintenance. She wanted me to take the Anagleride .5mg for 3 x a day. I was shocked when she said that one tablet costs P300.00. Imagine that?? for an average employee who's just receiving less than P30,000.00 monthly income. I asked for an alternative medicine. She gave me hydroxyurea. I was just to take it 2x a day for 3 weeks since she said everything will be affected not only the platelet count. After 3 weeks, I came back to my doctor and had my monthly CBC-platelet. Surprisingly, it went down to 600. My hemaglobin went down also to the border line. So she asked me to stop taking the medicine. The following month, it went down again, this time to 540. been praying to God, and I believe this is an answered prayer. For me, it's a miracle.