Stage iv Lung Cancer Mets to Brain

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by Sumertym2 on Wed Aug 17, 2005 12:00 AM

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Hi Laura, Though I can say "I know how you feel", I know that each of us have our own individual feelings. So we can try to comfort one another the best we can. I am going to call Hospice next week and attempt to get answers and help from them. I will let you know what happens. My husband is still able to eat some, go to the bathroom, etc. but I feel sure that very soon he will be unable to do anything. He has traveled on his job for the last 35 years and I've always taken care of everything so that's not a problem. I need to know his initial feelings and wishes. You know like what songs do you want sung at the funeral, can we talk about some of our happy times and wonderful memories, is there anything we need to say to each other. I just want to talk it out and he says nothing. Now, he is having trouble remembering and communicating too, so it may be too late. I will, however, accept that because he has always been that way and I loved it and him. We must trust in God and let Him lead us. Blessings, Pag

Laurap

by Pamela_C_3 on Wed Aug 17, 2005 12:00 AM

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Laura, Firstly, "Happy Anniversary" to you and your husband. Nineteen years is something to be very proud of. I have a lot of information for you. My mom finished a round of chemo and then opted to go on Iressa, the rest is history. Traditional medicine does not seem to be doing much for lung cancer patients or for other cancer patients for that matter. When my mom got sick, I started to research homeopathic medicines. I do believe there is a lot to be said for natural remedies and diets. Cancer Treatment Centers are definitely working in the right direction. They were not an option for us because of having an HMO here in N.Y.. Large doses of chemo and radiation weaken the body and permanently damage healthy cells and make it very difficult for one's immune system to fight off cancer. There is so much information I feel we do not know. Our Dr. never told just how deadly lung cancer is, I found out by my own research. We are definitely not winning the war on cancer when I see so many battles around me being lost. Please feel free to contact me at anytime. I have a wealth of information that I finally can share that may help. Pamela C.

Nsclc and Denial

by Sweet_Pea on Sat Aug 20, 2005 12:00 AM

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Hi to all, I am also new to this forum and as I'm reading your messages I am identifying with all of you. My husband is Stage IV with mets all over. I am very worried about the 15 sessions of WBR and the 10 sessions on his lumbar spine. He's taking chemo, Taxol, Carbo and Avastin, two sessions so far 3 weeks apart. This last chemo was 7 days ago and he has not eaten a full meal yet, but there's a lot of throwing up. Why is it that our men, mine is 65 years old, are so believing that getting through the therapies will save their lives? We have a very expensive nutritionist that tells him to drink a lot of water and to eat an alkaline diet (very hard to do!) and he won't do it. He says "I'm trying". I know he feels bad, but where/how can I help him understand that without his strict adoption of optimum food intake he has little to no chance of survival? He has not read up on his disease. He says it makes him woozy. I don't understand why he doesn't want to know what is happening to him. I would be intensely researching the options if it were me, and I did do this for him for the first four weeks (DX 7/5/05), but it made me crazy when I would give him healthy suggestions and he discounted them. He has no doubt that his mantra "I'm going to whip this thing? is reality. I believe that he has little to no chance of longer term survival if he doesn't do anything to aid in the fight. The hardest thing I am dealing with is not knowing what he's thinking. He will not share his most inner thoughts and he is slow on the uptake to put his affairs in order also. So, I am going to do it for me without him. Yes, I think I now must accept that I will be doing many things independant of what he does or thinks. The whole brain radiation has definitely changed him...he seems to have an almost constant "deer in the headlights" look and although I can't be specific I just know that he's not firing on all his spark plugs. He thinks he's normal. Before radiation he was scared, but not slow/foggy in his physical responses or thoughts. Will this ever go away? His last radiation was was 8/3 to the brain. I am scared almost all the time. When I soothe him I can only think about what day he'll not be here with me. When he won't eat my first thought is that he does not want to live. Any one else have any comments about what the chemo and radiation does to them? I, too, do not like or trust doctors in general. They tell us nothing!!!!!!!!! But they get paid the big bucks. I could do as much. "OK, you've got cancer. I suggest chemo and radiation." What degree did I need to do that? That's all they do. I have been on their case since we started and they don't change their tune. They love it if they see you grin or smile, and that's the trigger that they need to leave the exam room; I think they think they were effective communicators if they leave you smiling???? As you can tell I'm still angry about cancer and cannot get comfortable that I'm losing my friend, my lover and my husband and I can't get any "professional" to tell us what's happening and what we can expect to experience. Thank you for your help out there. We need to stick together for better treatments and better communications, Marie

For All

by Laurap on Wed Aug 24, 2005 12:00 AM

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Well, we got the PET scan back last week and it has now moved to his spine, hip bone, legs, and liver. also, his lf adrenal gland is worse. The Dr said that the chemo did not work; no kidding!!!!! He said he was going to put my husband on a more aggressive chemo. Since then, my husband has not been doing well. He has to force himself to eat most of the time, he is in a lot of pain and feels he doesn't have much time. To tell the truth, neither do I. It has just spread like wild fire and again, I can find no good news. Does anyone have a loved one who has it in this many places? Did the Drs tell youn anything? Our Drs justed acted as though this was pretty routine and he is going to try something else and see if it works. He said nothing about getting your affairs in order, live your life to the fullest, you have at best ??? to live; nothing!! I am so upset and sad at the same time. I feel the Drs don't want to tell you anything that is negative because the patient might opt to quit treatments and the Drs would be out of the money they could have made.... It is all so upsetting to me. I am scared, worried, mad, confused... Anyone have any comments? Please write me. laura

Brain Mets

by Luckystar on Thu Sep 01, 2005 12:00 AM

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Laura, Im sorry to hear about your husband. Just remember to stay strong, have faith,and pray. There is no definite answer because everyone may react differently.....there's always hope just grab onto it!! I will pray for your family :) My dad 57yrs old was just recently diagnosed w/NSCLC stage 4 in June 05. The cancer has spread to the lymph nodes, liver, bones, and just recently the brain. He's doing well with a new drug the the doc has treated him with. He is on his 3rd chemo cycle,and things are looking good as far as his lab results. His tumor in his left lung is starting to break down in the middle, and he says he feels better each and everyday through eating right, exercise, and most importantly prayer. The only problem now is his brain mets...our oncologist says that he needs whole brain radiation due to the extend of his brain mets....,but I'm so so very worried what may happened to him with the radiation theraphy....memory loss??? Im not sure what to expect with this radiation???? luckystar

Stage 4

by Luckystar on Thu Sep 01, 2005 12:00 AM

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I'm sorry to hear about your husband. I'm going through what your going through too. My dad has NSCLC stage 4 -lungs,bone,spine, and now the brain. We are also trying tsame drugs as your husband is too. Recently, he was diagnosed with brain mets.... the doc recommends whole brain radiation bc they are unsure whether the avastin goes to the brain or not. My dad is sooo sooo scared of what the radiation can do to him......but our hands are tied now.......He does not smoke, no family history.....

Lung Cancer

by Diana21 on Tue Sep 06, 2005 12:00 AM

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Dear Marie: I am new to this site. My husband was diagnosed with lung cancer Jan. 2004 and then brain metastasis in July and most recently metastasis to the adrenal glands. He has been on chemo, carbo and taxol and now on gemzar. He has had whole brain radiation and stereotactic radiation on 3 different occasions most recently in July. He went through the not wanting to eat. Maybe I should say not able to eat. It does get better the further out they get from the radiation. I find that chemo close to radiation is like a double whammy. You are right, nutrition is key. I believe you have to at a minimum supplement traditional medicine with non-traditional. My husband has been going to an accupunturist since last October. He is Chinese and trained in Bejing in Chinese medicine. He takes several herbal products, one for his immune system the other for his appetite. It has been very helpful. Doctors do paint a very grim picture so I look for those people who are surviving. If it is a day, a month, a year or years, it is surviving. There may be a day I won't have this same attitude but for now it helps me to cope. Doctors are quick to say there is no cure. But try asking them "well,isn't that true of high blood pressure, diabetes, etc." There is a site that I have found very helpful in keeping spirits up. The site is "Robert Karjala". While he has passed on he was quite the fighter and was surviving lung cancer. There are a number of natural medicines he was taking including Essiac tea. He has his regimen outlined. There is just so much to say on the subject. As a final note I finally had to tell the oncologist that I did not want to hear "this is one battle you are not going to survive". Good luck!

Lung Cancer Met to Brain

by Mkayb on Wed Sep 07, 2005 12:00 AM

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Hi Laura, I am 46 yrs old and was diagnosed with stage IV lung cancer in July. I am sure you are aware that even though cancer is sometimes referred to as cured or as in remission, the cancer will often return in tumors that chemotherapy drugs can no longer effectively treat. I have done much reading on these "drug resistant cells". The upper lobe of my right lung, five lymph nodes and the tumor from my brain were all removed. The doctors feel confident they got all the tumor masses, but said that because the cancer had already spread I need radiation and chemotherapy. I have often wondered why some cancer patients were said to be cured or cancer free only to be let down in a short amount of time with the return of the disease in a much stronger, chemo resistant form. I learned that about 2% of the original tumors and/or cells are made up of these drug resistant cells, an amount that is neglibile during testing, thus the cancer-free or cured diagnosis is sometimes mistakenly given. I found some information on alternative medicene websites about a supplement called Paw-Paw Cell Reg. I have no idea if it works, but the testimonials are strong that this supplement kills the drug resistant cells that chemotherapy misses. I am on this supplement, and pray that it works. It is very inexpensive and I have had no side effects from taking it. Another natural supplement that is supposed to be effective is Essiac Herbal Tea. You can read about these and other alternative/complimentary supplements by running a search on "cancer cures" or "alternative cancer". I pray God's blessings to you all, Kay

Mother iv Lung Cancer

by Latina_ne on Fri Sep 09, 2005 12:00 AM

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My mother was diagnosed in May '05 with stage Iv Lung cancer and she wasn't one of the lucky ones to get her turmor removed from her middle/lower right lung due to the fact that the cancer spread to her upper chest walls. She was only able to do 3 chemo, treatments due to the fact that her blood count would drop. So now she is on a trial drug Traceva, which is suppose to slow the progression of the tumor. But on her last visit there was no change, and I asked if the tumor was shrinking and right away the dr said she has small cell everywhere, which was the first we heard of this... I agree with you that these dr's don't do a very good job when trying to explain what we are to expect I know everyone is different but they should get upset when we ask questions. I am so glad to have found this site, because there are days and nights I just think and can't take that my mom is sick with this lung cancer that I just want to lay down and cry and hopefully wake up and it all be gone. I have to keep the faith and that god will take care of my mother. I am also my mother's care giver, which right now she does everything on her own, but I dont' know how I can prepare my self when things start getting tougher. Thanks and God Bless You.

Help

by Babs3225 on Tue Nov 29, 2005 12:00 AM

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Pam are still around........I too need some guidance................... Barbara
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