On 8/25/2008 donnadew wrote:
My husband illness is complicated but I will try to simplify it. In November of 2007 he was diagnosed with both tongue cancer and was treated with chemo and radiation and a peg tube for feedings and MDS which is a "preleukemic" cancer. In the interim his condition has worsened and his no has leukemia- AML . His peg tube was infected 3 times and had to be removed. Now he is simply starving to death...literally. He has no appetite and always feels like he is full. He has no saliva and almost constant nausea with several episodes of vomiting daily. He has tried ensure plus, home made ice cream shakes, scandia shakes, whey protein additives, pilocarpine for artifical saliva, capisol for artifical saliva and all the oasis products. He is waiting for a bone marrow transplant and has a match but is not a candidate unless he gains some weight (he has lost in excess of 40 pounds). He had a partial swallow study which was normal and a pet scan that showed no tumor. Why can't he eat and gain weight. Our options are disappearing.
I see that no one has responded to your mesage. You posted this message in August of last year. Is your husband still with us? I'd like to try to help you.
Candice