Side Effects of Arimidex After Almost 2 Years

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RE: Side Effects of Arimidex After Almost 2 Years

by Bertha on Mon Feb 05, 2007 12:00 AM

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I have been taking Arimidex for 2 years also, I feel bone pain, my hands hurt, my headaches have gotten worse, I am depresse, and my appitite is just not there no more I wake up 3 hours after I go to bed . Then I feed drained the rest of the day and tired. My doctor thinks I am a hypocondriact. But thes symtoms are real. I have even had a kidney infectection. My cousin had been taking this for 4 years and her intestine got infected from all the medicine.It started to eat away at it. She died 2 months after the removal of her intestine. Have you hear any thing about that? I also had a kidney infection, I had to go to a second Dr. for that.Because the oncologist only takes bood work, My white counts are always low. Do you know if that is normal.

RE: Side Effects of Arimidex!

by Barb_g on Thu May 24, 2007 12:00 AM

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On 8/30/2006 Elinka wrote:

I have been on this med for 7 months-I too have much joint pain-pain during the night also that wakes me up! I am wondering if it is worth all this pain-there is no guarantee that in 5 years the breast cancer will not return!!!

I too have been on this med for about 5 months. Joint and muscle pains are worse when I've been sitting for any period of time. I thought it was just me, but after reading all the messages it does make me feel a little better knowing I'm not alone. Not sleeping at night is awful to say nothing of the hot flashes. Am not sure if I can handle this for 4 1/2 more  years. Will talk to my oncologist when I see him next. Thanks for writing.

 

RE: Side Effects of Arimidex!

by Barb_g on Thu Oct 04, 2007 12:00 AM

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I wanted to give you all an update on my hot flashes and what I am doing for them in the hopes that it will help someone else.  Have been on Arimidex for 10 months. The hot flashes were terrible so someone recommended Black Cohosh. I have been taking it twice a day for the last month and I have to admit that it really  has helped. It hasn't stopped the hot flashes totally but it has significantly cut them by about 70%.

One additional side effect that has occured lately is swollen ankles. Not always but some days are better. Has anyone else had this. I'd be curious to find out if it's just me or the meds.

Thanks for listening.

Barb G

RE: Side Effects of Arimidex!

by avaava on Thu Oct 25, 2007 12:00 AM

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On 10/4/2007 Barb g wrote:

I wanted to give you all an update on my hot flashes and what I am doing for them in the hopes that it will help someone else.  Have been on Arimidex for 10 months. The hot flashes were terrible so someone recommended Black Cohosh. I have been taking it twice a day for the last month and I have to admit that it really  has helped. It hasn't stopped the hot flashes totally but it has significantly cut them by about 70%.

One additional side effect that has occured lately is swollen ankles. Not always but some days are better. Has anyone else had this. I'd be curious to find out if it's just me or the meds.

Thanks for listening.

Barb G


I was diagnosed with breast cancer; had a masectomy, and breat reconstruction.  My oncologist prescribed Arimidex for my cancer treatment.  I advised him I was taking Black Cohosh to help with hot flashes.  Seven months after my breat cancer surgery & treatment, I decided to get a second opinion which turned out to be one of the best things I have done for myself since being diagnosed with breast cancer.  The second opinion dr. was very concerned that I was taking Black Cohosh.  Her response was something very similar to:  "I know you are here for a second opinion and I will be happy to take you as a patient, but whatever you decide, I beg of you to stop taking black cohash.  You are taking medication to take the estrogen out of your body and then you are putting it right back into your body by taking the black cohosh which is a natural form of estrogen."  Needless to say, I stopped taking the black cohosh and I did change drs.  I am very glad I went for the second opinion.  She is a wonderful dr.  So, I would ask you to please stop taking the black cohosh.

RE: Side Effects of Arimidex

by jessiejewl on Mon Oct 29, 2007 12:00 AM

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On 8/28/2005 Marep wrote:

I am also new to this site. I have been on Arimidex for 3-1/2 years. I too, did not notice anything in the beginning but am now beginning to wonder. I always seemed to have trouble standing for longer periods of time--seemed to always want to sit down instead but always thought that was something else. Last summer (August) I had trouble walking for any amount of time over 20 minutes. After MRI and X-rays, they said it was bursitis. A shot into that area with cortisone helped although it still acts up. In February of this year I had major back trouble with sciatica. It was very, very bad and they say I have degenerative disc problems. There is no history of anyone in my family having back problems even my 83 year old mother. I still didn't think much about it but my Radiation Oncologist mentioned that maybe it was a side effect off the Arimidex. Now I am wondering if I should stop taking it. I am tired and lack energy but always thought that was just the result of work and commuting. Reading your response is making me wonder even more. I also wake up 4 to 5 times every night.

 

I have been on Arimidex for 3 1/2 years. At first, it was just the hot flashes, which I still have all day, and night.  The muscle and joint pain moves around my body.  I've had numerous x-rays done just in case it was something else.  This summer I spent 3 months in pain thinking it was just the side affects of arimidex, only to find it was sciatia.  My doctor has no comments about the cause.  There is arthritis in my family, but no back problems. I have had 2 spinal injections for the pain. I wake up 5-6 times a night. I can handle the hot flashes, and the joint pain, but the weight gain has really upset me. I have put on 30 pound in 3 years!  I have tried exercise up to 2 hours a day for 3 months, and I still didnt lose a pound. I can't wait to stop the drug, but I'm willing to take on more as long as the cancer is gone! 

RE: Side Effects of Arimidex

by elle0 on Sun Feb 03, 2008 12:00 AM

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Hi

I'm new to this site as well and am a 2x survivor. I have only been on Arimidex for a few weeks. I had been on Femerra (l'etrazole) but the side effects, nausea, diarhea, and joint and muscle pain were debilitating. I certainly don't have the nausea and diareah with A but I am tired and seem to feel quite down. I am experiencing some pain in arms and hands. It seems by reading through the messages my symptoms aren't that uncommon but I am so reticent to complain again to the doctors. I suppose I think I should feel lucky to be alive.  As anyone tried acupuncture or other non-drug interventions to handle the side effects? 

elle0 

RE: Side Effects of Arimidex After Almost 2 Years

by didi719 on Mon Feb 11, 2008 12:00 AM

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I had bilateral breast cancer w lumpectomies, but due to an inability to get clear margins on the left, I opted for bilateral  mastectomies.  Prior to BC, I was on HRT for insomnia which started at menopause.  I began taking Arimidex and immediately the insomnia returned with a vengence, but no other noticeable side effects.  I was tired all the time, but was totally sleep deprived.  My oncologist prescribed Ambien CR which really helped, but then I had to fight with my insurance company.  After 7 months on Arimidex I began to have severe aching and joint pain that kept me awake at night. My lower back was just in agony and I assumed it was from the Arimidex. My oncologist prescribed something for the joint aches and I was taking Aleve constantly.  Before I could get the prescription filled I started to run a high fever and had excruciating pain in my left side. CAT scan showed acute diverticulitis which is a serious infection in the colon.  Fortunately mega antibiotics healed it. After the antibiotics my joint pain went away. Afterward I realized that I had probably been running a low grade fever for weeks and the cause of my pain wasn't the Arimidex at all, but an infection that could have been fatal. My point is that if you are experiencing severe symptoms, it might be a good idea to get checked out before you just assume it's a side effect.

RE: Side Effects of Arimidex

by kindergartenteacher on Fri Mar 28, 2008 12:00 AM

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Hi,

 

I too have been taking arimidex for 3 years.  I have trouble with my joints and some kind of disc problem too.  Right now I am using a walker.  I am a Kindergarten teacher and was very active.  I must take showers instead of baths because of the stiffness and joint pain.  My oncologist doesn't think it is connected to the arimidex, but my orthopedic dr. and others have said it could possibly be connected.  My orthopedist wants me to have a knee replacement, but I couldn't possibly even think about it.  I do not sleep well, my fingers are always swollen, and sometimes I just hurt.  I have been given anti-depressants and cortisone shots.  Sometimes I think  I am going crazy.

Why isn't there more info on the long term effects of this drug?

 

RE: Side Effects of Arimidex

by Galaxielady on Fri Apr 04, 2008 12:00 AM

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On 2/3/2008 elle0 wrote:

Hi

I'm new to this site as well and am a 2x survivor. I have only been on Arimidex for a few weeks. I had been on Femerra (l'etrazole) but the side effects, nausea, diarhea, and joint and muscle pain were debilitating. I certainly don't have the nausea and diareah with A but I am tired and seem to feel quite down. I am experiencing some pain in arms and hands. It seems by reading through the messages my symptoms aren't that uncommon but I am so reticent to complain again to the doctors. I suppose I think I should feel lucky to be alive.  As anyone tried acupuncture or other non-drug interventions to handle the side effects? 

elle0 


 

RE: Side Effects of Arimidex

by Galaxielady on Fri Apr 04, 2008 12:00 AM

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In April of 2005 I had a lumpectomy. Fortunately I did get clear margins so I only had to go through radiation.   Because my cancer was HER2 hormone receptive my doctor prescribed Arimidex.  I am 78 and have been on Arimidex for 2 1/2 years. I consider myself fortunate not to have many of extreme side effects I know other women to have.  I do attribute much of this to a supplement I drink called Xango. I first tried this fruit juice because of the  aches, pains & fatigue I attributed to Arimidex. Combined with the antioxident properties of the mangosteen fruit from which it's made I felt that it was well worth a try.  Overall I have been feeling much better than most of the women on Arimidex who have postings on various forums and really feel it is due to the Xango juice.  Just a though I wanted to share.
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