Side Effects of Arimidex After Almost 2 Years

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RE: Side Effects of Arimidex!

by pipperpain on Sun Apr 29, 2012 11:43 PM

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No one on this site is stupid. We share what we know in the hopes of helping others. Choices are ours to make and evryone is sharing what they know in the hopes of helping and alerting others to different situations. I am sorry that you made that statement. We are free to share our experiences and knowledge

 

RE: Side Effects of Arimidex!

by susier on Mon Apr 30, 2012 02:23 AM

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I understand sometimes the body has taken so much the strength just is there or enough to do what you have to do.

RE: Side Effects of Arimidex!

by pipperpain on Thu May 03, 2012 03:07 AM

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i am seriously thinking of stopping the arimidex.?

I have gotten very good reports on my cancer remission, so if it comes back we can take that route again.  I am wondering if i stop the arimidex will the strength come back to my legs?  Can anyone help me with this question?

RE: Side Effects of Arimidex!

by susier on Thu May 03, 2012 05:00 PM

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I have stopped taking the arimidex and  the aromasin that was given to me after that.  My body does not hurt like a 100 yr old woman who probaly still had more strength than me.  I am able to walk more sit longer and the pain is almost gone. I have been of the meds for around 2 weeks.

I will be checked in August to be sure I am still cancer free. Good luck. :)

RE: Side Effects of Arimidex!

by AlliBK on Thu May 03, 2012 05:11 PM

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Next month it will be a year that I no longer take the drugs.... All is fine......

RE: Side Effects of Arimidex!

by Cydsong on Thu May 03, 2012 11:31 PM

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On Apr 29, 2012 9:51 PM AlliBK wrote:

I wrote this and I have no intention of changing my words to make it seem less .

Please read what I wrote again.

If the cancer comes back he has no way in predicting how bad or what stage even.  The thing is we don't know that Armidex does avoid cancer at all costs. Women who take the drug faithfully still develop METS.  In fact many  die  who develop  a recurrence .I could give you several examples of this very issue of women I have known who have recently died from METS. who took not only Arimidex but the others in hoping it would work its magic instead of crippling pain.

I did not say ALL women die I said MANY I also said I could give you examples. I have lost 5 friends this year who were women taking these particular drugs in hopes they did not  have a recurrence.They "" target="_blank" rel="nofollow">http://recurrence.They " target="_blank" rel="nofollow">recurrence.They did. If you are scared good , because when it comes to this horrendous disease you need to learn to be your own advocate.Find "" target="_blank" rel="nofollow">http://advocate.Find " target="_blank" rel="nofollow">advocate.Find out what's best for you . If it works  then  thats the whole point.  I am simply stating  sometimes the drug does not have the same effect on everyone. One size does not fit all circumstances.

Hi, all.  I've only been on this site a few times, but saw this thread & was interested in hearing what everyone had to say about the AI.  I had double breast cancer, Stage 1 & 2; double mastectomy June 29, 2011, chemo, no need for radiation because of a number of reasons.  Last chemo was 12/23/11.  Started on AI Feb. 20, 2012 & am having a tough time; all of the classic "menopause" symptoms in double time!  Was put on antideprssant Celexa just this past Friday & hope it helps with the depression.  Depression from symptoms of bad pain, mood swings, sweats, etc.  Here's what I was told by a really cool, young, female radiologist re breast cancer treatment:  It's essentially all a crap shoot.  She sees women who do nothing but the absolute minimum when more is recommended & they never have another problem, while other women do everything recommended & still get a return of breast cancer.  BUT, as this doctor said to me, "Yes, it's a crap shoot; but, with modern diagnostics, medicines, treatments, etc., you at least have a loaded pair of dice to put up against The House!"  And researchers are improving on all of this all the time, so who knows what new treatments/medications there may be in the future if I am unfortunate to have it return, even after doing everything that was recommended to me.  Still, there's no denying it; the whole thing is a real Bitch!  Bless you one and all.

RE: Side Effects of Arimidex!

by pipperpain on Thu May 03, 2012 11:40 PM

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Thanks to all who have offered me input into this question.  I appreciae you sharing your experience.  God Bless

RE: Side Effects of Arimidex!

by susier on Fri May 04, 2012 02:26 AM

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Yes indeed, when I told the doctor I didn't want to try anymore of there perventive drugs she said it is a numbers game.  There is a chance it will come back and a chance it won't. You have to put your feet in the shoes that have the right fit for you. We are all wired different but same.  I just couldn't take the bone and joint pain and wanted some of my life back.  Please be sure your choice is your own an no one elses.  You are the one who deals with what ever it is your body goes through, so you decide what is good for you and most of all I whish you health.

RE: Side Effects of Arimidex!

by pipperpain on Fri May 04, 2012 07:46 PM

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thanks for the input. i was really done in today.  Had to be out in oublic and could barely get out of chair.  bummer

RE: Side Effects of Arimidex!

by Cydsong on Sat May 05, 2012 04:33 AM

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Absolutely, Susier!  I have a cousin who went through all of this 10 years ago at the age of 42 (I'm 62), and she told me she stopped the A.I. after 18 months because she couldn't tolerate the bone & joint pain she was having.  She also said that she hasn't once looked back with regret.  You are so right that we each have to make these tough decisions for ourselves.  I had a lot of support regarding my decisions from my family, particularly my 90 year old mom who went through chemo for follicular lymphoma at the /age of 85/!!  The recommended course of chemo for me was dose dense (every 2 weeks) AC-T.  After researching both online and with  Dr. Susan Love's Breast Book, I decided that it was way too aggressive for my liking, and told my oncologist I wanted to go with the older (and tried-and-true!) protocol of CMF.  I'm so glad I did; I went through it with flying colors, very little side effects, & minimal thinning of my already-thin hair!  Like my cousin w/her decision to stop the A.I., I felt perfectly confident making that decision.  I know I can still make the decision to not take these drug treatments if I so choose, & having that option eases my mind.  My husband & I decided together that whatever decisions I/we make regarding this challenging health crisis, we are never going to look back by second guessing ourselves.  Good health & blessings to one and all!  CYD

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