6 Months to live

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6 Months to live

by klgcrna on Mon Sep 01, 2008 12:00 AM

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I am very confused, I have been on this site for month because my husband has stage 4 colon cancer with liver mets (3 mets) sizes 3cm to 7cm. So may people on this site state "i was given only 6 months to live"  This is a confusing statement.... The doctors never told my husband he only had 6 months to live, esp if he had treatment.  The people that are stating this is this like "if you dont take treatment you only have 6 months to live but with treatment you have longer and maybe much longer"  I just can't see doctors saying "ha you have 6 months to live if you take this treatment that is going to make you sick when you take it" Unless you are really advanced stage 4.  I know all stage 4's are not the same.  It depends on size, site, how many, ect,..... I am not sure if i am getting confused about this but the only people we see on here that did not last a few months were those that were advanced stage 4 not stage 4 with a 1cm mass on their liver or lung. Please correct me if I am wrong, but I know what they told my husband who does have stage 4 with 3 liver mets up to 7cm big.. 

Someone please explain this to me

RE: 6 Months to live

by Mike47 on Tue Sep 02, 2008 12:00 AM

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I think the Dr's have to paint a worse case scenario.                   If you were told your husband had two years and he only lasted six months, how would you feel???                                               My friend was told, months to a few years by the Dr that did his initial surgery. He told my friend that he's had people last only a few months and has people that are still here 20 years later. He told him his was an aggressive cancer and he should get his affairs in order, prepare for the worst and hope for the best. He told my friend " I hope you can stand here two years from now and call me a liar"  It has been 4 1/2 years and he's not ready to give up anytime soon although he is running out of options as he has been on just about every type of chemo available. He is currently trying a chemo that was used years ago. I think no matter what the prognosis, a person has to keep a positive attitude and believe in your God. In the end, when the man up above decides it's our time to go, we don't have a choice. One of the worst things about this nasty disease is the mental stress of knowing you might not have long to live.

RE: 6 Months to live

by Sterling on Tue Sep 02, 2008 12:00 AM

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My friend went to Sloan Ketterling 6 years ago. They told her she was stage 4 and began chemo. I am happy to report she is healthy today and cancer free. She never planned for it to work out any other way.

RE: 6 Months to live

by mspan on Tue Sep 02, 2008 12:00 AM

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On 9/1/2008 klgcrna wrote:

I am very confused, I have been on this site for month because my husband has stage 4 colon cancer with liver mets (3 mets) sizes 3cm to 7cm. So may people on this site state "i was given only 6 months to live"  This is a confusing statement.... The doctors never told my husband he only had 6 months to live, esp if he had treatment.  The people that are stating this is this like "if you dont take treatment you only have 6 months to live but with treatment you have longer and maybe much longer"  I just can't see doctors saying "ha you have 6 months to live if you take this treatment that is going to make you sick when you take it" Unless you are really advanced stage 4.  I know all stage 4's are not the same.  It depends on size, site, how many, ect,..... I am not sure if i am getting confused about this but the only people we see on here that did not last a few months were those that were advanced stage 4 not stage 4 with a 1cm mass on their liver or lung. Please correct me if I am wrong, but I know what they told my husband who does have stage 4 with 3 liver mets up to 7cm big.. 

Someone please explain this to me


My surgeon 3.5 years ago said that it would be hard but if I wanted to live I needed to fight.  It was stage IV and today I am cancer free.  I have been off of all treatment for over 2 years.  I did have a pet scan today to keep up with any changes.  My blood tests have been all normal.  So my husband and I decided not to listen to the doctors about my survival rate.  We decided to fight with everything we had as a team.  I am here today because I chose to fight and not worry about the odds.  I did have liver mets and they don't show up.  One was removed in surgery.

Mel

RE: 6 Months to live

by sharon1946 on Tue Sep 02, 2008 12:00 AM

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  My husband also has colon cancer with mets to both his liver and lungs. Although doctors have given him the option of stopping treatment and just receiving supportive therapy, no one has come right out and said "you have just six months to live." I think there is a fine line between trying to be honest with a patient and removing his hope. If someone actually told my husband he was going to die in six months, I'm pretty sure he would since he seems to think that doctors have all of the answers. There is always hope and just because one person with the exact symptoms dies does not mean another person will do the same.  My husband has just started colon cancer treatment because they had to treat his lymphoma first. When he was first diagnosed with two types of cancer, the surgeon told me that "there's always a miracle." He did not expect my husband to make it out of the hospital. That was last March. He finished the lymphoma treatment without incident and has moved on to the colon cancer treatment. His prognosis is not very good, but he doesn't know that. I think that is why he is doing so well. To know would finish him off. Don't listen to people who put expiration dates on others. Trust God and take each day one at a time.

RE: 6 Months to live

by Cptmac on Wed Sep 03, 2008 12:00 AM

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Having been told that I had 6 to 12 months to live with treatment but that I could die at any moment (along with the severe pain I would be in right before I died) from my perspective it comes down to a Dr.'s bedside manner. 

The intial doctors I saw gave me no hope.  I knew this meant that they did not know how to help me.  I've heard this many times at work when people say it can't be done.  What they mean to say is they don't know how to get it done.  So, being Stage IV, I did a lot of research, went to a top hosptial with top doctors willing to ensure my longevity. 

I was dx'ed in July of '04 and have been NED since Sept of '04. 

I'm a strong supporter of seeking out as many opinions and doctors as needed until you find one that is willing to give you a chance. 

RE: 6 Months to live

by Emmie on Sat Sep 06, 2008 12:00 AM

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On 9/2/2008 Sterling wrote:

My friend went to Sloan Ketterling 6 years ago. They told her she was stage 4 and began chemo. I am happy to report she is healthy today and cancer free. She never planned for it to work out any other way.

Please tell me what Sloan Ketterling is and also more details of the diagnosis in the beginning and what happened thereafter, what drugs she had, how long and how long since she has had any chemo. 

RE: 6 Months to live

by TeresaGH on Sun Sep 07, 2008 12:00 AM

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On 9/3/2008 Cptmac wrote:

Having been told that I had 6 to 12 months to live with treatment but that I could die at any moment (along with the severe pain I would be in right before I died) from my perspective it comes down to a Dr.'s bedside manner. 

The intial doctors I saw gave me no hope.  I knew this meant that they did not know how to help me.  I've heard this many times at work when people say it can't be done.  What they mean to say is they don't know how to get it done.  So, being Stage IV, I did a lot of research, went to a top hosptial with top doctors willing to ensure my longevity. 

I was dx'ed in July of '04 and have been NED since Sept of '04. 

I'm a strong supporter of seeking out as many opinions and doctors as needed until you find one that is willing to give you a chance. 


 

what is NED I have seen others say this and don't know what it means. I wanted to tell everyone that my first chemo doctor told me I was late stage 4 w mets to liver 14 centimeters in Dec 07 and that he could give me chemo, see what happens but surgery was not an option and that my prognoses was not good; I was sooo depressed and fortunately, God had another plan for me. My insurance could not work w him so I went to another doctor, one I hadn't heard of, new to the area, he started my chemo and socked it to me, do or die, and did radiation at the same time but also sent me to a liver specialist, he told me I stood a 50 5 chance of making it to surgery because the tumor was so large, I was very receptive to chemo, and had surgery ( down to 5 centimeters) and it moved to the far right wall off the hepatatic vein. Resection was successful, no sign of recurrance as of last monday in the liver or colon. Now I am still struggling with a bad ileostomy, colon has scar tissue from the radiation, But we are talking quality of life not life or death. I go Tuesday morning to see if they can scrape away enough scar tissue to make a path in the colon to work with. If so then my surgeon will do this in a 4 part surgery, a little at a time so it will heal well and not cause future problems when I have the reversal. I pray for this to be successful and if any of you are christians, please pray for me too. My final thought is to never give up or accept a death sentence without other options. Definately keep a positve attitude and do everything possible nutrition wise to help yourself. Then Thank God for everyday we have here on this beautiful earth to spend with our loved ones and make every day count.

RE: 6 Months to live

by Cptmac on Sun Sep 07, 2008 12:00 AM

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NED means no evidence of disease, or that they can't find any evidence of cancer. 

It sounds like you've been through and still need to go through a lot.  Hang in there.  I'll keep you in my prayers

RE: 6 Months to live

by marilynv08 on Sun Sep 07, 2008 12:00 AM

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My husband has Esophageal cancer with mets to the liver and lymph nodes.  He was to have surgery on his esophagus this past July but then they discovered mets to the liver and lymph nodes.  Surgery was cancelled.  My husband asked the Oncologist how long he has to live.  Dr. said that 'STATISTICALLY' 6-12 months, but there have been people that live long after that.  No one knows for sure how long anyone will be on this earth.  My husband and I have a positive attitude about his illness and that is what helps us.  In reality, I know this may be our last Christmas together but I also think 'why can't my husband be that person that survives for many more years'.  Stay strong and have good thoughts.  Live each day to the fullest and enjoy your time together every day.  Always have hope.  I will be praying for you and your husband.
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