Small Cell Cervical Cancer

I'm looking for long term survivors. My daughter, age 26, has been staged 3B small call cervical cancer.

Hi there,
I'm 33 years old and also have been diagnosed with small cell of the cervix on the 9th of July,2005.Ever since that time i have been searching for someone with the same or like you a long term survivor to no avail until i came across your message.I live in Australia and my chemo doctor is the only one who has given us any hope.He told me he'd give me 2 years and he'll cure me & never see me again.All we have is hope.

Hi, I'm 43 years old and was diagnosed with small cell cervical cancer as well as adeno carcinoma of cervix and renal cell carcinoma of the kidney in may of 2003. I have since undergone major surgery...radical hysterectomy and node ectomy and also a right kidney removal. Following surgery I underwent 6 rounds of cisplatin and Itoposide chemotherapy followed by 6 weeks of daily radiation (1 day a week internal the other 4 days external). Though my body is suffering from the side effects and lasting effects of the treatments...I received good news last week. I just had my follow up PET scan (10 mos. post treatment) and it came back with no cancer seen.... Never give up hope.... I haven't heard from any long term survivors either...but we are hear today and will live every day to it's fullest now...never wasting another minute of time with our loved ones. Stay in touch. --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html --- I was stage IB2

Hi, I'm 30 years old and was diagnosed with small cell cervical cancer stage 2b in Sept of 2004. I had a radical modify hysterectomy and node ectomy . Following surgery I underwent 3 rounds of cisplatin and Etoposide chemotherapy followed by 9 weeks of daily radiation (6 wks were external and the other 3 internal). Then I had 3 more rounds of chemo with the same drugs....I haven't heard from any long term survivors either...actually this is the first time that I came across with someone dealing with this rare type of cancer, I never give up HOPE and I always try to be positive about it.....God Bless You!!!!!

Hi,

I hope you are doing well.

Can you please tell me what chemo drugs the doc gave you?

I was diagnosed in May and my follow up in December showed a recurrence.

I am looking for information on how to retreat this.

Thanks!

Take care.

Hi,

I hope you are doing well.

Can you please tell me what chemo drugs the doc gave you?

I was diagnosed in May and my follow up in December showed a recurrence.

I am looking for information on how to retreat this.

Thanks!

Take care.

We were told my 27 (at the time 26) year old sister has small cell carcinoma, stage IIIb. This was March 2005. She has been thru 18 weeks of cisplatin and etopside (not sure about the spelling), when that was over she went in to have surgery in Aug 2005. They found it on the lining of her small intestines. The doctor just closed her back up. I had lost all hope. My entire family was crushed, because for months the chemo was working the 9cm tumor was shrinking. Then we were hit, I should say she was hit with that news. They started a new chemo treatment with external radiation this round. It was cisplatin and another type a new one. But she only had 3 treatments, She started to have nerve damage from all of the cisplatin. So they stopped the chemo, and she went for 4 weeks of internal radition. The doctors only gave her two, because they said the tumor was gone. She goes in for her PET scan on January 16. I pray that the small amount of chemo she received the last time got the cells on her intestines. We know the tumor is gone. She is in the Bahamas right now with our family. She wakes with this cancer everyday, I hope she is able to let go while she is there. I know she is worried about this test. We all are. My family and myself have spent countless hours reading and learning about this cancer and the new treatments out there for it. My mother was the one that found the new chemo they gave her this last treatment. Please if any comes across someone that has survived this cancer long term, please let me know. I will do the same. Please keep my sister in your prayers. Thank you.

I posted the history on my sister who has small cell cervical cancer. I really would like to know about your treatment in detail. Thank you

Kerri, I am lifting your sister up in prayer. This is a dreadful disease and it is very scarey. Attitude is everything. I began my treatments wtih radical hysterectomy and lymph node removal. ( I also had my kidney out at that time because I also had renal cell carcinoma) 4 weeks after surgery I started on Chemotherapy. I had 6 rounds of aggressive cisplatin and etoposide. Every third week I went in for 3 days in a row and received 5 hours worth of infusion. (that was one round). Upon completion of all 5 rounds I started daily radiation to the pelvic and abdominal area. One day a week I received internal radiation to the vaginal canal and base of the pelvis. I also have suffered from significant nerve damage but I can tell you that I am cancer free today and it has been one year and one month since I completed treatments. I say "Plan for the worst but believe for the best". Enjoy every minute that you can with your sister and plan for her not being with you. Then put that on one side of your brain and on the other side pray for the Miricle that God is so capable of giving and believe for it. I live each day to it's fullest now. I feel like I have been given a chance to make sure that each day and every moment counts. That is more than most people get in their lives. I have time to plan and to make sure the people around me know how much I treasure them. It is scarey to think that I may not be here in 5 years but I still believe for the miracle of healing. There are not many long term survivors of this disease but you are right to keep researching as there are new things coming about every day. You guys are in my prayers. Terri

I am doing fine, it was very hard for me decide to remove my uterus and everything but my Doctor told me to left my ovaries so that what I did, he remove my uterus, fallopian tubes, cervix, part of my vagina and 16 lymph nodes.
When I said rounds I meant three days in a row every three weeks, the first day was cisplatin followed by etoposide the next day then cisplatin again the third day so those were my first 3 chemo rounds. The external radiation was 6 weeks (5 Days) for 10 minutes and the internal was once a week for 10 minutes too and it last 3 weeks.
Then I did three more rounds of chemo with the same drugs as I mention above. Before I did radiation, I had my first PET and it came back normal because they wanted to be sure that I did not have any recurrence in another place of my body, so far I have no recurrence and still hoping for the best! Remember God loves you. Tania