One patient with glioblastoma still alive nine years later
by Super01Mom on Thu Sep 04, 2008 12:00 AM
I had a lower resection in June of this year which resulted in a permanent colostomy and I have been battling infections with severe diarrhea. Is this normal because I feel like a prisoner in my own home. I have diarrhea so bad it causes the bag to leak and it is usually without warning. I've had at least four episodes in the last two weeks. I am afraid to leave my house for the fear of a leak. Has anyone else had this problem? Immodium does not work and now I've been prescribe lomotil, hopefully this will slow things down. Any feedback would be much appreciated.
by Debbie2 on Fri Sep 05, 2008 12:00 AM
have you been tested to see if you have C-Diff- the only way to clear that up is with antibotics- some people get it after getting lots of iv antibotics- my mother-in-law has been battling c-diff off and on for three yrs.
also try using Pink Tape (you can get it at your ostomy supply place) and put it all round theedge of the bag- that might help slow some of the leaking. Watch your sikin under the bag- you can easily get a breakdown from the diarhea
by DinaZ on Fri Sep 05, 2008 12:00 AM
My Dad also had that same issue. After his first CT scan and drinking the Barium, he also got severe diharrea. He had to empty his bag constantly. It was awful and it lasted for about a week! After they determined that it was not due to infection, he had to take Imodium to harden his stool. I know that I probably did not help you very much, but you are not alone. This has happened before. It happened to my Dad while he was still in the Hospital after his surgery so he was immobile and all of the nurse techs who came in to empty his colostomy spilled all over him every time. He was humiliated.
by rosydosy on Fri Sep 05, 2008 12:00 AM
When I had the bag, I took 2 lomotil 4 times a day and sometimes immodium along with that. I also had a prescription for Paragoric. (sp?)
Good luck. Hope things get better. I know how you feel.
by TeresaGH on Sun Sep 07, 2008 12:00 AM
On 9/5/2008 rosydosy wrote:Hi Sheryl, When I had the bag, I took 2 lomotil 4 times a day and sometimes immodium along with that. I also had a prescription for Paragoric. (sp?)Good luck. Hope things get better. I know how you feel.Rosalyn
by patricia_1 on Sun Jul 12, 2009 12:00 AM
i have recently had a colostomy myself and i am suffering just like you.
i only wish there was more information on colostomies and how to cope with a stoma to me there doesnt to be enough information about.
no one seems to want to talk about it but i do to understand it more.
you keep well and look after yourself that is what i am trying to do.
god bless you
by arb43 on Thu Jan 05, 2012 05:19 AM
I realize that I'm two years late with this response, but I can recommend the following book as invaluable in living comfortably with colostomies...
The Ostomy Book by Barbara Mullen and Kerry McGin (available inexpensively - used - from a search on ABEbooks.com )
Incidentally, to help those about to undergo or recently operated on for a colostomy, I've lived with my pouches for 26 years, still play golf at 86, and have traveled to 83 countries on all seven continents mainly since retirement...
by caseyd on Thu Jan 05, 2012 07:53 PM
Please contact Home Health Agencies in your area and see if they have a Wound, Ostomy Continence Nurse (WOCN). These are specialized nurses who have a great deal of knowledge with Colostomy issues. You will need an MD order so discuss with your physician. There is no reason to suffer with leakage issues with today's appliances. I was a WOCN for many years but have since retired.
For the diarrhea try eating the following: White breads, rice, applesauce, bananas. Stay away from fresh fruit (except the bananas and apples without the skin), vegetables, milk, coffee, chocolate and anything you know of that makes your stool loose such as high fiber foods.
For your colostomy, you must change the wafer when it leaks or you may experience skin breakdown. Make sure the wafer part is cut no more that 1/8th of an inch larger than your stoma. If you leak in a specific spot, build up that area with a piece of the wafer. If you use a 1 piece appliance, look into the 2 piece ones (Squibb and Coloplast have great ones), and that way you can change the bag when full, not the wafer protecting your skin.
I do hope this helps and please try to find a local WOCN. You can try the WOCN website for nearby WOC Nurses.
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