Nexavar anda side effects

Morning,

I have been using Nexavar 7 days.  I have a knot in the palm of my hand also the stinging and itching in the head.   Has anyone found a   good  remedy for this.  The Dr. said it will go away.  But what do you do in the mean time.

LucyLou

The head stinging and itching did quit after my hair fell out. For some reason it really did" hurt" right before it fell out. When callouses on hands and feet were really sore ice sometimes helped.  My doctor suggested Tylenol and it did relieve some of the nerve like pain.

This will sound a little weird so here it is.....I cut all my hair off as short as i could and am wearing a nice little hat.Apply ice packs to your scalp it is a big relief,just be careful not to apply directly to the scalp use a wash towel or such.I also use morphine so i can sleep,and a full shower with head and shoulders works well,but the ice is the best.You can buy an ice head cap at any drug store.That rash is really good news that the medication is working.It will continue until your whole body shows signs of the rash.I feel like i have sand on my skin and the dr. said today it's the nexavar rash.I have a lot of side effects,like nausea,running to the restroom and joint pain.Hang in there the side effects do go away!

 

 

 

On 9/10/2008 LucyLou wrote:

Morning,

I have been using Nexavar 7 days.  I have a knot in the palm of my hand also the stinging and itching in the head.   Has anyone found a   good  remedy for this.  The Dr. said it will go away.  But what do you do in the mean time.

LucyLou

 

Hi LucyLou,

My dad was on Nexavar for 4 months, and I can tell you that he felt the itchy scalp throughout his treatment (no stinging though) as his hair fell off. From my dad's experience, you can also experience hand-foot reaction from the chemo, and depending on how high your dosage is, it can become quite severe and painful.

Hand-foot reaction can be mild from redness and pain to excrutiating blisters. The best thing for you to do if you start getting a skin reaction is to avoid making contact with the affected area (staying off your feet, do not do work with your hands, do not hold your feet/hands in hot water etc..) Friction will make the reaction worse.

My dad started off with 4 pills a day, once his skin started to blister, he tried to continue with 4 pills to see if it would eventually go away, but the pain was too much. After some readjustments, he then alternated between 2 pills a day and 3 pills a day.

I don't mean to scare you, and definitely not discourage you (no pain no gain right?). But just wanted to share with you... just in case :)

If you get blisters and your skin starts to peel off, remember to always keep your skin moisturized (Udderly Smooth cream and/or petroleum jelly worked well for my dad).

I wish you the best of luck, keep us posted with your progress

Thanks for the information - I'm the daughter of LucyLou - she had a dr. appt. yesterday - he will be cutting her meds down half - 1 two times a day - hopefully, the side affects will be less severe and more minimal.....her scalp is driving her crazy - she lives 2 hrs away so I don't get to be there with her on a daily basis, but we talk and I try to give her as much info as possible....she isn't really feeling well enough to answer/read these messages right now so thought I would step in and thank you and wish you well. Take care

I want to encouage you to hang in there. I have been on Nexavar for almost 5 months. The first 6 weeks were challenging with side effects but my body has adjusted. I now only have some soreness in my feet and tongue. I receive patient support from the Reach Program which is from Bayer Pharmaceuticals (the maker of the drug). In addition to financial assistance in affording the med, they have nurses who will answer your questions about side effects. The number is (866) 639-2827.

 For the itching scalp (which did go away after about 10 days) the nurse recommended lathering up with head and shoulders and letting it stay on my head for about 10 minutes before rinsing. Also for the hand/foot lotion about 4 times daily and soak feet in an espson salt solution for 10 minutes several times a day. Do not do this for much longer than 10 min. because it can dry out the skin. Follow with lotion.

Hope this helps. I would suggest calling the 866 number if you have any more questions. 

 

On 9/10/2008 LucyLou wrote:

Morning,

I have been using Nexavar 7 days.  I have a knot in the palm of my hand also the stinging and itching in the head.   Has anyone found a   good  remedy for this.  The Dr. said it will go away.  But what do you do in the mean time.

LucyLou

 I 

MOrning,

Hello,  My side effects started the beginning of the 3rd week.I broke out from head to toe.  Head kills me with itching and burning.  I got really sick last week and went in the hospital for fluids.  That really helped.Went to Cancer Dr. yesterday and as soon as I clear up a little more he is going to reduce my pills too 2 a day instead of 4.  He also give me some itch pills Hydroxyzine and they are helping.  I know things will probably get worst for all of us from time to time.  But we can and will not give up.  My prayers and thoughts are with you all.

Lucylou

I'm 44 yrs.old and the doctor told me i had no choice but to use nexavar.I'm doing quite well except for sore feet and peeling skin.Walking is a ummmmmm ya know.My feet are really red.Wishing everyone to hang in there!

 

 

Morning, This is LucyLou,

I had to stop the nexavar, I broke out all over my body and my head drove me nuts with itching and burning.  After my surgeer the Dr. had give me some cream to puton my itch on my buttocks and stomach.  I decided to put it on my head and it stopped the itch. I also used head and shoulders.

I will give you the formula and maybe your Dr, can recommed some for those having the itch problem.

TRIAMCIN CR 0.1%/CETAPHIL 180.0GM

THIS HAD TO BE MIXED FROM THE  PHARMACY. 

HOPE THIS  HELPS SOMEONE.    lucylou