One patient with glioblastoma still alive nine years later
by Missmeredith on Tue Aug 23, 2005 12:00 AM
by Oncrx on Fri Sep 30, 2005 12:00 AM
by Missmeredith on Sun Oct 02, 2005 12:00 AM
by Ath4059 on Fri Feb 10, 2006 12:00 AM
by Missmeredith on Fri Feb 10, 2006 12:00 AM
by Ath4059 on Thu Nov 17, 2011 12:01 AM
On Feb 10, 2006 12:00 AM Missmeredith wrote: The website took out your email address so I can't email you. But when you say that you had tightness in your leg muscles, does it hurt or is it just really difficult to move? Because one way to tell if myositis due to gvhd is flairing up is if your muscles start to get sore, like after you work out and then it gets worse - either more painful or harder to move or both. As far as joint pain, that's from the prednizone and mine always gets the worst when my doctor changes my dose. Right now I'm taking 50mg/60mg alternating days.
The best ways that you can tell if gvhd is flairing up is if your skin gets really sensitive and dry, especially in your hands and feet. Your skin might get a little pink. That's the first indicator. It moves in levels and the skin is at the first level, then your stomach and gut are affected, so diarreha or throwing up are both signs.
It's different for different people, so it's hard to pinpoint specific symptoms, but those are beginning signs. I have a bunch of information about both acute and chronic gvhd. I'll find it and see if there's a website or phone number and I'll let you know. It's so tricky and prednizone causes as many problems as it fixes, so the sooner you can stop taking it, the better. Anyway, I hope you're doing all right now and I'll dig that information up for you. Take care,
On Feb 10, 2006 12:00 AM Missmeredith wrote:
Hi Tony back here 11/16/2011 still have slight gvhd off predizone as og 8/1/2011 have bone pain the is severe and neuropathy inlower part of both legs but have survived had bmt on 6/11/2005 keep the faith and stay strong
by atkron on Tue Nov 22, 2011 06:45 AM
hi I have had mas doses of prednisone no choice needed it to save my life but thge one side affect that has really taken a toll is necrosis it rotsthe joints ive had 6 out of 7 joints replaced and need tge others done so hopefully you dont have to go thru what I am good luck and god bless
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If you were considering traveling for cancer treatment, which headline would you find more interesting?
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