Women who don't have BRCA mutations could have other high-risk genes that affect treatment choices
by Pookie196 on Thu Oct 02, 2008 12:00 AM
Although my ovarian cancer was Stage 1a, I had a vary rare and agressive form. Therefore, they said they had to treat it as if it was Stage 4. Hope this helps
by Patti_123 on Thu Oct 02, 2008 12:00 AM
HI - I had an internal ultrasound done back in Feb because of heavy bleeding. They found I had a 12 CMM tumor on my ovary. I had surgery (complete Hysterectomy and exploratory) The tumor was a Granulosa cell tumor stage 1 cancer. They could not tell that it was cancer for sure until they did the surgery and had a pathology test done.
Hope this info helps,
On 10/1/2008 JulieUK wrote:Hi - does anyone know if ultrasound scans - whether internal or surface - can detect ovarian cancer at Stage One? Or, indeed, Stage Two.Has anyone here been DX stage one (or two), and if so, how did it happen? Many thanks, Julie
Hi - does anyone know if ultrasound scans - whether internal or surface - can detect ovarian cancer at Stage One? Or, indeed, Stage Two.
Has anyone here been DX stage one (or two), and if so, how did it happen?
Many thanks, Julie
by nursetina on Thu Oct 02, 2008 12:00 AM
Don't delay!! if not already done..common lab test CA-125 indicates the possibility of ovarian cancer..if positive CT scan..request to see a surgical oncologist. Don't delay..take charge and be your own advocate. Even with stage one..the treatment plan I would think would be a laparotomy to go in and check things out. A laparotomy although surgery is very simple and usually at most and overnight stay in the hospital. Stay stron and hopefull. God Bless, Tina
by pati56 on Thu Oct 02, 2008 12:00 AM
I neglected to say that my diagnosis was "Stage 1C". The tumor was encapsulated but ruptured during removal which is the reason why I had chemo. I had three sessions as "adjunct therapy". Hope you are doing well. Pati
by the_dance on Thu Oct 02, 2008 12:00 AM
Julie, As far as I know an ultrasound can detect if there is a mass, tumor ect: I would think if there is something they would have to go in and do a biosopy.. I had to have one last year because I had a scan that showed a mass on my ovarys. The quickly sent me for an ultra sound and Thank God it was just a shadow. Good Luck!!! Think Positive Julie. Carol (fighter)
by Harrietg on Fri Oct 03, 2008 12:00 AM
On 10/2/2008 Pookie196 wrote:Hi Julie:Yes, an ultrasound can find Stage 1 ovarian cancer. It found mine. I was suffering from recurring urinary tract infections. When I had my third one in six months my wonderful doctor sent me for an ultrasound. A mass was found in my right ovary. She then sent me for an MRI with contrast. She then sent me to an onocological gynecologist for a second opinion. He was quite alarmed and scheduled me for laparoscopic surgery the following week and sent me for a CA125 blood test. The morning ot the surgery he came in and told me the results of my CA125 was 3,074 and that I defineitely had ovarian cancer and that he was going to open me up and remove the uterus and the ovaries and anything else he needed to remove. That was August 1005. My quarterly CA125's have as low as 1. Stage 1 has the best cure rate. It's tough but we make it through. Good luck and may God Bless you.
Yes, an ultrasound can find Stage 1 ovarian cancer. It found mine. I was suffering from recurring urinary tract infections. When I had my third one in six months my wonderful doctor sent me for an ultrasound. A mass was found in my right ovary. She then sent me for an MRI with contrast. She then sent me to an onocological gynecologist for a second opinion. He was quite alarmed and scheduled me for laparoscopic surgery the following week and sent me for a CA125 blood test. The morning ot the surgery he came in and told me the results of my CA125 was 3,074 and that I defineitely had ovarian cancer and that he was going to open me up and remove the uterus and the ovaries and anything else he needed to remove. That was August 1005. My quarterly CA125's have as low as 1. Stage 1 has the best cure rate. It's tough but we make it through. Good luck and may God Bless you.
hi! i never realized u could be stage 1 & a ca125 over 3000! i was over 3000 2 yrs ago & was deemed 3c! i'm glad to see all u 2 & 3 yr survivors: i thought my life was ending 2yrs ago! and i always had tvus at my ob/gyn/onc: this happened within 7 months but my gp & i missed the clues, uti's; he did however send me eventually for an ultrasound for diagnosis; the rest is history (i hope!!) . harriet
by Pmcg63 on Fri Oct 03, 2008 12:00 AM
I have been diagnoised with Stage 1C Ovarian Cancer - Low malignent mucinex tumor type on August 6, 2008.
Over a three month period my stomach was getting more distended when finally I could not even eat. I went to family doctor for physical in March and found my Blood pressure to be high. Over the next few months they monitored and I went to the gym three (3) times a week. I could not understand the distended stomach so I asked my family doctor what could it be. They did not think there was any fluid but i looked nine months pregnant. I took a picture with me and showed them me from March till July. They decided they would send me for an Ultra Sound. I asked if they could also do a C125 Blood test, since my Mom had been diagnoised with Stage 4 Ovarian (Elip) two (2) years prior. CA 125 came back at 29 under the normal 35 range. Ultrasound was performed and Radiologist called my primary and asked if the patient had a hysterectomy!! Doctor replied no. I was admitted to the hospital that day for further testing. They could not see anything since there was so much fluid surrounding all organs. T Scan was perfomed that night and found a 17cm x 17cm mass on my left ovary. I was taken to have some of the fluid removed to give me some relief. They removed 6 liters of fluid that day and two days later I was sitting in my mom's GYN Oncologist office. He said he would have to perform a total abdominal hysterectomy and then take it from there. Mass had ruptured and they ended up taking everything including appendix, lymph nodes and obmentum.
I did pretty well recovering and am now dealing with an infection in the wound, which hopefully is now on the mend. Not sure what I will have to do I go to doctor on Monday, October 6. Exactly two (2) months since the surgery.
I was more worried about my Mom during this time, but she has been great through all of this. Hopefully I hear great things on Monday and I am keeping a positive attitude, keeping less stress in my life and will take one day at a time.
Hope this information helps and I wish you the best of luck.
by AnnaBannana on Sat Oct 04, 2008 12:00 AM
Well it looks like you generated quite a lot of responses. In Jan. 2008 I woke in the middle of the night with abdomanal pains more towards the pubic bone. I tried to go to the bathroom and almost passed out. I made it back to bed and the pain wouldn't stop. I went to the bathroom again, and again almost passed out. I had to have my husband get me back to bed this time. I finally couldn't take it any more and told him to take me to the ED (or ER). Half way there I began to feel better so we turned around and went home. I almost passed out again, in the car. I felt yucky the nex day and talked to a coworker. She had had an ovarian cyst before and she said that's what it sounded like to her. Luckily for me I work at a hospital and worked for a physician at the time. He said to go see my gyny right away because he thought it was a cyst also. After and internal and an external ultrasound they found a 6cm cyst on my right ovary. We did the three months of birth control pills thinking it was a fluid filled one but I knew it wasn't going away because the pain was getting worse. Another ultrasound revealed it wasn't getting bigger but it wasn't going away so the doc said it was surgery time. There was a pathologist in the room who said all was good. But 5 days later, after more thorough testing, I was diagnosed with a granulosa cell ovarian cancer. The ultrasound can see a mass but it CANNOT tell you it's cancer. That's what pathology does. At least that is how it is in the USA at this time.
My gyny referred me immediately to a gyny onc who said the only way to stage the cancer is to take out the remaining parts, fatty tissue near the right ovary and lymphnodes around the body cavity. He also tested the washings. I am a 1a and no chemo necessary. He said some choose chemo just to be safe but since everything else was clean he didn't recommend it. My surgery was also performed using the da Vinci robot. After three post surgery complications I'm finally doing better. The da Vinci leaves me with 5 scars across my waistline but everything was removed vaginally. With these 5 scars to go with the three from my first surgery I look like a dot-to-dot game. Thank goodness the scars from my gallbladder surgery are hardly noticable.
I hear several people talk about the CA125 test. My gyny onc has me get an Inhibin B blood test every three months. My understanding is this test is better for me. I'll have to ask why again.
My question to others is, do you experience flashes of pain in the area where the bad ovary was?
All my best to all of you, fight on! Ann
by parrotbayRN on Sun Oct 05, 2008 12:00 AM
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