Arimidex

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Arimidex

by Carolina on Wed Sep 07, 2005 12:00 AM

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Hi ladies, I just found this forum tonight and am excited to read some of your correspondence regarding Arimidex. I, too, have been on Arimidex since April and am experiencing quite a bit of joint and muscle aches. Most of my joint pain is in both knees and in my right hip. My doctor x-rayed my knees and my right hip but all looked just fine. I've been so concerned about my hip pain that my Oncologist has ordered a CAT scan this coming Wednesday. I've found that taking about 1600 mg. of Iboprofin daily manages my pain - but I don't want to have to continue that if I don't have to. I know Arimidex is a superior medication, therefore, I'm inclined to "hang in there" through the pain as long as I can - as I DO NOT want breast cancer again! I am very interested in nutrition. Have any of you changed your diet habits since learning of your breast cancer? If you have, please write and tell me about it. I look forward to hearing from any of you when you have time to write. Thanks! :)

Reply to Arimidex Message

by Roz57 on Fri Sep 09, 2005 12:00 AM

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Hi Carolyn Just noticed your message. I also like this site and noticed that you have the same areas of pain as I have. The right hip - both hips actually, but the right hip much worse, knees but also down the leg bones. I have been taking Arimidex for almost 2 years. I am going to the oncologist on Monday to see if he can help me. I was ok for the first 6 months, hardly getting any pain but now I also get depression. This site is helping me such a lot. I changed my diet after reading the book by Prof. Jane Plant which tells you all the rubbish they pump into cows, chickens etc. It is a really good book to read - an eyeopener. I stopped having dairy, substituting rice powder milk instead of milk and avoiding cheese and hardly eating red meat. I must admit I do eat such things as macaroni cheese etc, when I make it for the family (I am not one to make different meals for different people!) I also eat a lot of beetroot as that is supposed to be very good for cancer sufferers. Also snails - if you can eat them - they are one of the best foods to suppress cancer (I have been told anyway). Try to avoid sugary foods, or at least cut them down. I also do not want to come off this drug but if the side effects make me feel like a woman of 90 then I will have to try to change. A lot of the ladies on this message board have told me there is a tablet called Aromasin which is also an aromatase inhibitor. I see on the Internet though that it also has side effects so I will see on Monday what the oncologist has to say. Oh, by the way, I find that one of those little therapeutic heat pads, thermastatically controlled, helps me at night as I lie it on the bed and lie on my right hip on it, the heat soothes it. Not much good soon though as I am in Johannesburg and the summer is upon us - I think I could get too hot! I hope this has been of some help to you and good luck in the future. Ros

Arimidex

by Jeano on Mon Sep 12, 2005 12:00 AM

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Hi Carolina-I also was on Arimidex (from Dec.04 to Aug.05) The pain in my bones was so intense that the onco. changed me to Femera. Once again extreme bone pain but just don't feel to give up completly. It is the only thing that seems to make my tumor markers go down. Yeh. I take a Percocet usually in the afternoon while I rest and still continue to walk and push myself as much as I can. Since we are to be on this drug for five years, I trust the pain will begin to alleviate. I also drink a couple of glasses of fresh carrot juice daily, take green tea capsules and try to avoid red meat. Attitude is so important so whether it is watching funny movies and/or giving all your daily cares to the Lord, It does make a difference.

Reply to Arimidex Effects

by Carolina on Mon Sep 12, 2005 12:00 AM

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Hi ladies, It's been fun hearing from all of you. Hearing about all your different diet plans has been interesting. I'm studying it out for myself and have decided never to eat chicken again, not eat "white" foods, not eat sugar/sugar products, eat fish (at least 3X week), and eat plenty of fresh fruits and vegetables. I'm studying supplements now and have just about decided what all to take there. I've added daily exercise into my day, which really does seem to help the joint/muscle aches. Have any of you found that exercise is helping? I've thought about the depression that several of you have mentioned and I think the depression is possibly a side-effect from being "weighed" down with constant pain. I felt myself starting to get a little depressed on Saturday after hurting all day Friday and Saturday. I think that is why pain management is so important. I've printed out all of your communication with me and I'm going to ask my Oncologist about some of the pain meds. that a couple of you are on. Maybe they would be helpful for me. And yes, Jeano, I too believe tht "attitude is so important - so whether it is watching funny movies (my favorite TV show if America's Funniest Videos), and/or giving ALL your daily cares to the Lord, is what makes the difference. I have to say, if it weren't for the Lord's help and laughter, I don't think I could have made it through chemo! It was really hard on me. But I'm doing so much better now and I'm thankful. I still have my mammogram, ultrasound and CAT scan scheduled for Wednesday. Y'all think good thoughts for me! I'll be in touch later in the week. Everyone have a great week!

Arimidex

by Sweetblonde on Wed Sep 28, 2005 12:00 AM

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I have been on Arimidex and Zoladex injections since Jan 05, and have been temporarily stopped by the onc. due to severe migraine attacks...they are trying to figure out if this is causing them...hormone disturbances since trying to shut down my ovaries with the Zoladex. Anyway, I have had some depression, crying fits and great fatigue...just finished rads a month ago too....and am more tired now than when I underwent the rad treatment. I had no energy to go out, but last weekend, I realised I was so weak, and I was determined to do something about it, so I began with my daily walks again (had stopped) and gradually this past week, lengthened the time I walk...and what a difference it has made to my energy levels, and my moods!! I do believe gentle exercise if you can tolerate it can help, and in my case, it has helped me. I am waiting to see the onc on Oct 27 to figure out what he will do next regards my treatment...do I go back to the same drugs or does he try something else. Oddly enough, have begun sleeping through the night with no hot flashes or migraine attacks since stopping the drugs either, which is a relief. I had been told was in menopause, but now don't think I am, (I am 46) as the hot flashes completely stopped. Hmmm....well, we'll see what happens.

Pain in The Upper Arm

by Yellow on Sun Apr 09, 2006 12:00 AM

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My sister had breast cancer in November 2005. She went through radiation treatments and is now taking arimidex since January 2006.Two weeks ago she has been having upper arm pain somewhat like pulled muscle. Can this a side effect this early.Please answer soon. Atfer her surgery the doctor said she was cancer free, but in her mine she thinks every pain can be cancer.Please excuse my spelling she is my baby sister and is driving me crazy.

RE: Pain in The Upper Arm

by joanhenry on Tue Jan 01, 2008 12:00 AM

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Please listen and be sympathetic with your baby sister. She needs your compassion. I was diagnosed in March of 2006, had a lumpectomy in April and radiation treatments in the summer of 2006. My cancer was stage one, so I have always felt "like a weenie" when I read the letters from 37 year old women with metastatic cancers. I have been taking arimidex faithfully for 18 months now. I have always been healthy and exercised religiously - I really didn't notice too many side effects ( no hot flashes so far )at the start of hormonal treatment, but the achy muscles and joints are beginning to really slow me down. I am 62 and was previously able to do pretty strenuous exercises and work around the house extensively, but in the last 3-4 months, my quality of life has decreased dramatically. A good nights sleep is to be treasured and usually only comes after taking a nice hydrocodone tablet which I received after a little shoulder surgery this past summer (which may have not been necessary had I been aware of the side effects of arimidex). I miss jogging and step aerobics - yoga classes are even difficult to complete. I manage to jog very slowly for about 2 miles several times a week - lifting weights has become hard for me and I just don't feel like much activity at all. After taking a trip, I am exhausted - eating out and not drinking enough green tea (my newest dietary addition) ?? I don't know. I also have recently read that vitamin D3 is supposed to help mitigate the joint and muscle pain of women on aromatase inhibitors. I live in South Texas and perhaps one problem in the winter time is that I don't get the sun exposure that I get in the summer. Well, I, too, am going to see my oncologist next week and will certainly make my discomforts known. I tend to be the compliant, non-complaining patient, but not this time!!

RE: Pain in The Upper Arm

by deb46 on Thu Jul 09, 2009 12:00 AM

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Your sister is normal.  Her fear will lessen with time but it will probably stay with her to some extent.  Once you go through cancer the fear is always there.  She must stay proactive from this moment on.  Listen to her fears.  make sure the gets things checked out and keep moving forward.  Bottom line...LIFE IS PRECIOUS.  We all want to stick around to see the future.  Good luck to you both.
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