Latest messages for CancerCompass discussion http://www.cancercompass.com/message-board/message/all,29098,0.htm Sun, 22 Nov 2009 00:00:00 GMT Sun, 22 Nov 2009 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Hello, my fiance's 12 year old daughter was recently diagnosed with PH+ AML. I would like to find as much information as I can on it. Unfortunately, my research hasn't been able to come up with alot of information.  To give a little bit of background. She was first diagnosed with AML-M5 in June '08. Her doctors immediately started her on induction therapy. The first treatment did nothing, the second however, showed some improvement. Since then, she has had a multitude of problems including renal failure. Her doctor then stopped treatment because of her kidneys. A week later, she was in the hospital for a seizure. They then found out that the leukemia had spread to her lungs. They restarted the chemo.  Her father had decided to seek a different opinion and contacted St. Jude's and from there, she was diagnosed as of today 9/8/08 with having PH+ AML. He said it was a very rare and aggressive form of leukemia. It has also spread to her lungs, liver and spinal cord.Is there anyone else that has experience with this form of leukemia that can give me some information about it please? Such as what exactly does it do? How does it effect her overall rate of survivability? What kind of chance does she have...etc. Thank you. Aurora626 Wed, 08 Oct 2008 00:00:00 GMT