One patient with glioblastoma still alive nine years later
by nana4 on Mon Oct 13, 2008 12:00 AM
by lizzydrip on Sun Oct 19, 2008 12:00 AM
On 10/13/2008 nana4 wrote:OK, this probably sounds crazy, but I've got to have my latest pap smear redone because they said they didn't get enough cells. The nurse at first said I have bad news and then she said not really the bad news was just that I had to see them again. I had the orignal pap smear 2 weeks ago. Is not getting enough cells something that is prone to happen or is my overactive imagination right. It has been 9 months since my partial vulvectomy and vulvapasty.
I like you will be having more radical surgery if this current treatment does not work i'm in my 2nd week of using Aldara and already got my first infection, anyway i like you worry about my smears as i am now always worrying it will go there next we can only hope it doesn't. i think it is possible for them not to get a good enough sample, try not to worry to much.
Could to tell me anything about a partical vulvectomy as this may be my next step if the Aldara does not work.
Take care x
by nana4 on Tue Oct 21, 2008 12:00 AM
Thanks for responding. I've went and had the repeat pap smear and the Dr. said the lab just messed up. But he did keep skirting around my questions about how they messed up and were the cells that they had normal or abnormal. So who knows. I'll get the results next week.
The vulvectomy was not too terribly bad. It did hurt but my Dr. gave me a cream to use and I took sitz baths 3 times a day with ocean sea salt. I just tell everyone that my landscape changed. He did have to go deeper and wider than he thought, but my cancer was at the back very close to the rectum but not affecting it. I was able to go back to work after 2 days, but I have a high tolerance for pain. I was blessed that I didn't have to have chemo or use the chemo cream. He got clear margins. But he said it usually would come back so that is why I'm so paranoid.
I hope this helped and take care of yourself. You are your own best advocate.
by lizzydrip on Fri Oct 24, 2008 12:00 AM
I am so glad you got clear margins as that is what they seem to look for and i'm pleased about the smear, my recent smear was clear but again they have told me it could spread to there, can't win really can we ! the chemo cream really is not nice but here in the UK we seem to have good results so fingers crossed, let me know how you get on it's really nice to talk to someone who understands.
by nana4 on Wed Oct 29, 2008 12:00 AM
It is nice to talk to someone that knows where you're coming from. Only your close friends and family knows what you actually went through and then I haven't told them all of it. If you do say vulva people look at your weird.
Take care and you keep me updated OK!
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