Anyone seen this kind of response?

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Anyone seen this kind of response?

by Lucid on Tue Oct 14, 2008 12:00 AM

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A friend with highly advanced Small Cell Lung Cancer (SCLC) underwent chemo, radiation therapy and partook in a very rigorous supplement regimen based untold hours of research. During his chemo, he suffered constant nausea and was unable to keep any food down, losing approximately 20 pounds over the period of the last month when he wasnt able to eat.

After his therapy ended he received  another CT scan showing that his tumor had regressed from 11.4cm x6 cm to 1.8x4 cm! The cross sectional reduction was about 89%. His doctor said that he had never heard of a reduction beyond 50% where as SCLC is such an aggressive and treatment resistant form of cancer. This occured over the period from July 3rd to the begining of this month (I believe around Oct 3) which is 3 months. 

 He largely attributes this atypical outcome to his rigorous supplemental routine; has anyone ever heard of a this much regression? Did people who ultimately go into complete remission experience reductions of magnitude similar to this ? Might it be possible that he is on course for such an outcome?

RE: Anyone seen this kind of response?

by kage2u on Fri Oct 17, 2008 12:00 AM

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On 10/14/2008 Lucid wrote:

A friend with highly advanced Small Cell Lung Cancer (SCLC) underwent chemo, radiation therapy and partook in a very rigorous supplement regimen based untold hours of research. During his chemo, he suffered constant nausea and was unable to keep any food down, losing approximately 20 pounds over the period of the last month when he wasnt able to eat.

After his therapy ended he received  another CT scan showing that his tumor had regressed from 11.4cm x6 cm to 1.8x4 cm! The cross sectional reduction was about 89%. His doctor said that he had never heard of a reduction beyond 50% where as SCLC is such an aggressive and treatment resistant form of cancer. This occured over the period from July 3rd to the begining of this month (I believe around Oct 3) which is 3 months. 

 He largely attributes this atypical outcome to his rigorous supplemental routine; has anyone ever heard of a this much regression? Did people who ultimately go into complete remission experience reductions of magnitude similar to this ? Might it be possible that he is on course for such an outcome?


Lucid :   glad to hear the good news, lets pray it keeps srinking.  I havd SCLC found out 04/03/08.  I took chemo and am a clinical trial patient. my chem did great for a while then the tumors started to grow. mine are small compared to your friend. I have started talking erlotinib and a trial drug along with it. I am praying it works. I feel great. only been taking it for two days now 10/17/08  A friend of mine has been on erlotinib for 2 years and is doing wonderful.  best of luck to your friend                  phillip

RE: Anyone seen this kind of response?

by Becky55 on Fri Oct 17, 2008 12:00 AM

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I would like to know his vitamin secrets. That is just great...but sclc loves chemo...but it will be back. Somewhere I read its like a boat sinking and all the bad cells are drowning in the chemo but they are desparate for air and will do anything to breathe again. My sister is in remission and she had to go into the hospital for the pneumonia again. That is how they found the cancer from having the pneumonia..back to back! She was diagnosed July 3 2008 and this is the worse I have ever seen her since she went in remission. Whats up with that? I thought she would look and feel better. They gave her two blood transfusions, antibiotics and sent her home. Her whole head looks swollen, eyes all puffy, cold sores all over her mouth so its swollen...bald..she looked scary. I feel so bad for her, but she will get over this pneumonia and should for real start feeling better..I pray... what was your second chemo med that is working? That is great news for you, is it in your bones and lymph nodes also? Everybody's cancer is just a little different and the same treatment might not work on someone else with the same disease. My sister needs vitamins, she has never ate a vegetable or fruit in her whole 50 years. All she eats is pizza, chips,nuts and washes it down with beer, while shes smokes a cigerette! Yes...I'm disgusted with her but what can you do...except pray for her.

RE: Anyone seen this kind of response?

by seemysmile2 on Sun Nov 23, 2008 12:00 AM

Quote | Reply

 

On 10/14/2008 Lucid wrote:

A friend with highly advanced Small Cell Lung Cancer (SCLC) underwent chemo, radiation therapy and partook in a very rigorous supplement regimen based untold hours of research. During his chemo, he suffered constant nausea and was unable to keep any food down, losing approximately 20 pounds over the period of the last month when he wasnt able to eat.

After his therapy ended he received  another CT scan showing that his tumor had regressed from 11.4cm x6 cm to 1.8x4 cm! The cross sectional reduction was about 89%. His doctor said that he had never heard of a reduction beyond 50% where as SCLC is such an aggressive and treatment resistant form of cancer. This occured over the period from July 3rd to the begining of this month (I believe around Oct 3) which is 3 months. 

 He largely attributes this atypical outcome to his rigorous supplemental routine; has anyone ever heard of a this much regression? Did people who ultimately go into complete remission experience reductions of magnitude similar to this ? Might it be possible that he is on course for such an outcome?


I have small cell lung cancer. I have constant nausea and sever chronic pain. I took 4 months of radiation and 9 months of chemo, only with the chemo my blood counts were usually 2 bad and i had to miss several chemos. My last scan was a PET SCAN and my dr. told me that my tumor started out at 10 cm and is now l.43. But I have cells in my lymphnodes still. However, he says I am in total remission and then he goes onto say its time we start the Whole Brain Radiation. This is considered preventative care so when cancer comes back it will not attack my brain. I am not so sure if I want to do this.

Sounds like your friend and I have a lot in common based on the reduction of both our tumors, that its not heard of for small cell and that we are considered in total remission. However, I lost 85 lbs. throughout my treatment.  

Let me know how your friend is doing now and ask him please if it was suggested to have "whole brain radiation" for preventative care. Also, what do they do for him pain wise. Even though im in full remission (supposedly) I am in so much pain I caNt stand it. I take 1-2 tablets of 10 mgs oxcodone 6x day  and 60 mg mscontin 2x day. I have every nausea medicine that available and do not find relief for either the nausea or the pain.

hang in there and help your friend stay strong as you have so obviously been doing already.

GOD BLESS

 

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