Although most said they'd let their physician know if asked, survey finds
by pattyt on Tue Oct 14, 2008 12:00 AM
by JimmyMac on Sat Jan 31, 2009 12:00 AM
Hi, I'm in the same situation and have tried the Budwig protocol with know success and now I'm doing the pepper bread protocol with Artemisinin.
Don't know if that is working or not, but it has not relieved any of my pain.
My doctors at CTCA and MUSC are without much hope as far as conventional treatment goes. If anyone knows of anyone hwo has had any luck treating this kind of cancer. Please let the rest of us know.
by pattyt on Sun Feb 01, 2009 12:00 AM
Sorry to hear that none of the protocols you are trying have been working. Could you please explain what those protocols are all about. I'd llike to pass the info on, but have never heard of it. Thanks. How long have you had this cancer? My friend is going on her 3rd year.
by pattyt on Thu Feb 05, 2009 12:00 AM
My friend who has mucoepidermoid carcinoma with lung metastesis just got word that there is a new treatment which I am going to send to you. SHe learned this from her oncologist. I hope it offers you some hope as it did for her. Good luck and let me know how things work out for you.
Radiofrequency Ablation:A Minimally Invasive Technique For Treating Cancer Jason R. Williams MD
Radiofrequency ablation is a relatively new therapy for cancer in which tumors are destroyed using heat energy. A needle is placed through the skin and into the tumor. A radiofrequency is sent through the needle which heats and destroys the tumor. This procedure is performed under conscious sedation and most patients can go home the same day.
There are many advantages of radiofrequency ablation over an open surgical procedure. Patients with multiple lung lesions are often unable to be treated with surgery because too much healthy lung tissue would have to be removed in order to rid the patient of all of the cancerous tissue. Radiofrequency ablation can be used to destroy the tumor while the remainder of the lung is spared. This means that patients can have multiple tumors in both lungs and can still be successfully treated with RF ablation. The same idea also holds true for liver lesions. The other advantage is that RF ablation can be performed multiple times on different occasions. It is very devastating when a tumor recurs after surgical resection. Recurrence after surgery may require another large surgery or may signal the end of the patient's battle with the cancer. RF ablation can be easily performed to treat recurrent tumors.
RF enables treatment of multiple tumor types in various locations that are unable to be successfully treated with surgery. Ablation of liver tumors (including metastatic) has FDA approval and is actually preferred over surgery in many cases. The ablation of lung tumors is an emerging treatment. Radiofrequency ablation of metastatic bone disease has demonstrated significant improvement of pain from the lesions.
Radiofrequency ablation of metastatic disease should improve survival of the cancer patient. Patients with metastatic disease to the lung, liver or bone are usually treated conservatively. The chance for a cure is minimal in these patients. Radiofrequency ablation can be used to treat the metastatic lesion and surgery could be used to treat the primary tumor. For example: A patient with breast cancer and multiple lung metastases would have a very poor prognosis. A mastectomy may treat the breast, but the lung lesions would generally be treated with chemotherapy. Radiofrequency ablation allows physicians to treat the lung metastases while the primary breast lesions are abolished by mastectomy. This would significantly improve the prognosis of the patient.
Radiofrequency ablation is not intended to replace surgery and/or chemotherapy. RF is designed to work in conjunction with these modalities. Chemotherapy causes tumors to be more sensitive to RF treatment and RF ablation can be used to debulk large tumors which allows chemotherapy to be more effective. Surgery can be performed to remove breast and colorectal tumors and RF ablation can treat associated liver and lung metastatic disease.
In summary RF ablation is a minimally invasive method used to treat multiple types of cancers. RF ablation is ideal for treating multiple tumors of the liver and lung and for relieving the pain of those with metastatic bone lesions. RF ablation is ideal for patients that have too many lesions for surgical removal or who are poor surgical candidates because of other coexisting medical conditions.
Jason R. Williams M.D.University of South AlabamaDepartment of Radiologywww.cancerablation.com
by subaru on Tue May 26, 2009 12:00 AM
hello , i have multiple liver, sternum,acetabulum, ribs metastasis.
at the moment i am on colloid silver and electroozone therapy. i will try this protocol .
by Geemj on Thu Mar 28, 2013 07:33 AM
by Geemj on Thu Mar 28, 2013 07:49 AM
by kelbtc on Thu May 16, 2013 12:33 PM
Hi MJ. I was diagnosed with high grade mucoepidermoid of the parotid gland 10/2010. I have had surgery, radiation 3 times (the first time I also had chemo as well). I was wondering how you are doing at this time and what chemo you are using? Thanks, Kel
by mherlz on Sun Jul 14, 2013 08:25 AM
Hi kel, i was also diagnosed with mucoepidermoid high grade ca of the
parotid aug 2012; surgery - parotidectomy, imrt high dose and chemotherapy high dose was done, every 3 mos i need a ff-up repeat ct scan and and a yearly pet scan to monitor possible mets and the tumor that was left attached to my internal carotid artery, rt now im ok and back to work. Mherlz.
by Geemj on Sun Jul 14, 2013 06:32 PM
On May 16, 2013 12:33 PM kelbtc wrote: Hi MJ. I was diagnosed with high grade mucoepidermoid of the parotid gland 10/2010. I have had surgery, radiation 3 times (the first time I also had chemo as well). I was wondering how you are doing at this time and what chemo you are using? Thanks, Kel
On May 16, 2013 12:33 PM kelbtc wrote:
Sorry to be so late in getting back to you. To answer your question: I am feeling fine. The cancer has spread to my lungs, but the tumors are stable and have not grown any in the last several months. The chemo I am on is a combination of carboplatin and everolimus.
So how are you doing? The fact that your diagnosis was more than a year sooner than mine, and that you are still around gives me hope.
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