treatment for mucoepidermoid carcinoma which metastised to lungs

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treatment for mucoepidermoid carcinoma which metastised to lungs

by pattyt on Tue Oct 14, 2008 12:00 AM

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A good friend of mine was diagnosed with mucoepidermoid carcinoma about 3 years ago.  After surgery to remove the tumor in the salivary gland, she rec'd  radiation.  Three or four months after stopping radiation a few nodules were found on her lung, but nothing was done with them.  Next time she was checked, more nodules appeared and she had a biopsy.  THey diagnosed her with mucoepidermoid carcinoma which had spread to the lungs.  SHe now has 14 nodules on the lungs.  Her cancer is high grade.  SHE's been going through chemo since then - taxol and another chemo med.  Her last PET scan showed that the nodules had grown.  After conferring with the DRs. at SLoan Kettering, they had no answers and we are at a loss.  They will continue her chemo as it has been, because she is currently asymtomatic and is feeling quite good.  IF anyone has any similar situation that they can share, any treatments, ideas, it would be greatly appreciated.  Supposedly this is a very rare type of situation, and thus the doctors are not able to provide alot of data to offer alternative treatments. 

RE: treatment for mucoepidermoid carcinoma which metastised to lungs

by JimmyMac on Sat Jan 31, 2009 12:00 AM

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Hi, I'm in the same situation and have tried the Budwig protocol with know success and now I'm doing the pepper bread protocol with Artemisinin.

Don't know if that is working or not, but it has not relieved any  of my pain.

My doctors at CTCA and MUSC are without much hope as far as conventional treatment goes. If anyone knows of anyone hwo has had any luck treating this kind of cancer.  Please let the rest of us know.

RE: treatment for mucoepidermoid carcinoma which metastised to lungs

by pattyt on Sun Feb 01, 2009 12:00 AM

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HI,

Sorry to hear that none of the protocols you are trying have been working.  Could you please explain what those protocols are all about.  I'd llike to pass the info on, but have never heard of it.  Thanks.  How long have you had this cancer?  My friend is going on her 3rd year. 

Patty

RE: treatment for mucoepidermoid carcinoma which metastised to lungs

by pattyt on Thu Feb 05, 2009 12:00 AM

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Hi,

My friend who has mucoepidermoid carcinoma with lung metastesis just got word that there is a new treatment which I am going to send to you.  SHe learned this from her oncologist.  I hope it offers you some hope as it did for her. Good luck and let me know how things work out for you. 

Patty

Radiofrequency Ablation:
A Minimally Invasive Technique For Treating Cancer

Jason R. Williams MD

Radiofrequency ablation is a relatively new therapy for cancer in which tumors are destroyed using heat energy. A needle is placed through the skin and into the tumor. A radiofrequency is sent through the needle which heats and destroys the tumor. This procedure is performed under conscious sedation and most patients can go home the same day.

There are many advantages of radiofrequency ablation over an open surgical procedure. Patients with multiple lung lesions are often unable to be treated with surgery because too much healthy lung tissue would have to be removed in order to rid the patient of all of the cancerous tissue. Radiofrequency ablation can be used to destroy the tumor while the remainder of the lung is spared. This means that patients can have multiple tumors in both lungs and can still be successfully treated with RF ablation. The same idea also holds true for liver lesions. The other advantage is that RF ablation can be performed multiple times on different occasions. It is very devastating when a tumor recurs after surgical resection. Recurrence after surgery may require another large surgery or may signal the end of the patient's battle with the cancer. RF ablation can be easily performed to treat recurrent tumors.

RF enables treatment of multiple tumor types in various locations that are unable to be successfully treated with surgery. Ablation of liver tumors (including metastatic) has FDA approval and is actually preferred over surgery in many cases. The ablation of lung tumors is an emerging treatment. Radiofrequency ablation of metastatic bone disease has demonstrated significant improvement of pain from the lesions.

Radiofrequency ablation of metastatic disease should improve survival of the cancer patient. Patients with metastatic disease to the lung, liver or bone are usually treated conservatively. The chance for a cure is minimal in these patients. Radiofrequency ablation can be used to treat the metastatic lesion and surgery could be used to treat the primary tumor. For example: A patient with breast cancer and multiple lung metastases would have a very poor prognosis. A mastectomy may treat the breast, but the lung lesions would generally be treated with chemotherapy. Radiofrequency ablation allows physicians to treat the lung metastases while the primary breast lesions are abolished by mastectomy. This would significantly improve the prognosis of the patient.

Radiofrequency ablation is not intended to replace surgery and/or chemotherapy. RF is designed to work in conjunction with these modalities. Chemotherapy causes tumors to be more sensitive to RF treatment and RF ablation can be used to debulk large tumors which allows chemotherapy to be more effective. Surgery can be performed to remove breast and colorectal tumors and RF ablation can treat associated liver and lung metastatic disease.

In summary RF ablation is a minimally invasive method used to treat multiple types of cancers. RF ablation is ideal for treating multiple tumors of the liver and lung and for relieving the pain of those with metastatic bone lesions. RF ablation is ideal for patients that have too many lesions for surgical removal or who are poor surgical candidates because of other coexisting medical conditions.

Jason R. Williams M.D.
University of South Alabama
Department of Radiology
www.cancerablation.com

RE: treatment for mucoepidermoid carcinoma which metastised to lungs

by subaru on Tue May 26, 2009 12:00 AM

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hello , i have multiple liver, sternum,acetabulum, ribs metastasis.

at the moment i am on colloid silver and electroozone therapy. i will try this protocol .

subaru

 

http://www.medicalacupuncture.org/aama_marf/journal/vol17_1/

RE: treatment for mucoepidermoid carcinoma which metastised to lungs

by Geemj on Thu Mar 28, 2013 07:33 AM

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Hi. I am new to this website, even tho it hs been going for several years. I have the same condition as you described. A few months ago my oncologist said this was not curable and that I had maybe 6 months. So I started to look for what others may have experienced. I am interested in an update on your friend. What you posted 4 years ago is encouraging. How is your friend doing now, if I may ask? For my part, when we learned that the cancer had spread to my lungs, they found over 60 tumors, two of which were about 3 cm. We decided to use radiation on those two because if they grew very much, they would interfere with air flow to the rest of the lungs. After 15 treatments, they had shrunk by more than 20 %. With this good news the doctor decided to try chemo. After two months of this, I have no new tumors and the rest of them have shrunk about 20%. I am continuing with the chemo and will get some more pictures in another two months. So I guess I wil be around at least that much longer. MJ

RE: treatment for mucoepidermoid carcinoma which metastised to lungs

by Geemj on Thu Mar 28, 2013 07:49 AM

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As I said, I am new to this process. I really intended my entry to be addresses to Patty, whose friend had pretty much what I have. After surviving three years of chemo and other treatments, she was starting on RF ablation, I think, and I am very interested in the outcome. MJ

RE: treatment for mucoepidermoid carcinoma which metastised to lungs

by kelbtc on Thu May 16, 2013 12:33 PM

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Hi MJ. I was diagnosed with high grade mucoepidermoid of the parotid gland 10/2010. I have had surgery, radiation 3 times (the first time I also had chemo as well). I was wondering how you are doing at this time and what chemo you are using? Thanks, Kel

RE: treatment for mucoepidermoid carcinoma which metastised to lungs

by mherlz on Sun Jul 14, 2013 08:25 AM

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Hi kel, i was also diagnosed with mucoepidermoid high grade ca of the 

parotid aug 2012; surgery - parotidectomy, imrt high dose and chemotherapy high dose was done, every 3 mos i need a ff-up repeat ct scan and and a yearly pet scan to monitor possible mets and the tumor that was left attached to my internal carotid artery, rt now im ok and back to work. Mherlz.

RE: treatment for mucoepidermoid carcinoma which metastised to lungs

by Geemj on Sun Jul 14, 2013 06:32 PM

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On May 16, 2013 12:33 PM kelbtc wrote:

Hi MJ. I was diagnosed with high grade mucoepidermoid of the parotid gland 10/2010. I have had surgery, radiation 3 times (the first time I also had chemo as well). I was wondering how you are doing at this time and what chemo you are using? Thanks, Kel

Kel,

Sorry to be so late in getting back to you.  To answer your question:  I am feeling fine.  The cancer has spread to my lungs, but the tumors are stable and have not grown any in the last several months.  The chemo I am on is a combination of carboplatin and everolimus.  

So how are you doing?  The fact that your diagnosis was more than a year sooner than mine, and that you are still around gives me hope.  

MJ

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