paroid gland (salivary gland)

7 Posts | Page(s): 1 

paroid gland (salivary gland)

by sanpep on Thu Oct 16, 2008 12:00 AM

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Wow, I thought I was alone with this symptom.  After 2 surgeries,numerous doses of RAI 131, intense radiation, quaranteened in hospital for 3 days, I thought I was cured.  About a year after last treatment, eating lunch one day, intense pain in right side of my face and I looked like a lopsided chipmunk.  I would massage my face/jaw, put heat paks, covered the lump with my hair.  I tried everything I could think of.  I was afraid it was cancer again.  I moved and went to new endo, this quack wanted to cut my face apart, told me cancer spread.  Totally freaked out, I went to Sloan Kettering in NYC.  Drs. there told me absoltely normal, this is damage to the salivary gland duct, sometimes it repairs itself, but if not over time, pain wont be as intense.  Well 5 years later, only sour stuff, gets it going  I can now eat and chew and not be embarassed because one side of my face blows out.  Bottom line, dont worry, it gets better on its own.

sandy NJ

RE: paroid gland (salivary gland)

by georgetwo on Thu Oct 16, 2008 12:00 AM

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Yes, I finally saw the endo today and that is exactly what he said. He said Ice or cold packs will take down the inflammation and gentle massage would be good to move the saliva  down through the gland and it would become less swollen and unblocked. He also said that if it will not go down over time, that seeing a dental surgeon to make a small slit in the gland to get the blockage to be gone, but as a last resort, as it should disolve on its own.

He also said it is no coincidence that all of us are having the same issues, because after the RAI treatment, it is much more common to have this type of blockage in the parotid glands.

Hope that helps.

 

RE: paroid gland (salivary gland)

by SUZYQ55 on Mon Oct 20, 2008 12:00 AM

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I too have this type of swelling in my right cheek after eating.  This started to happen about 10 months after RAI.

I also seem to eat a lot slower than before and find little bites do not seem to cause as much pain or swelling.  I find bread very difficult to eat as I do not get enough saliva to moisten it and  I end up with a ball of dry food in my mouth unless I have small sips of liquid with the bread while I chew it. Sounds gross maybe but true.

I am glad to hear that this can be self repairing over time.  Thanks for that information. 

RE: paroid gland (salivary gland)

by jh1973 on Tue Oct 21, 2008 12:00 AM

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I am so glad I found this website.  I received my second RAI in May of this year.  2 weeks ago I started getting horrible pain in my right cheek which then spread to my left.  My primary doctor said it was the Mumps and that it would pass.  My Radiation Oncologist still hasn't returned my call (I'll take care of that later).  Today I couldn't get the salty taste out of my mouth so I googled the symptoms and here I am!  I've read peoples posts about this and it sounds like we all have experienced the same pain.  I'm hoping it passes soon.

RE: paroid gland (salivary gland)

by SweetPea24 on Thu Oct 23, 2008 12:00 AM

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I had the same thing happen to me about 6mths after the treatment.  Everytime i even thought about food my glands would swell up and I would look like a chipmunk.  I called my Endo and they prescribed Prednisone (i think thats how its spelled).  Im not sure if it helped, but about 2 months later the swelling went away.  This side effect only happened with the abalation treatment and not the small dose given for the scan.

RE: paroid gland (salivary gland)

by greengoddess11 on Sat Dec 06, 2008 12:00 AM

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I had this problem as well. It happened about three months after my RIA treament.(thought I had mumps) I was so scared and no one could tell me what it was. I went to a ear nose throat specialist and he told me it was damage from the RAI. He also said I would have to live with it for the rest of my life! Boy was he wrong! It lasted for six months and now I have no swelling in my checks anymore! I do still have swelling near the entrance of  the saliva tubes that lead into my mouth (inside my cheecks)  that still has yet to go away. Over all I am just glad that I can eat with out looking like a chipmunk! Good Luck!!!

RE: paroid gland (salivary gland)

by greengoddess11 on Sat Dec 06, 2008 12:00 AM

Quote | Reply
I had this problem as well. It happened about three months after my RAI treament.(thought I had mumps) I was so scared and no one could tell me what it was. I went to a ear nose throat specialist and he told me it was damage from the RAI. He also said I would have to live with it for the rest of my life! Boy was he wrong! It lasted for six months and now I have no swelling in my checks anymore! I do still have swelling near the entrance of  the saliva tubes that lead into my mouth (inside my cheecks)  that still has yet to go away. Over all I am just glad that I can eat with out looking like a chipmunk! Good Luck!!!
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