Small study showed high accuracy but hurdles remain, two experts said
by sanpep on Thu Oct 16, 2008 12:00 AM
Wow, I thought I was alone with this symptom. After 2 surgeries,numerous doses of RAI 131, intense radiation, quaranteened in hospital for 3 days, I thought I was cured. About a year after last treatment, eating lunch one day, intense pain in right side of my face and I looked like a lopsided chipmunk. I would massage my face/jaw, put heat paks, covered the lump with my hair. I tried everything I could think of. I was afraid it was cancer again. I moved and went to new endo, this quack wanted to cut my face apart, told me cancer spread. Totally freaked out, I went to Sloan Kettering in NYC. Drs. there told me absoltely normal, this is damage to the salivary gland duct, sometimes it repairs itself, but if not over time, pain wont be as intense. Well 5 years later, only sour stuff, gets it going I can now eat and chew and not be embarassed because one side of my face blows out. Bottom line, dont worry, it gets better on its own.
by georgetwo on Thu Oct 16, 2008 12:00 AM
Yes, I finally saw the endo today and that is exactly what he said. He said Ice or cold packs will take down the inflammation and gentle massage would be good to move the saliva down through the gland and it would become less swollen and unblocked. He also said that if it will not go down over time, that seeing a dental surgeon to make a small slit in the gland to get the blockage to be gone, but as a last resort, as it should disolve on its own.
He also said it is no coincidence that all of us are having the same issues, because after the RAI treatment, it is much more common to have this type of blockage in the parotid glands.
Hope that helps.
by SUZYQ55 on Mon Oct 20, 2008 12:00 AM
I too have this type of swelling in my right cheek after eating. This started to happen about 10 months after RAI.
I also seem to eat a lot slower than before and find little bites do not seem to cause as much pain or swelling. I find bread very difficult to eat as I do not get enough saliva to moisten it and I end up with a ball of dry food in my mouth unless I have small sips of liquid with the bread while I chew it. Sounds gross maybe but true.
I am glad to hear that this can be self repairing over time. Thanks for that information.
by jh1973 on Tue Oct 21, 2008 12:00 AM
by SweetPea24 on Thu Oct 23, 2008 12:00 AM
by greengoddess11 on Sat Dec 06, 2008 12:00 AM
When you track a discussion, you will get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to track this discussion?
If you stop tracking this discussion, you will no longer get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to stop tracking this discussion?
We care about your feedback. Let us know how we can improve your CancerCompass experience.