what does it mean if the tumor is growing again?

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what does it mean if the tumor is growing again?

by sisterlove on Sun Oct 19, 2008 12:00 AM

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Hi my sisters was diagnosed with stage1V nsclc in Nov, 2007. She responded well to treatment and was told tumor was shrinking. She was just told last week her tumor is growing again and lymph nodes are getting worse. Tarceva is no longer working. Was she is remission and now she is not? What does this mean? She is 45 and is a nonsmoker, I am overwhelmed with what this means, and everything I read is all negative.I'm so scarred I don't really know what this means for her.

 

RE: what does it mean if the tumor is growing again?

by Chessie on Mon Oct 20, 2008 12:00 AM

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On 10/19/2008 sisterlove wrote:

Hi my sisters was diagnosed with stage1V nsclc in Nov, 2007. She responded well to treatment and was told tumor was shrinking. She was just told last week her tumor is growing again and lymph nodes are getting worse. Tarceva is no longer working. Was she is remission and now she is not? What does this mean? She is 45 and is a nonsmoker, I am overwhelmed with what this means, and everything I read is all negative.I'm so scarred I don't really know what this means for her.

 


Sorry to hear about your sister.  It sounds like the cancer is progressing based on what you've written.  Once it is in the lymphnodes, it is called systemic, meaning it can travel to any part of the body and form metastasis.  Just because the tumor was shrinking, that was good but it doesn't mean remission. 

If the tarceva has stopped working, she needs to have the oncologist try another treatment type or maybe even a clinical trial.  Doing nothing should not be an option.  If they do not want to try something else, find another doctor and get a second opinion.  If your sister wants to really fight this beast, she must be aggressive.  Ask straight forward questions and expect/demand straight forward answers.  This is HER LIFE.  Not a game.  Be assertive. 

Let us know if we can help.  God Bless you all on this journey. 

RE: what does it mean if the tumor is growing again?

by sisterlove on Mon Oct 20, 2008 12:00 AM

Quote | Reply

 

On 10/20/2008 Chessie wrote:

 

On 10/19/2008 sisterlove wrote:

Hi my sisters was diagnosed with stage1V nsclc in Nov, 2007. She responded well to treatment and was told tumor was shrinking. She was just told last week her tumor is growing again and lymph nodes are getting worse. Tarceva is no longer working. Was she is remission and now she is not? What does this mean? She is 45 and is a nonsmoker, I am overwhelmed with what this means, and everything I read is all negative.I'm so scarred I don't really know what this means for her.

 


Sorry to hear about your sister.  It sounds like the cancer is progressing based on what you've written.  Once it is in the lymphnodes, it is called systemic, meaning it can travel to any part of the body and form metastasis.  Just because the tumor was shrinking, that was good but it doesn't mean remission. 

If the tarceva has stopped working, she needs to have the oncologist try another treatment type or maybe even a clinical trial.  Doing nothing should not be an option.  If they do not want to try something else, find another doctor and get a second opinion.  If your sister wants to really fight this beast, she must be aggressive.  Ask straight forward questions and expect/demand straight forward answers.  This is HER LIFE.  Not a game.  Be assertive. 

Let us know if we can help.  God Bless you all on this journey. 


 

Thank you so much for that advice. My sister is waiting to get on a clinical trial drug with Pfizer. I don't think she wants to know what this means. When I talk about this she sounds like this is a small set back. I'm worried because this doesn't sound good. The doctors say very little. She won't ask questions, so I have been trying to find out anything I can. Does stage1V go into remission? Does Tarceva usually work for a longer period of time, or does it just vary from person to person? I'm the person who needs to know everything, and my sister is the person who wants to know very little. Is there a middle ground when we talk about her illness? I'm positive and just supports her however she needs me too,but I want to make sure she is getting the best care and being aggressive enough.

 

God bless you and thank you again 

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