Follow Up

Hello All

Well, it's been a hell of a week. I had a PET on Monday for the lymphatic system and an MRI for the brain on last Thursday. Lots of good news and a bit of still bad news. My organs and lymph nodes are clean, the brain is still out to the jury (I think I have one in there). I still will have a below the knee on Thursday, and am ready for it. I have a great prosthetic therapy guy (I played softball with him this last summer) and he wants to set me up with a prosthetic company in the local area that worked with Walter Reed and the boys coming back from the war's. I know many amputee's from the war's and I was delighted with the news, considering I live in very rural North Eastern Iowa. They are Clark and Associates in Waterloo, IA and have some really high speed prosthetics.

My very new wife flies in tomorrow, and my baby sister flies in on the the 11th. I will NOT be alone. The brain stuff scares me a bit. The wife does a bit too. LOL. 

They already have told I will live with this for the rest of my life. Minimum CT scans every 3 months. PET when necessary.

But, ya know what.......if I can walk away from this with a cool prosthetic, diasese free, and still able to give my new wife the loving she deserves....I will be a VERY fortunate man.

I have re-evaluated much of my life, and what I have done. I have NO regrets, but want to live the life I should have since the day I was born. Take nothing for granted my friends.

Love and prayers

VonTuck 

 

 

 

Admin

Please put this post on the

Diagnosed With Clear Cell Sarcoma (Soft Tissue Melanoma)
Date: 10/30/2008

Thread.....I didnt do that correctly.  

My apologies. Thank you

 

 

On 11/7/2008 onelegwarrior wrote:

Hello All

Well, it's been a hell of a week. I had a PET on Monday for the lymphatic system and an MRI for the brain on last Thursday. Lots of good news and a bit of still bad news. My organs and lymph nodes are clean, the brain is still out to the jury (I think I have one in there). I still will have a below the knee on Thursday, and am ready for it. I have a great prosthetic therapy guy (I played softball with him this last summer) and he wants to set me up with a prosthetic company in the local area that worked with Walter Reed and the boys coming back from the war's. I know many amputee's from the war's and I was delighted with the news, considering I live in very rural North Eastern Iowa. They are Clark and Associates in Waterloo, IA and have some really high speed prosthetics.

My very new wife flies in tomorrow, and my baby sister flies in on the the 11th. I will NOT be alone. The brain stuff scares me a bit. The wife does a bit too. LOL. 

They already have told I will live with this for the rest of my life. Minimum CT scans every 3 months. PET when necessary.

But, ya know what.......if I can walk away from this with a cool prosthetic, diasese free, and still able to give my new wife the loving she deserves....I will be a VERY fortunate man.

I have re-evaluated much of my life, and what I have done. I have NO regrets, but want to live the life I should have since the day I was born. Take nothing for granted my friends.

Love and prayers

VonTuck 

 

 

 

 

May I ask you where your sarcoma first began? My husband was diagnosed with liposarcoma in 2006. He had a 19 lb mass removed from his stomach as well as his right kidney, right adrenal gland, the spleen and part of his pancreas.  It returned after 12 months in the pelvis and had another major surgery in January of this year to remove an 11 lb tumor. Everything so far had been on the left side. At the 3 month follow-up in April we were blindsided....it now was on his right lung in 2 places. As well as another large mass in his abdomen on the right side. He has had several rounds of chemo and nothing has changed much. The mass in his abdomen actually grew. He had a CT Scan today and Monday we will find out the results. What I am wondering is it possible for this to metastasize in the brain?