One patient with glioblastoma still alive nine years later
by Jessica_San_Diego on Wed Nov 19, 2008 12:00 AM
by jcr65566 on Wed Nov 19, 2008 12:00 AM
On 11/19/2008 Jessica San Diego wrote:Hi everyone.. my brothers young wife (20yrs old) just got diagnosed with stomach cancer stage 4. They have a 1 year old daughter and we are in complete shock, devastated, heartbroken to say the least. I am looking for information and found this great place and read some of your stories. Unfortunatly, my sister in law is in mexico and I dont know what kind of treatment she can receive there but I am looking searching hoping for any information that can help her. I am not sure what her progrosis is but from what i have read it looks like stage 4 , well is pretty bad and well survival is not at a good rate. I am scared for her and i havent even had the courage to call her yet, we just found out earlier this week. any information, anything is helpful. thank you.Jessica
hi Jessica sorry for what you and your sister are going though. I had three family members diagnosed with stomach cancer stage 4 didn’t tern out to good. I have advance prostrate cancer, chemo dos not work on it so I have to find other ways to fight it. I use large amounts of vitamins and minerals I advise you and you sister to do research on the net. I’m doing research at the moment with my doctor on the Dr Bob Beck protocol if you want to do some reading on it go to this site http://www.cancertutor.com/Cancer02/BobBeck-MP.html
next week I finish it, then I be doing research on selenium. I have read about selenium and there is evidence it can help a lot with cancer I be taking selenium every day, 400mg. of it. I know it not banned in Australia or the US see how it go’s take care and God bless you both Ray
by momwithkids on Wed Nov 19, 2008 12:00 AM
I am sorry to hear about your sister in law and the awful diagnosis she just received. My 43 year old spouse was diagnosed with Stage IV last year and is cancer free today. Her story is outlined below. Please let me know if there is any other info I can provide. My only other advice might involve trying to get her to the states for treatment once you (or your brother) get an idea of what they can do in Mexico.
An important reminder is NOT, in my opinion, to put too much into what you read on the internet since all it takes is your sister in law to be one of the ones that does well.
My 43 year old spouse was diagnosed with Stage IV in March of 07. She initially presented with acute pain at her GI Junction that was relieved with over the counter prilosec and diet modification; however, we were not satisfied that the pain was simply caused by reflux and demanded an endoscopy which identified the stomach cancer. The news got worse as further scans revealed a single tumor in her liver; they were 3cm and 4cm respectively. Wow, moving from Stage I to Stage IV sure did not take long.
She immediately started on ECF (Epirubicin, Cisplatin, and 5FU) and after four rounds (each three weeks long) the tumors were no longer detectable on scans and she was classified as being in remission. After many second (and third and fourth) opinions it was decided not to do surgery in her case and she continued on ECF for another two months. She experienced nausea with these treatment but a drug called Emend worked really well to decrease the symptoms.
Post her initial round of treatments the scans were still clear and we changed her chemo regimen to Oxaliplatin and Xeloda (initially 5,000mg/day but quickly reduced to 4,000mg/day); she continued on this regimen for another 4 months before switching to just 5FU delivered every two week through her port (she was on this for the next 4 months).
After more than a year of chemo, our oncologist suggested a break and to 'see what happens,' however our second and third opinions disagreed and she started again on Xeloda (also known as capecitabine) which she takes orally. Unfortunately about 8 months into her treatments she developed a blood clot on her pancreas and had to start on coumadin - this was not a problem until we switched back to Xeloda which cannot be combined with coumadin so now we inject her daily with a lovenox type drug (this drug cost a pretty penny).
So here we are a year and a half post diagnosis and she remains on chemo with the advice of multiple oncologists (from Dana Farber, Sloan Kettering, Yale New Haven, and Columbia) all suggesting that she basically stay on a chemo treatment for as long as her body can tolerate it.
Through it all she has completed her Master's in early childhood education, received her teachers certificate and started back to work fulltime. She remains in good health, has lost no weight and is motivated to continue the battle. Initially she did have some nausea but a drug called emend took care of that, lost her hair (and has now grown it back and she used a good quality wig which helped her deal with it), lost layers of skin on her feet (this grew back to), lost some sensation in her hands and feet (feeling came back but not to where it was prior to seeking treatment). As important as anything, her attitude has remained strong with a confidence that she can BEAT IT. So far she has. Praying hasn’t hurt her any either.
That is her story so far. She is very lucky as we caught it early and have had access to multiple professional opinions from leading cancer centers. Also, that my mother in law (her mom) is an organizational wiz and we all have color coded binders with every test, every scan, every physician note, and every step of her treatment – this is a MUST HAVE to keep track of it all and be able to present the entire case study to physicians for their opinions (they will only be as good as the information they have to review). There are other success stories on this site. We continue to take it a day at a time. Since August of 07 we have had no signs of the cancer returning and sincerely hope it never does.
I hope this information helps.
Mar 07 Apr 07 Aug 07
Diagnosed Starts ECF Scans Clear
Oct 07 Mar 08 Aug 08
Changes Chemo to Switches to Changes to
Oxaliplatin/Xeloda Just 5FU Xeloda only
Good luck, our prayers are with you and your brother, his wife, and his young daugther.
STEVE (aka momwithkids)
by Ajr2008 on Thu Nov 20, 2008 12:00 AM
by uhs1985 on Sun Nov 23, 2008 12:00 AM
by Nacho_Balls on Sat Nov 29, 2008 12:00 AM
by jcr65566 on Sat Nov 29, 2008 12:00 AM
hi Jessica for got to tell you about Dr Sinomcini web site on treating stomach cancer with Bi-cab soda just click on his web site an read
by richwakey on Tue Nov 02, 2010 09:10 AM
hi jessica,so sorry to hear your devastating news,my prayers are with you&your family,last year my 36yr lold wife got diagnosed with diffuse stomach cancer,it had spread everywere,we were told that her life expectancy was 2-5 yrs,we were obviously devastated,we have 2 little girls,after diagnosis,my wifes health rapidly deteriorated,she lost somuch weight&after a intense chemo programme she was admitted to the hospicewere sadly just 4 weeks later she lost her brave fight against this cruel disease,iam now having our daughters tested to see if there is a genetic link,with my wifes young age there is a strong chance there could be,godbless.richard
by pinkhouse on Tue Nov 02, 2010 10:19 AM
First and foremost, call her. Even if you just tell her that you have heard the diagnosis and that you love her and are thinking of her.
Just knowing that somebody took the time to call and say that they are thinking of you can mean the world.
Because the longer you do not call the longer they feel alienated and alone. You do not have to heal them - just be there and care.
by Katherine62 on Tue Nov 02, 2010 01:21 PM
What a minute...I followed the link to the Sodium Bicarbonate Cancer cure. This "doctor" claims to be able to cure all forms of cancer - not just one type but all types. And NO ONE is willing to do scientific research on his cure...hmmm something seems a little odd. What could be causing the medical field to back off....could it be the good doctors belief that because fungi are white and tumors are white that all cancer is caused by fungus. I know that serial killers drank milk as children; thereby confirming that milk causes serial killers.
Then I read his disclaimer...now it makes sense. I took the liberty of highlighting the text that helped me see the light. It is people like this that should be sent to Dante's lowest level of Hell. That would be in line with Dante's beliefs about the different levels of Hell, after all the good doctor is also a Doctor of Philosophy.
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Here's someone debunking this on their blog: http://scienceblogs.com/insolence/2009/12/arm_hammer_baking_
A cancer site weighs in: http://www.cancerdecisions.com/content/view/228/2/lang,engli
What? the good doctor is going to jail? http://anaximperator.wordpress.com/2009/11/21/career-boost-f
Simoncini has been disbarred from Italian Medical practice and his license revoked.
Why did I take the time to respond to this discussion? It is simple - I hate scams.
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If you were considering traveling for cancer treatment, which headline would you find more interesting?
Destination: HOPE. Cancer care that is worth the trip.
Over 84% of our patients travel to our hospital from another state
Neither headline is interesting
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