Stage 4 colon cancer and scared

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RE: Stage 4 colon cancer and scared

by Cptmac on Mon Nov 24, 2008 12:00 AM

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From a Stage IV survivor who was diagnosed in July of 2004.  I was originally told that I had 6 to 9 months to live with treatment, but that I could die at any moment. 

I then did a lot of research and went to the right hospital for me. 

I have been without disease since September of '04.  I stopped all chemo and any treatment in June of '05.   

1) what are his treatment options? (types of chemo, new treatments, clinical trials, alternative, etc)

They are all different and you will be given options.  I chose to sign up for a Stage II clinical trial.  Most the people on the trial are doing quite well. 

2) what is a cancer fighting diet and lifestyle he can do?

Before you change anything, talk to your doctor.  My docs, including a nutritionist, all said that my blood was good.  So I wasn't to change my diet with a few exceptions.  I needed to eat a lot of red meat and protein after my liver resection.  This would help my liver regrow.  I was in the hospital, and every day for breakfast I got two eggs, two bacon and two sausage.  I asked my docs if I should worry about my cholesterol.  They told me I could worry about my cholesterol later.  My cholesterol stayed normal.  My liver is 95% of it's original size.  My docs warn me to make sure I tell other docs that I've had this surgery, because it's not easy to tell on my CT. 

Also, I wasn't eating enough fat.  Before the residents injected me with fat, the nurses stepped in and rolled their eyes at the docs.  I guess docs want to fix everything by putting it into your IV.  The nurses all got together and bought me a chocolate cake.  I wasn't hungry for it, so it sat for half a day (and warnings from the docs that would inject me with fat) if I didn't start eating it.   

I was told that now was the time to eat a lot of junk food, because I didn't want my body to fight starvation and the cancer.

I did give up coca-cola.  However, none of the nausea meds worked.  Coca-cola was the only thing that did the trick.  My docs were right, I shouldn't have changed my diet. 

I'm half Japanese and I used to drink a ton of green tea, and hardly ate any red meat.  I joined the military and was in great shape.  I'm a girl and I ran 2 miles in less than 14 minutes, I did 68 push-ups in 2 minutes and did 84 sit ups in 2 minutes. 

So, I agreed with my docs, that if they could have cured colon cancer with diet and exercise, they would have done it a long time ago.  People like me, it's just bad luck that I get it.  I know some people who are obese and eat horrible food, and they've lived well into their 80's and 90's.     

However, that doesn't mean you should eat this diet.  Check with your docs, see what they say.  When you go through this journey, again, you will find that different things work for different people.  We can let you know what worked for us.     

3) what should i do to make sure i dont have it (im 19 but i have been feeling crappy for a few months) 

Get genetically tested, then you'll know if you carry the gene.  Or, you could get colonoscopies 10 years from when the person was diagnosed, unless it's stage IV.  It takes ten years for a polyp to develop into colon cancer.  Colon cancer is slow growing.  So I was diagnosed with Stage IV when I was 43.  Docs guessed it started when I was 16. 

4) and anything else anyone thinks i should know to help

If your docs give you no hope, go someplace else. 

Come here and ask any question you may have. 

Remember, we are not docs, but we can give you  options to go back and ask your doc.   

 

RE: Stage 4 colon cancer and scared

by Life_lived_long on Mon Nov 24, 2008 12:00 AM

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Hi-

My Mother was diagnosed with stage IV colon cancer in April 2007. She was also very healthy before her diagnosis. I feel for you and what you are going through.

After  all that my Mom has been through, I would offer the following advice:

1. Do your best to get your Dad into a great cancer facility. My Mom felt that the care she could get locally would be sufficient. She was tired, and didn't want to travel for chemo. After my Mother was given 24 weeks of chemo (Avastin and Folfox 5) at her local cancer care center, she was given a death sentence. They literally told her to go home and get her affairs in order. She stopped taking treatment at their advice, the cancer progressed at lightening speed, and a lot of time was wasted. After hearing a story on my local news, I insisted that my Mom see a Dr. in my city, and her care has been amazing. She was near death when her second round of treatments began at the new facility, and she has now had six months of  reasonably high quality time that she would not have had otherwise.  

2. Do as much research as you can, and don't be timid about  discussing what you learn with your onocologist. You need to know as much as you can to get through this. As your dad received chemo, mental confusion is really common. If you are able to understand what the dr. is saying at the appointments, and are able to ask relevant questions, you will be a great help to your Dad. 

3.There are clinical trials taking place all over the city. Talk to your onocologist about these programs. Also, you can contact studies directly with information listed through the clinicaltrials.gov website.

There is a lot more that I could say, but I think that the advice given here by the people who are survivors is great-I am just an observer. The point is be proactive, and be an advocate for your Dad. Dr's don't know everything, and in our experience, they do not notify you of all options. One Dr. may feel that a treatment is not in your best interest, but that doesn't mean that the next Dr. will agree. 

 

 

RE: Stage 4 colon cancer and scared

by Weadocm on Mon Dec 01, 2008 12:00 AM

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Scared, we were, too. Then we got mad and started fighting. Four years later, we are still fighting and dad is not only surviving but thriving. Thanks to the amazing Dr. Ahmed Ghany at OHIO STATE and Dr. David Geller at UPMC, he had great collaborative care and surgery and came out great. Dr. Geller can be contacted via email if you aren't in the area:

Thomas E. Starzl Transplantation Institute
3459 Fifth Ave.
UPMC Montefiore, 7 South
Pittsburgh, PA 15213-2582
412-692-2001
Fax: 412-692-2002
E-mail: gellerda@upmc.edu

 

if this doesn't work, dr. auckerman has helped many through diet when all other options ran out...

Dr Glen Frederick Aukerman

Northwood-High Building
Center For Integrative Medicine
Columbus, OH 43221

Phone: (614) 293-9777

Email: aukerman.1@osu.edu

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