graph vs host

Hi

My Mom had a bone marrow transplant in February of 2007.  Doing well except severe graph vs host in her mouth and bottom lip.  Some of it is in her throat as well, as she has to chew her food into very little bites before swallowing or else she can choke on it as it gets stuck.  Basically the inside of her mouth along the whole bottom and side is like an open wound, and her lip on the outside is always like it's been burnt but never healed.  VERY painful for her and very difficult to eat.  The doctors are doing the usual treatment but not helping.  Wondering if anyone else has had graph vs host in this area and besides the usual medicine did you use anything else that worked.  My family is just grateful she is alive and well and she is a very strong, determined person.  I'm just trying to find out some other options for her.  Thanks

Suzanne

On 11/30/2008 suzann wrote:

Hi

My Mom had a bone marrow transplant in February of 2007.  Doing well except severe graph vs host in her mouth and bottom lip.  Some of it is in her throat as well, as she has to chew her food into very little bites before swallowing or else she can choke on it as it gets stuck.  Basically the inside of her mouth along the whole bottom and side is like an open wound, and her lip on the outside is always like it's been burnt but never healed.  VERY painful for her and very difficult to eat.  The doctors are doing the usual treatment but not helping.  Wondering if anyone else has had graph vs host in this area and besides the usual medicine did you use anything else that worked.  My family is just grateful she is alive and well and she is a very strong, determined person.  I'm just trying to find out some other options for her.  Thanks

Suzanne

hi Suzanne O boy life hard, she go’s through  a bone marrow transplant and gets graft-versus-host disease as well What  treatment is she on now  other patient on the CC site sead there are on one the steroid methylprednisolone. I seen patient use the old Colloidal silver and also using powder Corn starch as it ease pain from radiation treatment of the throat.  but I think she in for the long haul may God go with you both  Ray