T-LGL

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T-LGL

by She_Ra on Mon Dec 01, 2008 12:00 AM

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My Dad just received his blood results and they confirm he has T-LGL. I do not live in the area and only get information passed to me by him or my mom so as you can imagine its not quite coherent at this point. I do know that 3 weeks ago his lymphocyte count (or something like that) was 37% and this time it went up to 42%. Can anyone help me interpret this information I really can't find much information online or can't exactly figure out the right search words (help with this would be appreciated also). Also there was something about no B something (not very descriptive I know). And finally not that anyone really wants to discuss this but how long do I possibly have with him? Any response would be extremely appreciated.

Thank You

RE: T-LGL

by Max_and_Linda on Tue Dec 30, 2008 12:00 AM

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ps  The name of this disease is T-cell Large granular Lymphocytic Leukemia    Lin S

RE: T-LGL

by Helens_Exotics on Thu Mar 26, 2009 12:00 AM

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I have LGL leukemia and went to NIH for a new treatment. So far there has been nine of us treated . They are looking for three more then the FDA will let us have more injections. My platlets are holding steady in  the 20s now and two others are in complete remission.   Contact Dr John Janik at NIH in Bethesda, Md.  Its FREE.. 
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