Latest messages for CancerCompass discussion http://www.cancercompass.com/message-board/message/all,30822,0.htm Sun, 22 Nov 2009 00:00:00 GMT Sun, 22 Nov 2009 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ I have LGL leukemia and went to NIH for a new treatment. So far there has been nine of us treated . They are looking for three more then the FDA will let us have more injections. My platlets are holding steady in  the 20s now and two others are in complete remission.   Contact Dr John Janik at NIH in Bethesda, Md.  Its FREE..  Helens_Exotics Thu, 26 Mar 2009 00:00:00 GMT ps  The name of this disease is T-cell Large granular Lymphocytic Leukemia    Lin S Max_and_Linda Tue, 30 Dec 2008 00:00:00 GMT My Dad just received his blood results and they confirm he has T-LGL. I do not live in the area and only get information passed to me by him or my mom so as you can imagine its not quite coherent at this point. I do know that 3 weeks ago his lymphocyte count (or something like that) was 37% and this time it went up to 42%. Can anyone help me interpret this information I really can't find much information online or can't exactly figure out the right search words (help with this would be appreciated also). Also there was something about no B something (not very descriptive I know). And finally not that anyone really wants to discuss this but how long do I possibly have with him? Any response would be extremely appreciated. Thank You She_Ra Mon, 01 Dec 2008 00:00:00 GMT