Hi,
I just came upon this site while researching any updated information on ET. I was diagnosed in 1989. What a scary time because I had just remarried a year before. I was originally put on hydrea. I was on it for years and my platelet count fluctuated all the time. The Dr either increased or decreased my meds everytime I went for a visit. Then my husband and I decided to retire in TN in 2005 so of course I had to get a new Dr. He was surprised I was still on Hydrea since agrylin is specifically for this condition. Since he put me on the agrylin my count has been between 300,000 and 350,000 consistently. I feel great also. I feel very lucky to have gone this long (almost 20 years) without any real problems.
I'd like to hear from other long-time ET people