Metaplastic cancer

Hi there,

i live in Australia, am 35yrs old and was diagnosed with Metaplastic breast cancer earlier this year. I had a full mastectomy and axillery clearance. I have finished chemo and have to have follow up breast scans every 3 mths. I had the highest level of the metaplastic cancers. My concern now is that I am wanting to know if anyone has this cancer and if they have remained cancer free since operation. Or is recurrance has happened, how far between was it. I would love to talk to someone who had this type of cancer as it is different to normal breast cancers.

cheers

 

On 12/13/2008 Rach01 wrote:

Hi there,

i live in Australia, am 35yrs old and was diagnosed with Metaplastic breast cancer earlier this year. I had a full mastectomy and axillery clearance. I have finished chemo and have to have follow up breast scans every 3 mths. I had the highest level of the metaplastic cancers. My concern now is that I am wanting to know if anyone has this cancer and if they have remained cancer free since operation. Or is recurrance has happened, how far between was it. I would love to talk to someone who had this type of cancer as it is different to normal breast cancers.

cheers

You have to try to go on and live your life without looking over your shoulder.  Try not to waste time worrying about what might happen and have fun.  Those quarterly tests work against that but don't look beyond next Sat. night.  Plan some fun for then.  I'm 12 years out and it took me a long time to stop worrying.  I'm not in the clear but I now see the docs every 6 months and go for the chest, abdomen & pelvic scans every 2 years.  Every case is different -- try not to stop living because you fear what could go wrong.

Thank you so much for your reply. I have been very strong throughout this whole process however got a little scared when my surgeon explained that it may come back due to how agressive it was. I have always remained possitive however I think I got a bit of a scared as I was really expecting him to say it is all good and will never return. Reality kicked in, he,he. I just have to do as you say and live life not spend each day wondering when it will end.

How are you going with your cancer. Are you cancer free and those scans are just check ups or do you have cancer still? I wish you all the best with it.

I think all need to just enjoy the holidays and drinks some wine and wait for Santa, he,he.

Take care and thanks for your support.

I did not have this same type of breast cancer, but have fought breast cancer myself and put it into remission.

I agree with what suzy said - keep living without looking back. (Or as the folk saying goes, "Don't let yesterday take up too much of today.")

At the same time, you can't let tomorrow take up too much of today, either. What will be is in part determined by how we live right now, minute to minute, day to day.

In choosing to live in the hear and now, we can be powerfully proactive toward preventing the future from mirroring the past. Find a good cancer diet chock full of fresh raw produce (organic is best) whenever possible.  Drink plenty of fresh pure water (steam-distilled or revers-osmosis filtered are best.)  Get lots of good aerobic exercise. 

Make sure you are getting enough of the vitamins and minerals the body needs to maintain a healthy immune and cancer-fighting system.  Most of the leading advocates of natural/alternative therapies say there are 5 minerals that are absolutely essential to anyone trying to prevent or fight cancer, and there is one vitamin that must be added to make these minerals work:

selenium:  200 mcg/day (can start with 400mcg/day but only for a few weeks)
magnesium:  200 - 250 mg/day (350 mg/day max), take with food
zinc:  50 mg/day (can start with 100mg/day but only for a few weeks), take with food
manganese 10 - 15 mg/day, take with food
calcium: 1200 mg/day

We need Vitamin D-3 to be able to absorb and utilize calcium. Our bodies manufacture D-3 if we get adequate sunlight (15 - 20 minutes exposure/day) - but I do not believe in leaving this to chance, so also recommend a Vitamin D-3 supplement, 1000 - 2000 iu/day (10,000 iu/day max) 

If you want to see an example of easy, inexpensive foods, herbs and supplements that can be adopted into a cancer-preventive lifestyle, please take a look at my blog:

 http://motherearthtreasurechest.blogspot.com/2008/09/my-pers

By no means are my blog articles the "be-all, end-all" for information - just something to give people an idea of what's available in the way of naturals to keep cancer away.  Much more valuable information to be found on the internet and in a number of excellent books that have been published on the subject. Don't just think that you don't want the beast to come back - become proactive at keeping it away.

I highly recommend Dr Susan Love's Breast Book, 4th ed. by Dr Susan Love.  many women consider this to be their bible on breast health.  It is an excellent place to start for information on how to keep one's breast and body healthy.

I wish you many happy cancer-free years!

Sincerely,

Tre

 

On 12/14/2008 suzy2225 wrote:

 

On 12/13/2008 Rach01 wrote:

Hi there,

i live in Australia, am 35yrs old and was diagnosed with Metaplastic breast cancer earlier this year. I had a full mastectomy and axillery clearance. I have finished chemo and have to have follow up breast scans every 3 mths. I had the highest level of the metaplastic cancers. My concern now is that I am wanting to know if anyone has this cancer and if they have remained cancer free since operation. Or is recurrance has happened, how far between was it. I would love to talk to someone who had this type of cancer as it is different to normal breast cancers.

cheers

You have to try to go on and live your life without looking over your shoulder.  Try not to waste time worrying about what might happen and have fun.  Those quarterly tests work against that but don't look beyond next Sat. night.  Plan some fun for then.  I'm 12 years out and it took me a long time to stop worrying.  I'm not in the clear but I now see the docs every 6 months and go for the chest, abdomen & pelvic scans every 2 years.  Every case is different -- try not to stop living because you fear what could go wrong.

 

 

On 12/27/2008 barna wrote:

 

On 12/14/2008 suzy2225 wrote:

 

On 12/13/2008 Rach01 wrote:

Hi there,

i live in Australia, am 35yrs old and was diagnosed with Metaplastic breast cancer earlier this year. I had a full mastectomy and axillery clearance. I have finished chemo and have to have follow up breast scans every 3 mths. I had the highest level of the metaplastic cancers. My concern now is that I am wanting to know if anyone has this cancer and if they have remained cancer free since operation. Or is recurrance has happened, how far between was it. I would love to talk to someone who had this type of cancer as it is different to normal breast cancers.

cheers

You have to try to go on and live your life without looking over your shoulder.  Try not to waste time worrying about what might happen and have fun.  Those quarterly tests work against that but don't look beyond next Sat. night.  Plan some fun for then.  I'm 12 years out and it took me a long time to stop worrying.  I'm not in the clear but I now see the docs every 6 months and go for the chest, abdomen & pelvic scans every 2 years.  Every case is different -- try not to stop living because you fear what could go wrong.

 

 

I was diagnosed with metaplastic spindle cell carcinoma that is triple negative last year and was happy to see someone 12 years out that had been diagnosed with this. Did you have a mastectomy, chemo or radiation as treatment?  Did you follow any specific diet after treatment? How many cm. was your original mass?  Any information you could give me would be greatly appreciated.  Thanks!