Latest messages for CancerCompass discussion http://www.cancercompass.com/message-board/message/all,31617,0.htm Mon, 23 Nov 2009 00:00:00 GMT Mon, 23 Nov 2009 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/  On 1/9/2009 volcano wrote: On 12/29/2008 Karen65 wrote:Hello,  It appears the last entry posted was on July 2008 from Lin.  I certainly wish you all well and hope you are thriving.  It would be wonderful to hear from you all !!!  I read everyone's entry with much enthusiasm.I was diagnosed with OC/3C in June 2007, followed by surgery and Chemo (Taxol & Carboplatin, midway changed to Cisplatin & Gemzar).  My last chemo was in April 2008.  My last CA125 was 12.  I am due to see my oncologist in January 2009.  Recently, I came across a book entitled Anti cancer, A new way of life, by David Servan-Schreiber, M.D.,PhD.  While the entire book is very inspirational, what really captured my interest was his chapter on "Cancer's Weakness".  He talks about how disease is preceded by cellular inflammation.  He discusses this process from many perspectives and how we can create an internal body environment that is hostile to cancer cells.  Dr. Servan-Schreiber had a brain tumor himself and that post surgery after some time, recurred.  That is when he did his research and wrote his book.  It is a beautiful book on so many levels.  After learning of his brain tumor regrowth and being devastated by the news his internal dialogue went:  "O my body, my being, my life force, speak to me!  Help me sense what's happening to you.  Help me understand why you couldn't cope.  Tell me what you need.  Tell me what nourishes you, strengthens and protects you.  Tell me how we are going to make our way together, because alone, with my head, I haven't succeeded and I don't know what to do anymore."This "prayer" I include in my meditation each day.  The words caress and comfort my body & mind each time I read them.  The book is filled with much valuable medical information about cancer.I would love to hear from you. Karen I was diagnosed with ovarian cancer in April 2008 and had surgery, removal of large tumor and complete hysterectomy in May. It was early stage (2) cancer and had not spread. 41 lymph nodes were removed which showed no malignancy. I had 6 sessions of precautionary chemo (Taxol and Carboplatin) and finished in September. The only side effect I had during chemo was tiredness. My last CA125 was 8.1! However, I began having neuropathy - numb toes - and pain in my lower back and left buttock about 1 month after my last treatment. Since my pelvic CT scan came back clear after chemo, I assume the pain is from chemo. I see my gyn/oncologist this month (Jan.2009).Hi volcano...I, too, have neuropathy from chemo (Taxol & Cisplatin) which began in earnest about 2 wks after finishing chemo.  I have numb fingertips and numb toes & soles of my feet.   There is also burning in my feet after standing or walking for even a short time.  My oncologist put me on Lyrica for the neuropathic pain, which seems to help the burning, but not the numbness. The problems being weight gain from the med, the need for increasing doses over time, and you have to take it three times a day.  I am at the point where I want to try something else, or just muscle through the pain without meds. You should be careful with walking... I have turned my ankle several times just because I can't feel my feet and where they are on uneven ground.  Also, you should be inspecting your feet daily for any sores or blisters that you may not feel.  Shoes are a big issue for me...hard to find any that are comfortable yet even remotely stylish.  As for the pain in your buttocks/hip, if it persists, I would let your doc know.  beadlover Tue, 13 Jan 2009 00:00:00 GMT  On 12/29/2008 Karen65 wrote:Hello,  It appears the last entry posted was on July 2008 from Lin.  I certainly wish you all well and hope you are thriving.  It would be wonderful to hear from you all !!!  I read everyone's entry with much enthusiasm.I was diagnosed with OC/3C in June 2007, followed by surgery and Chemo (Taxol & Carboplatin, midway changed to Cisplatin & Gemzar).  My last chemo was in April 2008.  My last CA125 was 12.  I am due to see my oncologist in January 2009.  Recently, I came across a book entitled Anti cancer, A new way of life, by David Servan-Schreiber, M.D.,PhD.  While the entire book is very inspirational, what really captured my interest was his chapter on "Cancer's Weakness".  He talks about how disease is preceded by cellular inflammation.  He discusses this process from many perspectives and how we can create an internal body environment that is hostile to cancer cells.  Dr. Servan-Schreiber had a brain tumor himself and that post surgery after some time, recurred.  That is when he did his research and wrote his book.  It is a beautiful book on so many levels.  After learning of his brain tumor regrowth and being devastated by the news his internal dialogue went:  "O my body, my being, my life force, speak to me!  Help me sense what's happening to you.  Help me understand why you couldn't cope.  Tell me what you need.  Tell me what nourishes you, strengthens and protects you.  Tell me how we are going to make our way together, because alone, with my head, I haven't succeeded and I don't know what to do anymore."This "prayer" I include in my meditation each day.  The words caress and comfort my body & mind each time I read them.  The book is filled with much valuable medical information about cancer.I would love to hear from you. Karen Greetings to you and may continued healing be yours as we go on this journey....I was diagnosed with GCT in August 2007 with surgery, followed by attempt at chemo with taxo and carbo, which I had an allergic reaction to.  Since then, I have quarterly scans and inhibin B tests, which have been clear.   I am in North Dakota and will visit my original gyn/onc in Minnesota in two weeks.  I read the Anti cancer book too and was struck by Dr. Schreiber's message, particularly in how we need to address our total environment.   I have not had anyone tell me of the urgency of doing so and of the importance of looking at diet.  The changes I have made so far have included dietary changes,  I shared this book with my relatives, who are struggling to deal with chemo and radiation, and wanting to continue the fight because I believe we all need to be educated, as much as we can!   I have had difficulty with increasing my physical mobility for a couple of reasons, so I know what I have to do in 2009 and for the rest of my life.  I have struggled my whole lifetime with weight issues and need to lose weight!  I mean 100+ lbs.Any ideas on this would be appreciated.  God bless you all and stay well.  Toni Toniz Sun, 11 Jan 2009 00:00:00 GMT  On 12/29/2008 Karen65 wrote:Hello,  It appears the last entry posted was on July 2008 from Lin.  I certainly wish you all well and hope you are thriving.  It would be wonderful to hear from you all !!!  I read everyone's entry with much enthusiasm.I was diagnosed with OC/3C in June 2007, followed by surgery and Chemo (Taxol & Carboplatin, midway changed to Cisplatin & Gemzar).  My last chemo was in April 2008.  My last CA125 was 12.  I am due to see my oncologist in January 2009.  Recently, I came across a book entitled Anti cancer, A new way of life, by David Servan-Schreiber, M.D.,PhD.  While the entire book is very inspirational, what really captured my interest was his chapter on "Cancer's Weakness".  He talks about how disease is preceded by cellular inflammation.  He discusses this process from many perspectives and how we can create an internal body environment that is hostile to cancer cells.  Dr. Servan-Schreiber had a brain tumor himself and that post surgery after some time, recurred.  That is when he did his research and wrote his book.  It is a beautiful book on so many levels.  After learning of his brain tumor regrowth and being devastated by the news his internal dialogue went:  "O my body, my being, my life force, speak to me!  Help me sense what's happening to you.  Help me understand why you couldn't cope.  Tell me what you need.  Tell me what nourishes you, strengthens and protects you.  Tell me how we are going to make our way together, because alone, with my head, I haven't succeeded and I don't know what to do anymore."This "prayer" I include in my meditation each day.  The words caress and comfort my body & mind each time I read them.  The book is filled with much valuable medical information about cancer.I would love to hear from you. Karen I was diagnosed with ovarian cancer in April 2008 and had surgery, removal of large tumor and complete hysterectomy in May. It was early stage (2) cancer and had not spread. 41 lymph nodes were removed which showed no malignancy. I had 6 sessions of precautionary chemo (Taxol and Carboplatin) and finished in September. The only side effect I had during chemo was tiredness. My last CA125 was 8.1! However, I began having neuropathy - numb toes - and pain in my lower back and left buttock about 1 month after my last treatment. Since my pelvic CT scan came back clear after chemo, I assume the pain is from chemo. I see my gyn/oncologist this month (Jan.2009). volcano Fri, 09 Jan 2009 00:00:00 GMT This is a wonderful book for cancer patients and anyone else.  I bought copies for my adult children because the information about healthy life styles is so important, plus it is well written and understandable by all.  41gram Thu, 01 Jan 2009 00:00:00 GMT Hello,  It appears the last entry posted was on July 2008 from Lin.  I certainly wish you all well and hope you are thriving.  It would be wonderful to hear from you all !!!  I read everyone's entry with much enthusiasm.I was diagnosed with OC/3C in June 2007, followed by surgery and Chemo (Taxol & Carboplatin, midway changed to Cisplatin & Gemzar).  My last chemo was in April 2008.  My last CA125 was 12.  I am due to see my oncologist in January 2009.  Recently, I came across a book entitled Anti cancer, A new way of life, by David Servan-Schreiber, M.D.,PhD.  While the entire book is very inspirational, what really captured my interest was his chapter on "Cancer's Weakness".  He talks about how disease is preceded by cellular inflammation.  He discusses this process from many perspectives and how we can create an internal body environment that is hostile to cancer cells.  Dr. Servan-Schreiber had a brain tumor himself and that post surgery after some time, recurred.  That is when he did his research and wrote his book.  It is a beautiful book on so many levels.  After learning of his brain tumor regrowth and being devastated by the news his internal dialogue went:  "O my body, my being, my life force, speak to me!  Help me sense what's happening to you.  Help me understand why you couldn't cope.  Tell me what you need.  Tell me what nourishes you, strengthens and protects you.  Tell me how we are going to make our way together, because alone, with my head, I haven't succeeded and I don't know what to do anymore."This "prayer" I include in my meditation each day.  The words caress and comfort my body & mind each time I read them.  The book is filled with much valuable medical information about cancer.I would love to hear from you. Karen  Karen65 Mon, 29 Dec 2008 00:00:00 GMT