post bile duct removal issues

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post bile duct removal issues

by TexasMiom on Tue Dec 30, 2008 12:00 AM

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I had posted back in Feb. when I had been told I most likely had bile duct cancer. Fortunately no cancer was found but I did have my gallbaldder and bile duct removed and my intestine rerouted to replace the bile duct (and had biopsies on liver, pancreas, and lymph nodes). I had follow-up blood tests for liver function done in July and they were fine. Now I am getting muscle spasms on my right side of my abdomen/back area and have pain just below my rib cage. Back in January I had a stent put in because of jaundice and could feel it - the pain I am experincing now is in the same spot.

Is it possible for liver problems to develop this far post surgery? I have been under extreme stress the past couple of months and (unfortunately) have put on quite a bit of weight and wonder if that may be causing the problem.

 

RE: post bile duct removal issues

by Sparks on Wed Dec 31, 2008 12:00 AM

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I would highly recommend you go see your doctor to be further evaluated. There could be many reasons for the symptoms you are experiencing. Not all are serious, but in the event that something serious is causing the symptoms, seeing your doctor immediately can only help. I see you are in Texas - I am as well. Did you have your surgery at MD Anderson?

RE: post bile duct removal issues

by Gina1 on Fri Jan 02, 2009 12:00 AM

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On 12/30/2008 TexasMiom wrote:

I had posted back in Feb. when I had been told I most likely had bile duct cancer. Fortunately no cancer was found but I did have my gallbaldder and bile duct removed and my intestine rerouted to replace the bile duct (and had biopsies on liver, pancreas, and lymph nodes). I had follow-up blood tests for liver function done in July and they were fine. Now I am getting muscle spasms on my right side of my abdomen/back area and have pain just below my rib cage. Back in January I had a stent put in because of jaundice and could feel it - the pain I am experincing now is in the same spot.

Is it possible for liver problems to develop this far post surgery? I have been under extreme stress the past couple of months and (unfortunately) have put on quite a bit of weight and wonder if that may be causing the problem.

 


My name is Gina and I too am from Texas,  I had my ghallbladder removed several years ago and my bile duct resectioned three years ago in March.  They checked everything as well and found no other cancer.  But to this day I do still have swelling and pain around the right rib cage, somedays seem harder then others, fatigued often but no stents yet.  I had my surgery done at Dallas Methodist by a great surgeon. It is hard to find information out on this type of procedure or the side effects after.  I too have gained a little weight, but I don't believe that is what causes the pain in that area.. If I eat it will hurt, If I don't eat it will hurt...haha!!! I do wish you the best..

Gina in TX 

 

RE: post bile duct removal issues

by nja8007 on Sat Jan 03, 2009 12:00 AM

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I had a whipple procedure in May 2007. The doctors thought it was pancreatic, but found it was bile duct. My recovery has been fine excepting hernia surgery in May 2008 along the line of incision.

Lately  (just the past week) I am having stomach aches and fairly rough middle back pain. I'm feeling a soreness around the incision area as well.  I have gained about 5 pounds in the past two months, but I'm not sure if that has anything to do with this pain. Has anyone else felt this way?

 I will try and see my doctor this week, but wonder if anyone has had the same experience.

RE: post bile duct removal issues

by Gina1 on Sun Jan 04, 2009 12:00 AM

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On 1/3/2009 nja8007 wrote:

I had a whipple procedure in May 2007. The doctors thought it was pancreatic, but found it was bile duct. My recovery has been fine excepting hernia surgery in May 2008 along the line of incision.

Lately  (just the past week) I am having stomach aches and fairly rough middle back pain. I'm feeling a soreness around the incision area as well.  I have gained about 5 pounds in the past two months, but I'm not sure if that has anything to do with this pain. Has anyone else felt this way?

 I will try and see my doctor this week, but wonder if anyone has had the same experience.


 

You have to take it really slow for a long while.  I am going on two years and just started really stretching and getting a little physical (stretching the incision area)  and to this day I can still feel pain in incision area as well as where the drain tube was after working out (stretching on a ball).  I would definately still see a Doctor for the pain because you have had a hernia.  This really is very major surgery and takes a long time to heal.  I still get pains periodically around right side of torso.  I just assume all is good since I do liver function tests and no Jaundice.  I do take an occasional mild pain pill if the pain persists.  It does help, seems to give me energy to get up and do things (single mom).  Take care, its nice to finally talk to some people who have had the same procedure and are alive to talk about it.  We really have the most uncommon cancer/procedure that I can tell.  I was 38 when diagnosed and it took me about a year to really start educating myself on what happened.  I found most people were not alive because their cancer spread, and this type does spread very quickly with not much hope.  So we can thank great Doctors and God above for allowing us more time to be with the ones we love.  Take care and get to the Doctors to check things out, especially since you herniated.  Take it slow also, this really was a very major surgery...Gina in TX

RE: post bile duct removal issues

by nja8007 on Mon Jan 05, 2009 12:00 AM

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Thanks Gina and all who post here.  I made an appointment to see my doctor on Wednesday and I'll let you know how it goes...I just had a CAT scan and doctor visit in November and repeat every 3 month, so perhaps I'm overreacting.

I have been pushing it, so perhaps that's the problem.

Today's my first day of retirement and I want to enjoy it.

Anyway good wishes to all and I'll post after I see the doctor.

RE: post bile duct removal issues

by Achilles3x on Mon Jan 05, 2009 12:00 AM

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It's been really nice and grateful to read all your stories about that procedure about the biliary duct, my cuestion is whether the biliary duct can be cut or rearranged and how this surgery is performed?

my father has a kidney cancer metasthasis in the biliary duct, in the Water papile, he has a bleeding tumor there, could this be surgically fixed? anybody can tell me about your surgeons and maybe have some email address?

I'm from Venezuela and despite we have some very good doctors, there's only and handful of them and we don't usually have the latest technology.

As an advise to all of you who have had surgery I recommend to take things lightly and not push too much on yourself, we tend to think that the things we used to do are "normal light things" but everything in this life takes an effort... so please take it easy in order to keep your good health.

my dad decided to do the lawn just a day after having inserted a stend and i dont know if this affected or not, but the fact is that it didn't work and within 2 days he was hospitalized. please be careful!

 my deepest love to all of you.

RE: post bile duct removal issues

by Gina1 on Mon Jan 05, 2009 12:00 AM

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On 1/5/2009 nja8007 wrote:

Thanks Gina and all who post here.  I made an appointment to see my doctor on Wednesday and I'll let you know how it goes...I just had a CAT scan and doctor visit in November and repeat every 3 month, so perhaps I'm overreacting.

I have been pushing it, so perhaps that's the problem.

Today's my first day of retirement and I want to enjoy it.

Anyway good wishes to all and I'll post after I see the doctor.


 

Good for you; the retirement of course!  There is a really good book you need to read (If I can do it - you starting retirement surely can! haha)  It's called "Anti cancer, a new way of life" by David Servan-Schreiber...Great Book!    Let us know how things turn out!

Gina in TX 

 

RE: post bile duct removal issues

by nja8007 on Wed Apr 08, 2009 12:00 AM

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Sorry it's been so long since I wrote last. January was miserable with severe back pain that was driving me out f my mind! February and March were better, and I finally got my oncologist to order tests on my back. I had xrays, MRI, and (yet another) CT. Turns out I have arthritis in my back and osteoporosis. Remember to keep your doctor focused on you instead of the disease. As specialists, they are often tunnel visioned. I'll see him again tomorrow.

RE: post bile duct removal issues

by mars12321 on Sat Mar 06, 2010 02:59 PM

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I had my gall bladder out, they said i had almost 1000 gallstones so significant surgery.  I then had bile leaks for almost a year before they finally got me fixed.  They took out bile ducts and resectioned.  However, 2 years later, I still occasionally get severe pain in the middle to right middle of my chest when digesting food.  When I get it, it feels like I am having contractions/spasms so horrible I sweat and double over in pain.  I do have hyoscimine (sp?) that I dissolve under my tongue when this happens.  I still don't know the cause however I suspect my intestines twist during digestion because it feels like my body is trying to push food down but it is blocked, then finally it goes away.  I also gained a great deal of weight.  I lost a lot when I had the leaks, i have gained 50 pounds in 1 year, yuck.

does anyone know if there is a supplement to take for better digestive health following this type of surgery?

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