One patient with glioblastoma still alive nine years later
by thecyclist on Wed Dec 31, 2008 12:00 AM
by HIGH_STRUNG_DAUGHTER on Wed Dec 31, 2008 12:00 AM
by ernie58 on Wed Dec 31, 2008 12:00 AM
I do not want to put down the dr that gave you this diagnosis but from what you state, I agree that it is Bull.
I was diagnosed with a tumor the size of " agolf ball" in that area. Luckily, I was told to go see a specialist. You may have to go through chemo and some surgery but not a permanent colostomy. I would suggest doing some research on a surgeon in Philadelphia - Dr. John Marks.
Good luck and hang in there!
by JudyEH on Wed Dec 31, 2008 12:00 AM
On 12/31/2008 thecyclist wrote:During a routine coloscopy as part of my annual checkup a flat polyp too large for immediate removal was found in the lower colon near the rectum. A biopsy was done and the results found some cell changes in the polyp indicating it was turning cancerous. I was referred to a surgeon who has recommended a permanent colostomy. This sounds exessive and I am devasted as I have no symptons and lead an active life gardening, spinning and cycling. Are ther altrenatives????
By all means, get a second opinion. Colonoscopies are a drastic step, necessary, sometimes, and often reversible. See another doctor, before you submit to this surgery. Colonoscopies do not need to slow down your active lifestyle. There are some limitations...hot tubs, saunas, wrestling would be a few. Gardening, cycling, no problem. A surgeon requires 2 inches of bowel near the anus, so save your anus. I've been there, done that and now have had it reversed. I had a colostomy first, then after chemo, radiation, surgery (which needed an ileostomy as the colon healed) then more chemo, then reversal of the ileostomy. A long hard road, but now I am healthy again. Wearing a bag did not mean a change in my lifestyle or in my wardrobe. (Bikinis were out!) Get another opinion, and get on with living. I was surprised at how many people have ostomies, and one would never know. Good luck.
by Waggy on Wed Dec 31, 2008 12:00 AM
Hi there i agree with other responses get a second opinion, as i am living with a colostomy bag and i have been told there is no chance of reversal, i was devastated because i too was a very active person and it does change your life i have become very paranoid about it and terribly nervous about having an accident while out. It has leaked on several occasions, i take a laxative to keep the consistancy so to avoid accidents but sometimes it just happens. I hope and pray that i go into remission but they so there is no hope of that even though i have been on chemo for 18mths straight. SO PLEASE GET ANOTHER OPINION. I would love to here from you after you do, i wish you all the best and stay positive.
by megumiChristine on Thu Jan 01, 2009 12:00 AM
A good friend was told she would need a permanent colostomy for a cancerous growth near her rectum. Since she absolutely did not want a colostomy, she tried to gather as much information as possible on treatment possibilities for her type and location of cancer. As a result she found out that radiation treatment was an effective alternative in many cases. She took that info. back to her original doctor, who then investigated the info. himself and, after consulting with the radiologists in the same hospital, decided they could try the radiation treatment for her. Although the side-effects of the radiation treatment were certainly not pleasant, my friend is now cancer- and colostomy-free two years later and living an active life. Therefore, I heartily agree with the others' responses that you try to get a 2nd opinion and become as knowledgeable as possible about different possibilities for treatment.
by thecyclist on Thu Jan 01, 2009 12:00 AM
by ernie58 on Thu Jan 01, 2009 12:00 AM
Dr. Marks has a colorectal foundation that publishes his work. You may find it on the web. Additionally, he works at a teaching hospital - Lankenau Hospital. I know that there have been many people from around the world that he has trained. Maybe there is a way that you can contact his office( or the hospital) about someone in your area that has been trained.
My cancer has metasticized to a few areas but the first surgery ( The one that you referred to) was done laproscopically and actually discovered the additional site. However, this did not effect the surgery with the colostomy bag. I stayed on the bag until my chemo and second surgery were completed( about 11 months). I have been "bag free" for more than 2 years now.
Good luck, may God bless you and your family and Happy New Year.
by thecyclist on Sat Jan 03, 2009 12:00 AM
When you track a discussion, you will get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to track this discussion?
If you stop tracking this discussion, you will no longer get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to stop tracking this discussion?
If you were considering traveling for cancer treatment, which headline would you find more interesting?
Destination: HOPE. Cancer care that is worth the trip.
Over 84% of our patients travel to our hospital from another state
Neither headline is interesting
We care about your feedback. Let us know how we can improve your CancerCompass experience.