leimyosarcoma

I am a 38 year old mother of a 12 yr old and wife--I was diagnosed in April with LMS--after a hysterectomy--MY LIFE HAS FOREVER CHANGED--had gem tax--lost all hair--and from what I read, and hear, all this cancer likes to do is come back--I feel like sitting duck--waiting, and waiting for it-coping is so hard--I have started Essiac tea, a rife machine, tons of supplements pau d arco, astragulus, MSM, garlic, mushrooms, n acetyl cysteine--and much more--I want to live more than anything--recite the rosary continually--I pray and pray but its so hard to find peace--nothing has shown up in my lungs but from reading all the blogs and everything else I know the odds of it are high--if there are any other women like me who would like to talk please blog me--I keep giving it to God and taking it back--I try hard with my faith but its weak--I don't want to watch myself become ill--before this happened I walked all the time, had pride about  my looks--now I am puffed up from steroids, and have a continual devasted look I have met two other people with this LMS and they are of support--if anybody knows of any other altenative stuff please blog me, and pray for me-- Jeri

Sarah,

 

Thank you for emailing me--though you can email me privately at tomjeriliz@msn.com

I still can;t believe this--I want to badly to raise my girl--and you are a mother as well--I have not coped well--I had my last appt on the 14th a day before my 39th birthday and nothing showed up in my lungs--praise God--the doctor expects it to come he says my tumor was high grade--yours was found in September--how are you feeling with the chemo, I took gem tax and /i am now done with chemo and trying to build up my immune system--is your family supportive--is your husband helping you--my twin sister and mother had to help, my husband got so sick when I had this diagnosis he is a physician and we just didn't cope well--though now I try to act like things are normal, I keep  my house up, cook, mother my girl, walk my pets but it is always there--i hope your chemo is not making you too sick--and that you can find peace thinking this through philosophically rather than ranting and raving hysterically like I did and I still keep looking for answers--but I know several people with Stage 4's who are out past 7-10 years--I say my Rosary alot, and I have pets I enjoy and I thank god for the good days--as I know how bad they can be--are you taking Nulasta--did your fingernails fall out--mine did--I am so glad you wrote me--I see and hear about people who are older than us--I do get resentful as we are mothers--- I am afraid to look up to much info on this disease as it brings me do down--please email me back--I so do need a friend who shares this--I hope I wasn't too much of a downer that you wont want to write me back jeri