One patient with glioblastoma still alive nine years later
by Patty5 on Tue Jan 06, 2009 12:00 AM
I just wanted to give an update on my Mama. She was diagnosed in Dec '06 with stage 3TN1M0 EC. She had 5 1/2 weeks of chemo and radiation. No surgery because of bad lungs. The treatment was tough on her. She was 76 years old at the time. But after treatment (she didn't even lose her hair) she gradually got her strenght back and was back to normal. She lost from 108 down to 97 lbs and regained back to 108. She had a feeding tube. There were a couple of hospital stays. She had an infection from the feeding tube and developed radiation pneumonitis (not sure of spelling).
Most of the people that I had for support no longer post and I don't post like I did. I just wanted to let people know that as far as we know now my Mama doesn't have any cancer. I want everybody to know there is hope !
I will go on to say that as of my Mama's last CT scan in Oct there are some nodules on one lung. She has had follow up x-rays and there has been no change. She was due for a PET scan to determine what the nodules are but we had to put that off because she is in the hospital with lung problems and her oncologist said we will have to wait 4 weeks or so for the PET. My Mama's oncologist doesn't think it is cancer. She said that to start with but wanted to make sure. Nodules are most likely from COPD.
My Mama is not in great shape now from lungs (COPD). I could lose her at any time from that. But I wanted everybody to know that so far the beast (EC) has not won. Everybody keep fighting ! All of you are in my prayers.
by Advocate_of_Hope on Tue Jan 06, 2009 12:00 AM
Bless you for posting Pat! My mom (and best friend) is having a PET and CT scan tomorrow to see how thing are going for her. She was diagnosed with stage IV last spring and has been undergoing chemotherapy all summer. The first drug they were using had few side-effects and was effective until it stopped working in November. She is on a different drug now and while the side effects are worse (she has lost her hair and she says her mind :) but she can also eat better than she has been able to in a long time so that makes us hopeful. She has continued to live her life to the fullest and in spite of the bad odds of recovery she is pretty sure that if anybody can survive stage IV, she can!
Your post gave me some hope for the evening! I get so anxious before these scans and the last one she had was when the Zeloda had stopped working and the tumors had actually grown; so this time it is even more nerve-racking to wait to hear how things go tomorrow.
Thanks again and enjoy every single day with your mom!
by Patty5 on Wed Jan 07, 2009 12:00 AM
I am so glad to have given somebody hope. You and your mom are in my prayers. My mom is my best friend too so I know how scared you must be. Please let us know the results of her test. I will be looking for good news !
by tongrenhealer on Thu Jan 08, 2009 12:00 AM
by Patty5 on Thu Jan 08, 2009 12:00 AM
Thanks for the prayers. I will post a message as soon as she has her scan. I hope your husband is doing well this new year. Sending prayers to both of you !
by Momlynn on Sat Feb 07, 2009 12:00 AM
Hi Pat: Great news about your Mama. I am so happy for you. It was so good to hear that she is cancer free. Sure hope you get more time with her - I know how close you 2 are. WIll keep praying.
Hugs and God Bless.
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