Cone Biopsy and eventually Hysterectomy

I have high grade pre-cancer cells.  My Gyno called them adenocarcinoma and cancerinsitu (sp).  He has scheduled a cone biopsy for next week.  He told me that on a scale from 1-10, 10 being cancer, I am a 9.5.  This is terribly scarey.  He told me that he wanted to do a cone biopsy and would recommend a hysterectomy if I am done having children.  

 I asked him why two procedures, he told me that he asked the very same question in medical school.  His answer to me was, if they do a vaginal hysterectomy and find that I had invasive cancer, then they would have to do a second surgery and open the abdomen.  It could cause the cancer to spread and become worse.  Doing the Cone Biopsy gives them a clear picture of what is going on.  He is also going to do a D&C and hysteroscopy at the same time.  He is a very cautious doctor. I trust him and do not feel I need a second opinion.  I just need support and advice from people who have been there or know about this.

He did tell me that he would be comfortable in my situation doing a hysterectomy in leiu of the cone biopsy if I would sign a consent form stating that I know the consequences and have been duely informed.  He said that there is a 95% chance that there is no cancer and that I would be fine.  It is the 5% that scares me to death.

 What am I to do? Is this information correct?

Kelly 

I am so sorry you are facing this. Normally, I take issue with the word "precancer" because it seems designed to frighten women into hasty decisions, but with adenocarcenoma and CIS, I realize how serious your condition. Do you have family and friends who can support you, right now, while you are addressing this? I have learned they usually want to be supportive, but sometimes they need us to tell them what we need.

A cold knife cone biopsy is what doctors definitely do to further diagnose a patient with what you have and, hopefully, to treat it. Because the specimen is so much more accurate than a LEEP/cone or laser/cone biopsy, it will tell the doctor whether or not the margins are clear. But is your doctor a gynecologist or a GYN/oncologist? He seems like a careful doctor, but in this case, a GYN/ONC would give you a valuable second opinion. That would help you determine the appropriate step you should take. A GYN/ONC would also be the best person to treat you.