One patient with glioblastoma still alive nine years later
by KHILDE on Sun Oct 18, 2009 12:00 AM
by KHILDE on Sat Oct 24, 2009 03:48 PM
Not sure what is going on with my computer. My posts keep showing up blank—sorry!
I had surgery Monday and feel much better today (SAT). I felt like I got hit by a bus earlier this week. The surgery went well so I am hopeful for the future.
by andreat on Mon Nov 16, 2009 05:52 AM
Hi! I had a radical trachelectomy April 2006, and I am now pregnant for the third time. The first pregnancy (within a few months of surgery) resulted in an early miscarriage, but the second resulted in a lovely baby boy (who is now 2 years old!). I am now 31 weeks pregnant with a girl... We have had no troubles conceiving (luckily!) - the only difference is that I need to take it easy, so as not to put excess stress on the suture (permanent from the time of surgery). With the pregnancy for my son, I was told to be off my feet most of the time once we hit 20 weeks or so, but because that went so well, I am not quite as cautious this time (plus have to care for a 2 year old!), but I am still careful to lie down as much as possible.
Of course, delivery has to be by c-section, and I have been told it will be between 37 and 38 weeks. I am monitored every 2 weeks by transvaginal U/S.
I feel very thankful that everything is going so well and that my fertility was preserved. If anyone has any questions I would be happy to answer if I can.
by ctg198 on Mon Nov 16, 2009 06:27 AM
that is great news. i have a trachelectomy schedualed in 3 weeks and i hope i can share a similar story ain a few years!!!
by nrbsun on Fri Nov 20, 2009 02:40 PM
OH my Andrea! You give us all so much hope! Especially after the news today trying to say that screenings should be every three years for women over 30! I can only speak for myself but I don't think I would even have the possibility to have children if it wasn't for the early detection.
Next month I go back for my six month check up and the "go ahead" to start trying to get pregnant. We are really hoping we can have a child the "old fashioned way" as well.
The good thing I can say about cervical cancer is that it has made me appreciate life so much more, increased my desire to have children and has brought this wonderful message board full of amazing and brave women into my life.
Thank you all so much for all of your posts - it has meant so much to me throughout this whole crazy journey.
by heidiJ on Tue Dec 08, 2009 12:13 AM
Andrea, it is so reassuring for many of us here to read stories like yours! I just had my six month follow up last Thursday and got the news today that it was normal (aka, I'm in the clear to start trying to conceive). I am so thankful!!! Now we just will just have to see how this next phase goes. Hopefully I can get pregant soon as I am starting to feel the clock ticking......
by nrbsun on Tue Dec 22, 2009 03:38 PM
Hello all! I was wondering of those of you who have started the process of trying to get pregnant or have been pregnant since your surgery - what type of doctor did you see? My oncologist is great but he makes no recommendations of a doctor - other than a maternal fetal medicine dr. My concern is, I live in a smaller city, and I am afraid to go to a doctor who has never had a patient before that has undergone a radical trachelectomy and is going to be discouraging. We went to a fertility specialist before the surgery - he didn't even so much as examine me and told me to not to bother having the trach and just find a surrogate! My husband and I are thinking positive thoughts but we want a doctor who will do the same. Any ideas or stories you can share would be most helpful. Thanks so much for being here.
by crusher on Wed Dec 23, 2009 12:53 AM
I too am from a small town. I live in Canada not sure where you live but I got referred to TO and London. I get a travel grant every time I go to help with the costs. They are very good and knowledgable. There a tons of other people like me they deal with everyday. I am currently 4.5 months pregnant. I had a cerclage placed below my uterus at 14 weeks. Everything went well. You can get the stitch put in before you get pregnant probably too. It took us 7 months to get pregnant so try all you want. You have good chance of getting pregnant, carrying to term is the concern. That is why the cerclage (stitch) is placed. I'm off of work now and told not to excercise and will have a c section around 36, 37 weeks. Hope this helps but do your research and find a good doctor with lots of experience that you like. There are lots of them out there!!!!!!
by heidiJ on Sun Jan 17, 2010 05:01 PM
I have just started trying to get pregnant since my tracelectomy (literally been off the pill only a month!). My Ob/gyn who worked with me through my cancer and works with my oncologist/surgeon told me once I am pregnant, I will need to see a perinatologist at my clinic. She said they will be co-managing my pregnancy as he usually wants to have her involved as well because of the cancer aspect. She also said that they would not let me consult with a fertility specialist until we have spent six months trying on our own. I wish we could move toward that faster as it is more likely I will need IUI. Also, in response to the other post about getting a cerclage early in the pregnancy- I actually have a permanent surgical cerclage from my trachelectomy. I didn't realize this wasn't the case for all trachelectomies.
by mobilis on Mon Feb 22, 2010 10:30 AM
I had a radical abdominal trachelectomy and lymphadenectomy in September 2008 for stage 1B1 CC. I have a permanent cerclage and my margins came back clear with no lymph node involvement.
Because I had just turned 35, we were given the go ahead start trying to get pregnant after my first post-trach check-up. I consulted a fertility specialist directly, without us trying on our own first (as I had been told we would almost certainly have some difficulties), with the intention of doing IUI.
We had a lot of difficulty with the "cervical" os. The cerclage is pulled very tight, and I initially had some stenosis, to compound the problem. I had two minor office procedures to dilate the os. After that, it was still very small and difficult to see, but large enough to accept a catheter.
After 4 IUIs I had a laparoscopy, and it turned out that my tubes were distorted from scar tissue, and neither tube was patent. Only one of the tubes could be restored to patency. Since I have had one successful pregnancy previously (pre-CC) this was almost certainly a result of the surgery, probably from the lymphadenectomy.
By this time I had turned 36, so after one more unsuccessful IUI (when I ovulated on the side of the patent tube) and one "natural" IVF (non-patent tube), which was cancelled when the embryo failed to develop, I elected to do a long protocol IVF cycle. We transferred only one embryo (5 day blastocyst) and I am now 18 weeks pregnant.
At this stage I am being monitored by abdominal u/s every 3 weeks, and taking prophylactic antibiotics (Flagyl and Augmaxil), as well as oral progesterone and Adalat, a calcium-antagonist, to suppress smooth muscle contractions. Everything is going very smoothly so far, but we are very aware that we are now entering the highest risk stage of the pregnancy. At the first sign of any distortion at the cerclage, I will be admitted to hospital until delivery.
Sorry this turned out to be such a long post, hope it is helpful.
When you track a discussion, you will get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to track this discussion?
If you stop tracking this discussion, you will no longer get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to stop tracking this discussion?
If you were considering traveling for cancer treatment, which headline would you find more interesting?
Destination: HOPE. Cancer care that is worth the trip.
Over 84% of our patients travel to our hospital from another state
Neither headline is interesting
We care about your feedback. Let us know how we can improve your CancerCompass experience.