Can you tell when a seizure's coming?

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Can you tell when a seizure's coming?

by Sue719 on Thu Jan 08, 2009 12:00 AM

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I have gbm iv, and am between temodar treatments. Last night, I became a bit dizzy as I walked out of my office building. Felt nauseous when I got home, but with a few crackers and some seltzer, it pretty much subsided. Felt better this a.m,, but not completely.

 I worried last night that I should let someone know that I wasn't feeling well, but I didn't people trying to get me to the ER if it's nothing to worry about. Left a message for the NP in my doctor's office. Just wondered if anyone had had a similar experience, and if it le to anything.

 

Thanks,

SueP

RE: Can you tell when a seizure's coming?

by Lorre_G on Thu Jan 08, 2009 12:00 AM

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Sometimes you may have a warning.  It is called aura, the brief period of heightened sensory activity that immediately precedes the onset of a seizure. It may be characterized by numbness, nausea, or unusual sensitivity to light, odor, or sound.  It would be a good idea to discuss thi s with your doctor.

Lorre G.

RE: Can you tell when a seizure's coming?

by Sue719 on Thu Jan 08, 2009 12:00 AM

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Thanks for your response. I am ad advertising writer specializing in pharmaceuticals and learned about the aura while working on a drug for epilepsy.  My symptoms did not fall into that range--I'm just worried that I'm sprouting a new tumor or or that an existing cyst has blown up enough to affect my equilibrium. 

 Have an mri scheduled about a month from now, but hope to hear back from the dr's office with a message of complete and utter reassurance.

 

Thanks again,

Sue

RE: Can you tell when a seizure's coming?

by Posty1331 on Thu Jan 08, 2009 12:00 AM

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I can't really tell you when you are going to have a seizure but I am told that there is usually an aura that comes about. Maybe a smell or a feeling. My mother had GBM 4 and she had a seizure in her sleep. She could not tell me how she felt. I know she had headaches. I am so sorry to hear about this. As a caregiver I know what you are going though as a patient I don't. I wish you the best. God Bless.

RE: Can you tell when a seizure's coming?

by Sue719 on Thu Jan 08, 2009 12:00 AM

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Thanks for your response. I am an advertising writer specializing in pharmaceuticals and learned about the aura while working on a drug for epilepsy.  My symptoms did not fall into that range Still, I'm worried about seizure and stroke,that I'm sprouting a new tumor or or that an existing cyst has blown up enough to affect my equilibrium. 

 Have an mri scheduled about a month from now, but hope to hear back from the dr's office with a message of complete and utter reassurance.

 

Thanks again,

Sue

RE: Can you tell when a seizure's coming?

by Sue719 on Thu Jan 08, 2009 12:00 AM

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Yikes--I sent the same message twice. Apologies, and sincere thanks to Posty and Lorre for your info and good wishes.

If I learn anything that seems generally helpful, I'll be back with a fresh post.

Sue

RE: Can you tell when a seizure's coming?

by momaton on Thu Jan 08, 2009 12:00 AM

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Dear Sue,

Are you on steroids? My husband developed diabetes from the steroids.

We didn't expect that and he went into a diabetic coma one day...couldn't wake him up for hours.

Low or high blood sugar can cause the same symptoms.(sp)

Just a thought, Best wishes,

Eve

RE: Can you tell when a seizure's coming?

by Sue719 on Thu Jan 08, 2009 12:00 AM

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Hi Eve,

I'm not on steroids any longer; however, one of my sisters developed type 1 diabetes a year ago (at age 54), and was near loss of consciousness by the time she got to the hospital.

 She's doing really well now. How's your husband?

I finally heard back from my NP. She said she's not too worried right now, but that if it gets worse and is accompanied by a headeache, I s hould get back in touch. So I'm going to officially not worry for the time being, and assume it'll go away by, say, tomorrow.

 

Thanks again to everyone for all your help!

Sue

 

 

RE: Can you tell when a seizure's coming?

by oceanswimmer on Fri Jan 09, 2009 12:00 AM

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My son has had only one seizure, at the beginning of the second week of radiation and temodar.  The day before the seizure he complained of nausea (the only day he did that) and said his head felt weird; he didn't want to eat anything that day.  The next morning when he woke up, he said part of his face was tingling/numb, along with his left hand and fingers.  A few hours later when we were driving to radiation, his hand started twitching and shaking, then his arm started jerking, and then he went into a full seizure.  (He was in the passenger seat and wearing his seatbelt, which was fortunate.)  When the seizure ended, he couldn't move his left arm or left leg for a few minutes, and after that he said they felt heavy. I took him to ER, they did a CT scan and checked the level of the anti-seizure med (dilantin) in his blood, gave him a second med (keppra), and another med (lorazepam) he can put under his tongue if he feels a seizure coming on.  We are now weaning him off the dilantin.

RE: Can you tell when a seizure's coming?

by Sue719 on Fri Jan 09, 2009 12:00 AM

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Thanks for your info. It helps provide context for when these incidents come up. I'm feeling better now, and haven't had a seizure or any other complication.

 

Best wishes to you and your son!

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