Which option? Please help

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Which option? Please help

by bluefootedbooby on Thu Jan 08, 2009 12:00 AM

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Mastectomy or lumpectomy? I 'm a 60 year old with DCIS. I can't decide which to have.  Ihave very fair and sensitive skin prone to sunburn. Would radiation be harder on me than someone with less sensitive skin? Thanks in advance for any input.

RE: Which option? Please help

by Sewwonderfulwoman on Fri Jan 09, 2009 12:00 AM

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On 1/8/2009 bluefootedbooby wrote:

Mastectomy or lumpectomy? I 'm a 60 year old with DCIS. I can't decide which to have.  Ihave very fair and sensitive skin prone to sunburn. Would radiation be harder on me than someone with less sensitive skin? Thanks in advance for any input.


Hi Bluefoot (love the name!)

Statistics show lumpectomy to be as effective as mastectomy.  I would assume a lumpectomy is easier to recover from (I had a modified radical mastectomy)  You might ask how large a chunk they intend to take (have them draw on yr. breast so you have a visual), then you can decide whether that's OK w/you or you want a mastectomy and reconstruction.  It really boils down to what you feel is best for you.

As far as radiation goes, I'm a brunette and burned badly.  My blonde Irish friend said she only got as bad as a bad sunburn.  Go figure!  Just be sure to use the lotions they recommend (or if they don't then look for the ones w/aloe in them). Good luck w/your treatment.

RE: Which option? Please help

by Sykvia on Fri Jan 09, 2009 12:00 AM

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I was diagnosed with bc one year ago.  Had a lumpectomy.  The lump was 2.5 centimeters.  Then had chemo and radiation. 

 I toyed with the idea of mastectomy, but was encouraged by my doctors to do only the lumpectomy.  I am so glad I did.  The chemo was worse than the radiation.  During radiaion, I used the gel they gave me repeatedly throughout the day.  My last radiation treatment, the doctors could not believe that my skin looked so good.  I, too, sunburn easily.  September 3 was my last radiation treatment.  I still have the "tan", but am doing very well.

 

 

RE: Which option? Please help

by trehouse60 on Fri Jan 09, 2009 12:00 AM

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Hi Bluefootedbooby,

Lumpectomy does not guarantee for anybody that the surgeon will get all the cancer, but truthfully, neither does mastectomy.   That's why they do the radiation - to catch any seeds of cancer that have broken away from the primary site into the surrounding tissues or the lymph system.

While with mastectomy you might be able to avoid radiation, there are considerations other than that and reconstruction.  With mastectomy they remove a lot more tissue, and that means a lot more damage to the lymph system with the possibility of resultant problems.  Also a lot more initial challenge to the body - longer time under anesthesia, a greater chance of infection, and more demands on the body for greater tissue healing.  With lumpectomy they try not only to save breast tissue, but to keep as much of the lymph system intact as possible - the lymph system is the major cleansing network for the body - our chests need that protection. With mastectomy, that protection will be removed.  Surgeons take all that into account when they recommend breast-conservation (lumpectomy) and radiation, but I think patients have a right to be informed of those risks as well.

I had a large tumor located very high in the tail of my left breast (almost totally up under the arm.  I had a lumpectomy - left quite a large divot on the outside border of my breast, but I am fortunate in that I did not need reconstruction.  We already knew I had some lymph node involvement going into surgery; unfortunately, there were cancer cells in the margins of the tissue the surgeon took out, so I had to have another surgery and have more lymph nodes removed.  After both surgeries, I made an effort to take good care of my arm, and had no signs of lymph edema going into radiation several months later. With radiation, I began to get lymphedema  - more lymph nodes were being damaged by the radiation and I just didn't have enough left to provide adequate drainage.  I chose to stop the radiation about half-way through, preferring to take my chances that the cancer might recur rather than moving forward with the pretty definite knowledge that the few remaining functioning lymph nodes I had left might also be irreversibly damaged and that I might have to live with a constant severe lymphedema.  (My livelihood depended upon use of my hands and arms - for me the choice was one of quality of life rather than quantity.)

So obviously  lumpectomy is not a guaranteed easier ride for everyone, but at the outset, surgically it does present fewer risks.  And there always is the option of having more breast tissue removed in future.  However, radiation presents immediate risks other than just burning of the skin, and radiation makes future surgery possibly not go as well - that's a consideration, also.

In late 2007 we found nodules in my lungs, in Feb 2008 I had a surgical biopsy with definite diagnosis of metastatic breast cancer. 6 1/2 years after my breast surgeries, I am now a survivor in remission due to alternative treatment, and planning to stay that way!  My future is not guaranteed ( no one's is!), but if I had to choose again with the possibility of a different outcome, I believe I would make the exact same choices, because they were the choices that brought me the most peace then, and I am at peace with them now.

Quite possibly you have a "gut feeling" about what you want to do, but are trying to make the most logical and well-informed choice.  But listen to your gut feeling, too; seriously take into consideration the way you "feel" about your choices -  sometimes our inner being has some pretty good wisdom of its own. 

I wish you well with however you decide to go.  Please keep us informed of your progress.  We will offer you support, and do the happy dance with you as you get through each step!

Sincerely,

Tre

RE: Which option? Please help

by mazzerwally on Sat Jan 10, 2009 12:00 AM

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On 1/8/2009 bluefootedbooby wrote:

Mastectomy or lumpectomy? I 'm a 60 year old with DCIS. I can't decide which to have.  Ihave very fair and sensitive skin prone to sunburn. Would radiation be harder on me than someone with less sensitive skin? Thanks in advance for any input.



I had a lumpectomy and radiation. I also have a type of lymphoma which affects skin and my skin is fragile and fair.  I had 27 treatments  over 5 weeks and only burned in a minor way at the end.  I did use masses of moisturising cream and kept as cool as i could, although tiring i found radiation quite manageable.The question of mast/lump is really how you feel about yourself and your illness. (also what sort of rapport you have with your dr.)Whichever way you go, i hope it works for you. I am in my early 60s tooAll the best Mazzerwally 

RE: Which option? Please help

by bluefootedbooby on Sat Jan 10, 2009 12:00 AM

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I want to thank you all for your help and input. I have decided to go with the lumpectomy and radiation. Will post with updates as they occur.

Thanks again.

RE: Which option? Please help

by trehouse60 on Sat Jan 10, 2009 12:00 AM

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I am NOT a fan of radiation, but I am even LESS a fan of mastectomy, so I'm glad to hear you are going with the lumpectomy/radiation.  I hope everything goes well for you.  Take care, and let us know when you get through your surgery.  Sincerely,  Tre

RE: Which option? Please help

by rwog6401 on Thu Jan 15, 2009 12:00 AM

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I am 58 and was diagnosed with stage 3 breast cancer - right side only, but it was not even an option for me even though several doctors said I needed only a right mastectomy - I chose to have a double - at our age, what it the point.  To live or not, maybe. That is your choice of course.  Radiation was not unpeasant until the last week - I am fair skinned and my skin peeled off to the point of raw skin - it was ugly and I was scared and upset and I had to take some pain pills for a few days. 4 weeks later, everything healed and I am ok now.  It wasn't pleasant by any means, but I feel that my radiogist got all of the portential cancer cells killed by treating my cancer breast and the incision.  I wish you all the best. I think everything I went through was worth it.  Robin

RE: Which option? Please help

by rwog6401 on Thu Jan 15, 2009 12:00 AM

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I wish you peace with your decision - I opted for a double mastectomy with chemo and radiation and I feel really good about it - everyone's story is so personal and different - I couldn't even share this a month ago. So, each person needs to do what she feels is right for her. I feel "cured" for now - there is obviously no guarantee - I was stage three when I went into this.  I love my medical oncologist - he is very factual yet compassionate and I think that made a huge difference in my reaction to treatment!

RE: Which option? Please help

by bluefootedbooby on Thu Feb 05, 2009 12:00 AM

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Hi everyone.

Well, I had my lumpectomy on Jan. 27. The surgery went well (good drugs) but the wires I had to have inserted before surgey were not fun. But I don't like to dwell on unpleasant things so enough about that. Unfortunately I had to go back this morning, FEB. 5TH,  and have more surgery because the DR. wanted wider margins. Now I occasionally have shooting pains through my nipple but hopefully that will go away.

I will be starting radiation next month for about 7 wks. The rad. oncologist said I am not a candidate for the shorter therapy. She also said that they are going to treat the whole breast and not just one area. When I learned of some of the possible side effects I thought about having a mastectomy but she said the way my cancer is she would want me to have the radiation either way.

 I know I am lucky that I caught this early and that I do have choices and my gut feeling is that I have made the right choice for me. I thank all of you that have responded to me and my prayers are with you.

Bluefootedbooby  aka Nancy

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