Reacurrance

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Reacurrance

by Jodi_P_1 on Sun Jan 11, 2009 12:00 AM

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I had my left kidney removed because of rcc.

Thank God my cancer did not spread.

Does anyone know the chances of cancer affecting my right kidney?

Thank you!

RE: Reacurrance

by carl74 on Mon Jan 12, 2009 12:00 AM

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On 1/11/2009 Jodi P wrote:

I had my left kidney removed because of rcc.

Thank God my cancer did not spread.

Does anyone know the chances of cancer affecting my right kidney?

Thank you!


Except with a few special types of kidney cancer, there is no special concern about recurrence in the second kidney. However, depending upon the size, type, and staging, recurrence elsewhere is a possibility that requires careful monitoring with the help of an expert oncologist specializing in kidney cancer. Do you know the type (clear cell, papillary. etc) and staging? That can be helpful in assessing the probablity of recurrence.

RE: Reacurrance

by Joanne_I on Mon Jan 12, 2009 12:00 AM

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On 1/11/2009 Jodi P wrote:

I had my left kidney removed because of rcc.

Thank God my cancer did not spread.

Does anyone know the chances of cancer affecting my right kidney?

Thank you!


Hi Jodi,

I also had my left kidney removed 11 years ago, stage 1, clear cell,  had not spread and I was "cured".  It has returned so I have one secondary tumour between my lung & pulmonary artery I have started Sutent this weekend.  It is too dangerous right now to remove but when we get it shrunk it may be a possibility to remove.

My only advice to you is to be followed forever!  I was followed for 5 years and all clear.  My kidney oncologist figures it has been growing for a couple of years and is slow growing.  He has been amazing & so confident that things are going to be fine which helps me out a lot and has all the time in the world for all my questions.

Good luck!

Joanne

RE: Reacurrance

by JulieUK on Mon Jan 19, 2009 12:00 AM

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Hi - I believe  (but will check!) the rate of recurrance for RCC is something like 40-50%, but it depends on the initial stage it was DX the first time around. The earlier the stage, the less likely recurrance is. I know the longer it doesn't recur, the better - ie, the less likely it IS to recur at all. But it can definitely definitely recur years and years and years later! I think the record I've heard of so far is something like l6. That's why, yes, you must NEVER assume it's gone for ever, however reassuring your doctors are. Keep those scans going! For the rest of your life.

The upbeat thing is that, even if it DOES recur, because you'll have been scannign regularly (it's about once a year at least, isn't it folks who know?), if they DO find something, it won't have been there too long, or got too nasty. Plus, these days, the powerful new drugs like Sutent, plus the new tehcniques like cybeknife etc, mean that recurrant tumours (they will be classed as mets - metastases - because the original primary tumour is long gone), are far more treatable than they used to be.

I take it you have had a full body (chest and abdomen) CT scan, plus a head and neck scan, to check that, even if it was DX early stage as seems, there are no signs of mets anywhere currently in your body? It really is worth having this done, whatever the stage you were DX at. Depressingly, the docs now think that cancer can start to metastasize earlier than thought originally, so constants vigilience is needed by the patient.

All the very best to you - and HOW FORTUNATE your cancer was caught so early. Only around half of kidney cancer is caught at stage one, which has a five year suvival of nearly 90% (and people here will tell you they've lasted decades longer than that!)

Julie.

RE: Reacurrance

by Jodi_P_1 on Tue Jan 20, 2009 12:00 AM

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Hi Joanne,

First I send you my prayers and laughter as you battle this new challenge!

Thank you for the valuable information and please keep us up to date.

Here's to you, special lady!!!

God bless,

Jodi

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